⁉️📢 Calling those with #LongCOVID who have had a Pemgarda infusion — how did it affect your symptoms compared to your pre-infusion baseline? If you had improvements or worsening, let us know in the comments how long they have lasted. Please share 🙏#pwLC Patient-Led Research Collaborative

#MEAction will be taking our one-week summer break. We return July 7th. We hope you can take some time to rest and replenish as well. Our websites and MEpedia are still available a well as our groups unless moderators need a pause to rest. Take care and Happy Summer!

Donate today! #MEAction has a $25K fundraising match opportunity! Your donations help us to stay in the fight for this community! meaction.net/donate #pwME #MECFS #MyalgicEncephalomyelitis #LongCovid

We are outraged by the recent actions taken by Senators who voted to gut Medicaid—a lifeline for millions of children, older adults, disabled people, and families across this country. Our full statement: caringacross.org/news/senate-bu…

The United States Senate’s Budget Reconciliation Bill Threatens the Lives of Disabled Children Elena Hung (she/her)'s statement below 👇 #ProtectMedicaid

#MEAction has a $25K fundraising match opportunity! Donate today! Your financial support allows us to provide support for this community! meaction.net/donate #MyalgicE #MECFS #pwME #Disability

🗣️Important wide-ranging interview with high profile Aussie journo‼️Free podcast 🎧 Listen & share 😀 #MyalgicEncephalomyelitis #MECFS #LongCOVID #InvisibleIllness #pwME ME Group Australia (Rachel) ME Advocacy Network Australia (MEANA) Tom Kindlon Eliza Charley | Actress on Pause Solve ME/CFS Initiative #MEAction Network Millions Missing.. MillionsMissingNL

We are back from our summer break & we have so much coming your way! The Severe ME Artists Project is coming back! We have an extremely modified movement class soon. We have a matching donation challenge! We will be announcing a brand new project and much more! Details coming!

Join #MEAction for a FREE extremely modified movement class that can be done lying down from bed on July 17th at 11 am PST/2 pm EST/7 pm GMT. It has been crafted specifically for #pwME by #PwME Shannon Williams-Bramburger of Nourish Therapeutic Yoga. momence.com/Nourish-Therap…

Check out this webinar from our friends at Solve ME/CFS Initiative. The implications of this trial for people with ME/CFS and other IACCIs will be discussed, and attendees with Long Covid will learn more about how to participate. Tuesday, July 22 @ 3 pm PT / 6 pm ET #pwME #LongCovid

#MedEd event -FREE CME/CNE credits for a virtual facilitated discussion on #MECFS -TOMORROW! events.jhu.edu/form/me-cfs When: July 9th at 12p EST Where: Zoom Who: Johns Hopkins, Stanford & Karina (#pwME) What: Overview of patience experience & current research #MedTwitter #pwME

A message from #MEAction’s Executive Director Laurie Jones after the passing of recent legislation: mailchi.mp/meaction/meact… #PwME #MyalgicEncephalomyelitis #MECFS #longCovid #Disability

#MEAction is proud to bring you our Severe ME Artists Project 2025 that will feature work from those within the severe ME community & will be in recognition of Severe ME Day on August 8th! We have all the details here & are happy to help you submit: meaction.net/2025/07/10/sev… #pwME

The first paper that uses our Pacing Narrative Study data is now published. Thank you to all who participated! Stephanie Grach MD MS is building a case for vocal differences to detect PEM. She found many discussed such issues during a crash. mdpi.com/2077-0383/14/1… #MECFS #pwME

#MEAction has our $25K match opportunity available- Every gift will be doubled. meaction.net/donate We know the road ahead will require a lot of work to ensure our community is supported. In order to do this, we need financial support. Thank you! #MECFS #LongCovid #PwME

Monday tip: #StopRestPace - always! Stop, rest, pace- is not an easy thing to do at all. Between lack of support and this illness throwing surprises our way, it is much easier to say or advise than to do in real life. We have help! Pacing guides: meaction.net/resource/pacin… #pwME