Let’s goooo!!⚾️

Vikram’s father’s ALS led him to create Roon, an app that puts top ALS specialists and others with ALS at your fingertips. This eps is about turning pain into purpose. 💙✨ Listen: bit.ly/ListenOnAppleP… or bit.ly/ListenInOnSpot… Roon: roon.com/als/home I AM ALS

Just a few of the experts answering your questions on Roon.com. Hear more in episode 107 of I’m Dying To Tell You Podcast. I AM ALS ALS TDI HopOnACure Hope Loves Company Brooke Eby lori andre #als #alsawareness #mnd

Here, I’m talking with Vikram Bhaskaran, Co-Founder of Roon — a free app designed to answer your questions about living with ALS. We dive into how Roon is making medical information more accessible for patients, caregivers, and families. podcasts.apple.com/us/podcast/im-… I AM ALS #als

Honored to be speaking at the ALS Empathy Dinner on 5/20 where attendees feel personally connected to the ALS community’s journey by enjoying dinner while taking on an ALS symptom (e.g. inability to walk, talk, etc.) Join us! Tix: debbashope.org? I AM ALS #als

I’ve been BLUE all day to support Live Like Lou & to honor all of us living with ALS & many we’ve lost! My shirt says “Luckiest” & having lived with ALS for 21 years, I am forever grateful for every chance to spread hope in our precious community! 💙#blue4lou #livelikelou #als

In honor of Hop’s birthday & ALS Month, I thought I’d share this clip from Redsfest 2022 where Hop explains his first ALS symptom. Love seeing him ROCK the Reds jersey! Excited to have him back for our pregame party on Cincinnati Reds Lou Gehrig Day, June 2. ⚾️ I AM ALS HopOnACure

NEW EPISODE! After caring for her husband, Larry who had ALS and frontotemporal dementia (FTD), Elin is now creating resources for others walking this extremely difficult path. Her inspiring journey: bit.ly/ListenOnAppleP… I AM ALS The AFTD EndTheLegacy #als #ftd

Sometimes FTD comes with ALS. Elin’s story here is one of love, resilience, and the power of transforming personal loss into lasting impact. 🎧Listen in: podcasts.apple.com/us/podcast/im-… I AM ALS The AFTD Fortheirthoughts EndTheLegacy #als #ftd

Looking forward to speaking at the ALS Empathy Dinner & witnessing this unique event. Attendees have dinner while taking on an ALS symptom (e.g. inability to walk, talk, etc.) The goal is to educate on the realities of ALS. Here's link: debbashope.org? I AM ALS

In tears over here! Such a beautiful song with the purest emotions! John Driskell Hopkins & his dear friend and band mate Clay Cook created this as John sings to his wife & daughters. Beautiful.💙. Stream full song: ffm.to/yvanpxb HopOnACure Clay Cook I AM ALS

Look up the word COMMUNITY & you’ll see Mariemont City Schools! Love how they continue to fight ALS in memory of their Coach Graham Harden and in honor of my friend & IDTTY guest, Sam Telgkamp. Her ALS Story I AM ALS ALS United Ohio #als

Here, Elin Adcock shares her powerful journey through her husband’s ALS and frontotemporal dementia (FTD) diagnoses—and how she’s now leading the charge to support families facing the same fight. Listen in: bit.ly/ListenOnAppleP… I AM ALS The AFTD EndTheLegacy #als #ftd

New Episode! Each guest has lost someone to ALS, yet surprising ALS families with accessible vans, wheelchair ramps, lift chairs & patient care! You kinda gotta hear it to believe it, so here are some listen links: bit.ly/ListenOnAppleP… or bit.ly/ListenInOnSpot… I AM ALS

Honored to be the keynote speaker at an I AM ALS Empathy Dinner, created & hosted by my friend Deb Winters. Grateful to be a part of this beautiful ALS awareness event! More about ALS Empathy Dinners: iamals.org/host-an-empath… #ALSishere #SoAreWe #ALS Marshall Health #iamals

Eleven Years = Eleven Swallows! So happy to celebrate Andrea Lytle Peet living with ALS for 11 years. She inspires me EVERY SINGLE DAY to “Go On, Be Brave!” Big love to my friend & IDTTY guest, Andrea!! Team Drea Foundation ALS TDI Her ALS Story I AM ALS #als

Thank you I AM ALS for making it Easy Peasy to find out what’s happening at ALL MLB ballparks for Lou Gehrig Day, June 2nd! iamals.org/lou-gehrig-day…

Meet Ashley!! Losing her dad to ALS inspired her family to help others! They created Always Lifting Spirits which gifts lift chairs to other ALS families. Hear all the blessings coming out of one community: bit.ly/ListenOnAppleP… 🎧 Connect: alwaysliftingspirits.com

🚴‍♀️💜 I’m excited to share that I’m participating virtually in the ALS TDI Tri State Trek to help fuel ALS research! I’ve set a goal to move 200 miles in 25 days — to honor those living with ALS and fight for a cure. Join/support me: tst.als.net/team200milesin… #als

I’ve set a goal of 200 miles in 25 days in this year’s Tri State Trek! I hope my efforts help fund ALS research at ALS TDI 💜 Create your own goal to meet by 6/30 & Join My Team: tst.als.net/team200milesin… Or Support Me: tst.als.net/lorris200miles… Catrike I AM ALS #endals #als