What we've been dreading has happened: my friend Katiana (Katiana.) is on her way to being involuntarily hospitalized. Her family believes she is not sick, same with the doctors there. She has VERY SEVERE ME/CFS and this could easily kill her. She and Josh (Josh)

A provisionally accepted paper has come out that claims oxaloacetate performed better than placebo in improving fatigue in #MECFS. frontiersin.org/journals/neuro…

Inspiratory muscle training improves autonomic function in myalgic encephalomyelitis/chronic fatigue syndrome and post-acute sequelae of SARS-CoV-2: a pilot study #MECFS The study has some important limitations, but still appears interesting. sciencedirect.com/science/articl…

Exciting news: KATIANA IS HOME!! We could not have done this without the dire efforts of Josh and many others. The community came together in an exceptional way over the past few days and I am so proud of all of us. Thank you so much to everyone who helped ❤️

Very interesting: another study found that muscle cells exposed to #MECFS and #LongCovid serum become dysfunctional. sciencedirect.com/science/articl…

New review: Assessment of the therapeutic potential of salubrinal for ME/CFS and long-COVID sciencedirect.com/science/articl… #MEcfs #CFS #PwME #LongCovid

The ME Association refutes the letter regarding graded exercise therapy (GET) as a treatment for ME/CFS published in the Guardian Read more: meassociation.org.uk/ttqt #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #NICEGuideline #GET #CBT

This study suggests that biological mechanisms underlying pathologic fatigue in #MECFS patients also underlie fatigue symptoms at a broader population level. academic.oup.com/sleep/advance-…

I really hope this isn't about ME/CFS - again. The "silencing" story around this illness has a. been inflated beyond recognition. b. been used for the past 13 years to protect bad science from effective scrutiny. theguardian.com/commentisfree/…

Many young US Marines with mild Covid prospectively followed ~1 year developed #LongCovid sequelae thelancet.com/journals/lanam…

A summary of the funded studies: 1. care and treatment needs of severely ill #MECFS patients 2. rare genetic variants 3. antibodies against the microbiota 4. mast cells 5. skeletal and heart muscle metabolism 6. glycosylation-related biomarkers 7. cerebral oxygen metabolism

EMEA issued this statement at 74th Regional Committee Meeting for Europe on the agenda item discussing the State of Health in the WHO European Region europeanmealliance.org/emea-news-whoe…

We are excited to announce an $800,000 donation to Mount Sinai to support a clinical trial of the drug rapamycin in patients with long COVID. The trial will be conducted at CoRE: a clinic directed by Dr. David Putrino and PolyBio's Dr. Amy Proal: polybio.org/polybio-suppor…

Now published CDC-funded study: Cognitive assessment in #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome (ME/CFS) frontiersin.org/journals/neuro… "The challenges of a clinic visit (including cognitive testing) can lead to further cognitive deficits" #MEcfs #CFS #PwME

New pre-print from Prof Jonathan Edwards: The Concept of ME/CFS qeios.com/read/NXCXM1 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME