Urgent Reminder: The #NotJustMySkin campaign wraps up on April 19th. Join us in advocating for the prioritization of skin health by signing the open letter at notjustmyskin.org. Show your support & help spread the word by sharing this post. #ActNow #SkinHealthAwareness

🚨 Calling all lupologists!

✅ Kindly share our Living With Lupus survey and help us get as many responses as possible.

🇪🇺 Available in 21 languages!

buff.ly/3VZLsEc

✅ Just 3 more days before the 4th SLEuro Advanced #Workshop for #Lupus of Porto (19-20 April) and I'm happy to share my recap slide about antinuclear antibodies ( #ANA ) in #SLE 📝 We're going to discuss atypical lupus cases...so it's good to know what is typical first 👍

Part 2 of our  #LupusNephritis  case-based modules reviews treatment guidelines for #lupus nephritis and the prevention of chronic #kidney Disease , with expertise from Y.K.Onno Teng and Luis Quintana: lupusCME.org #RheumTwitter #rheumatology #SLE #kidney #CME #autoimmune

Our Board & extended Board met last week for 2️⃣ full➕exciting days of work on the strategic plan. Lots of exciting plans in the pipeline🤩!

We also hosted an Industry Roundtable, bringing together our Industry Partners to talk about our work.

More on that 🔜 in the newsletter!

Desde Lupus España ( Federación Española Lupus | #FELUPUS ) 🙏 os pedimos 🙏 vuestra colaboración para difundir y rellenar esta encuesta para pacientes “SWISS KNIFE SURVEY” de Lupus Europe en Español 🇪🇸

Enlace surveylegend.com/s/5h8u

⏳️En 15 minutos tu voz y realidad será trasladada y ➕️ visible❗️

✍🏻Попълнете анкетата.

🔊Споделете с вашата общност.

👨🏼‍⚕Ако сте здравен специалист и лекувате пациенти с лупус в Европа, ще сме много благодарни, ако информирате вашите пациенти.

s.surveylegend.com/-NuOC4mQDrt8ud…

Hello lupologists!
A SLESIS-R >6 = likelihood ratio of 5.5 to develop an infection in the next year.
SLESIS-R: an improved score for prediction of serious infection in patients with systemic lupus erythematosus based on the RELESSER prospective cohort lupus.bmj.com/content/11/1/e…

✍🏻Пройдите опрос.

🔊Поделитесь с вашим сообществом.

👨🏼‍⚕Если вы медицинский работник и лечите пациентов с лупусом в Европе, мы были бы вам очень благодарны, если бы вы проинформировали своих пациентов.

s.surveylegend.com/-NtkhreGgEglDg…

✅ #PANLAR2024
Check our International recommendations for #physicalactivity and exercise in persons living with #lupus ⬇️ with the contribution of several PANLAR members 👍 🌎

✅ #PANLAR2024 'REFRACTORY #LUPUS ' Check 🔎 the RED FLAGS 🚩 for syndromic & 'non-spontaneous' lupus, such as drug-induced lupus 💊 or associations such as male ♂️ lupus & Klinefelter syndrome
What would YOU add to this list?

✍🏻Täytä kysely.

🔊Jaa yhteisösi kanssa.

👨🏼‍⚕Jos olet terveydenhuollon ammattilainen ja kohtelet lupuspotilaita Euroopassa, arvostaisimme suuresti, jos informoisit potilaitasi.

s.surveylegend.com/-NrB_0Hf4Z-ZAZ…

✅ #PANLAR2024 Advances in #Lupus guidelines, from EULAR to GLADEL (and vice versa). Today 10:30 in the PLENARY SESSION room. If you haven't checked the #EULAR guidelines for #SLE , here is a summary of the main overarching principles ⬇️ +LINK: doi.org/10.1136/ard-20…

Lupus Europe is conducting a survey to gather insights into the experiences of individuals living with #lupus .

Your participation will help to refine understanding and improve treatments and support for lupus.

You can complete the survey here: surveylegend.com/s/5h8u 🔗

✍🏻Izpolnite anketo.

🔊Delite z vašo skupnostjo.

👨🏼‍⚕Če ste zdravstveni strokovnjak in zdravite bolnike z lupusom v Evropi, bi vam bili zelo hvaležni, če bi svoje paciente obvestili.

s.surveylegend.com/-Nt-wdNdIqT4v3…

SLESIS-R(evised)... After a 1st work with Btejseg Anisur Rahman Chris Wincup and Prof. Isenberg UCLH, now Dr. Rúa Figueroa presents the improved version with excellent performance, validated in the prospective RELESSER cohort Soc.Esp.Reumatología... what's next??

💫 Join our next International PARE Webinar: 'How to fundraise successfully to run your patient organisation'

🗓️ Wednesday 24 April 2024, 16:30 - 17:30 CEST

Register here! 👉 pulse.ly/widyg3q4gx

@eularyoungpare

#eularPARE #EULAR #RMDs

✍🏻Dalyvaukite apklausoje.

🔊Dalinkitės savo bendruomenėje

👨🏼⚕Jeigu esate sveikatos priežiūros specialistas ir gydote vilklige sergančius pacientus Europoje, būtume labai dėkingi, jei informuotumėte savo pacientus.

s.surveylegend.com/-NqwWcQ0UhyMxD…

✅ Don't miss Tomorrow's session 'Advances in #Lupus guidelines' at #PANLAR2024 . Plenary session / 11th of April 10:30. I will talk about the PRO's & Con's of the new #EULAR guidelines + Bernardo & Guillermo Pons Estel will talk about GLADEL Panlar #SLE recommendations 👍

✍🏻Completează sondajul.

🔊Împărtășește cu comunitatea ta.

👨🏼⚕Dacă ești un profesionist în sănătate și tratezi pacienți cu lupus în Europa, am aprecia foarte mult dacă i-ai informa pe pacienții tăi.

s.surveylegend.com/-NrUOqKxZuU6V6…