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Fighting for Fairness: We Need Your Voice to Challenge Benefit Reforms The ME Association has launched a major project to respond to the government’s proposed welfare reforms — and we urgently need your help. We’ve created a comprehensive survey to gather both personal

In April this year, the ME Association joined BlueSky, as another platform through which we can support, campaign, and inform.  If you're on Bluesky, please follow us @meassociation.bsky.social  #Bluesky #FollowUs #pwME #MECFS #LongCovid

We have places in the Hackney Half Marathon 2026! Have you any family and friends who'd like to sign up? Hackney Half Marathon is part of East London's unmissable weekend of sport, entertainment, and community celebration. This half marathon sold out in just two days this year

With certain parts of the UK experiencing hot weather again, here are some simple ways to combat the heat if you have M.E/CFS: meassociation.org.uk/rakw  #pwME #MECFS #MyalgicEncephalomyelitis #HeatWave #HotWeather #StayCool

GOV UK Announcement: Welfare bill will protect the most vulnerable and help households with income boost "Additional protections for millions of vulnerable people on benefits are set to be written into law, under new measures being introduced to Parliament yesterday (18 June

Ella says: "The ME Association is deeply concerned by the government’s continued claims that its proposed welfare reforms will “protect the most vulnerable.” For people living with ME/CFS and Long Covid — many of whom face complex, fluctuating* symptoms (whereby symptoms are

Parliamentary Debate: Disabled People in Poverty During a debate in Westminster Hall (17.06.25), Neil Duncan-Jordan MP spoke about his concerns regarding #WelfareReform and how the points system is flawed for those with dynamic disabilities such as ME." meassociation.org.uk/dppp #MECFS

A former rugby player completed a #Warwickshire event which bills itself as “without doubt one of the most beautiful 10k runs in the country”. He ran the #TwoCastles10k for a younger brother who was diagnosed with ME nine years ago. meassociation.org.uk/2025/06/lewis-… #mecfs #Kenilworth

Research: Replicated blood-based biomarkers for myalgic encephalomyelitis not explicable by inactivity embopress.org/doi/full/10.10… #pwME #MECFS #MyalgicEncephalomyelitis #Research

**TW: Upsetting Content** BBC News: 'I'm always in pain - even talking hurts'  "For 48-year-old Nia McGregor, talking to people and even wearing clothes hurts. She has fibromyalgia, a condition that causes extreme physical pain and tiredness, external, and said at her lowest

The Guardian: Labour MP resigns as government whip in protest at benefit cuts  "Vicky Foxcroft says she cannot support changes to disability payments ahead of key vote on welfare bill"  Read more: theguardian.com/politics/2025/…   #WelfareReform #BenefitsCuts #WelfareCuts

Since 1980, the ME Association has been dedicated to improving the lives of people with ME/CFS. We raise awareness, lobby and campaign on behalf of the community, invest in research, and provide support and expert information - and our members are at the very heart of this.

We have asked BBC News to change the headline of this article and replace Chronic fatigue with ME. ow.ly/ULr950WcVhG #MillionsMissing #pwME

Our online community, ME Connected, is for people with ME/CFS and Long Covid, and their friends, family, and carers. It's a safe space to find support and friendship, where you can talk about anything from pacing and management of symptoms to video games and music!  Join ME

The Times: Simple blood test could provide first reliable diagnosis for ME Dr Charles Shepherd, MEA Hon. Medical Adviser has provided his comments which you can read via the link below: meassociation.org.uk/qqob #pwME #MECFS #MyalgicEncephalomyelitis #Research

. BBC News (UK) Chronic fatigue is not in your head, it's in your blood - experts (not an appropriate title) Prof Chris Ponting said: "For so long people with ME/CFS have been told it's all in their head. It's not. We see it in their blood"." bbc.co.uk/news/articles/… #pwME #MECFS

Research: Replicated blood-based biomarkers for myalgic encephalomyelitis not explicable by inactivity embopress.org/doi/full/10.10… Read the MEA comments on the research on the following website post: meassociation.org.uk/qqob #pwME #MECFS #MyalgicEncephalomyelitis #Research

Welfare Reforms: The ME Association strongly opposes government press release! Read more here: meassociation.org.uk/wrpg #MECFS #LongCovid #BenefitsCuts #WelfareReform #TakingThePIP #FightTheCuts #ListenToME