Lorri Cavaliere(@LorriCav) 's Twitter Profileg
Lorri Cavaliere

@LorriCav

A mom in CT, fighting and advocating every day for the life of my 32-year old daughter, Alexandra, diagnosed with sporadic bulbar-onset ALS in July of 2020.

ID:21973270

calendar_today26-02-2009 04:58:57

753 Tweets

1,3K Followers

4,3K Following

No More Excuses ALS Watchdogs!(@als_now) 's Twitter Profile Photo

When a brain doctor gets a brain tumor he can experiment on himself using his own new therapy- and is celebrated. But when an / PATIENT merely asks for a chance to try a (proven) safe and effective therapy that has undergone 3 U.S. FDA clinical trials in 10 years- nope. We…

When a brain doctor gets a brain tumor he can experiment on himself using his own new therapy- and is celebrated. But when an #ALS/#MND PATIENT merely asks for a chance to try a (proven) safe and effective therapy that has undergone 3 @US_FDA clinical trials in 10 years- nope. We…
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Lorri Cavaliere(@LorriCav) 's Twitter Profile Photo

These 90 physicians have never used NurOwn, participated in a clinical trial or seen a patient who received it. You are driven by your own biased opinion and not science. Your (and others’) obsession with bashing is over the top and an insult to those who received it,…

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Lorri Cavaliere(@LorriCav) 's Twitter Profile Photo

.David Taylor, you act as if you have ALS figured out. Last I knew, no one does. You know that most people who did not support NurOwn’s approval, supported another trial. Why do you seem so intent on destroying BrainStorm?? It’s concerning that @temetityTM and ALS Canada

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Lorri Cavaliere(@LorriCav) 's Twitter Profile Photo

There are over 100 assets in early development for but only a few remain in later stage development. Thank you, as always, @brainstormcell for not giving up. My daughter and all those people living ALS today matter too! biospace.com/article/als-tr…

ALS/MNDMamaBears
Deb Bellina

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Lorri Cavaliere(@LorriCav) 's Twitter Profile Photo

Lee, with all due respect, the majority of “our community” aren’t interested nor want to debate your analytical conversation. They want to live…now. Anything that shows a possibility is a chance. Nothing will change that. It’s an argument that will never die, unlike so many…

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Lorri Cavaliere(@LorriCav) 's Twitter Profile Photo

It seems that you and a few others are hell-bent on trying to damage , as well as BrainStorm. The fact is, there are many respected doctors who DO feel confident, David Taylor. Again, NurOwn WILL further science..it just might take a different road than you are on.…

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Deb Bellina(@BellinaDeb) 's Twitter Profile Photo

in a world and time that is filled with exciting technology, access to instant information that could change the trajectory and outcome of a clinical trial for a terminal illness. we are told to cling to the past and repeat it over and over with the same deadly result

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Lorri Cavaliere(@LorriCav) 's Twitter Profile Photo

This atrocity is happening right now, here in New Haven, CT. For Yale to continue to allow this, is insane. Mayor Justin Elicker, Stop the MADNESS! These students/protesters are a huge blemish on New Haven, Yale University and humanity as a whole. 😢

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Lorri Cavaliere(@LorriCav) 's Twitter Profile Photo

Cathy, Kevin has not been able to answer this question but AKJK has, and admits he would think differently if it were his son.

To me, there is no controversy. The pain is guttural. There is a monster that has taken hold of our kids and won’t let go. We want to try…

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Lorri Cavaliere(@LorriCav) 's Twitter Profile Photo

One of “today’s kids” happens to be my daughter! AKJK, you mention your son having a tiny chance 50-70 yrs from now. My daughter was diagnosed at the age of 28. Discovery and change needs to happen now, when there IS a chance. Any advancement in science will come from a…

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Lorri Cavaliere(@LorriCav) 's Twitter Profile Photo

Thank you, Rain Consulting Group. I couldn’t agree more. It’s the sad reality and unfortunately, our kids and loved ones are caught in the web. BrainStorm, keep doing what you are doing…we are all behind you, save a few.
Deb Bellina ALS/MNDMamaBears
Kandy Simons Mitze Klingenberg BSN, RN

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