LMNA Cardiac joins European Patients' Forum & EURORDIS-Rare Diseases Europe in urging EU leaders to protect patient voting rights in EMA committees. Patients must stay full & equal partners in shaping medicines.#KeepPatientsVoting Read why this matters: go.eurordis.org/nLKMeX

Ruth Biller’s daughter Judith died suddenly at 14. Only later did they learn it was cardiomyopathy. A previous family cardiac arrest had been a missed warning. Now they know—and others can be protected. #ThinkCardiomyopathy ❤️ 🔗 globalhearthub.org/cardiomyopathy… #DCM #LMNA #PatientStories

Did you know you can now get re-tested for genetic cardiomyopathy for free? Thanks to a new partnership, FREE testing is available to patients. Stay informed—for your care and your family’s health. Learn more: geneticcardiomyopathy.org/testing/get-te…

🩺 Vague symptoms? Inconclusive diagnosis? Don’t forget the heart. #ThinkCardiomyopathy 🧠💓 It can be silent until heart failure, stroke, or sudden death. Early detection saves lives. Learn what top doctors say: globalhearthub.org/cardiomyopathy… #laminopathies #CardiomyopathyAwareness

I thought it was diabetes. Fatigue. Anxiety. Myocarditis... But it was cardiomyopathy. Often hidden. Often misunderstood. Know the red flags. Trust your instincts. Ask: Could it be cardiomyopathy? 🔗 globalhearthub.org/cardiomyopathy… #ThinkCardiomyopathy #PatientStories

Diagnosed with heart failure, arrhythmia, or asthma—but it still doesn’t add up? It could be cardiomyopathy, a hidden, inherited heart disease. Know the signs. Know your family history. 🔗 globalhearthub.org/cardiomyopathy… #ThinkCardiomyopathy

Cardiomyopathy can be invisible—but runs in families and can be deadly if missed. Patients know their symptoms. Clinicians connect the dots. Together, we can catch it earlier. Could it be cardiomyopathy? 🔗 globalhearthub.org/cardiomyopathy… #ThinkCardiomyopathy #KnowYourFamilyHistory

📷 A Dutch team is walking 200 km in the world’s biggest walking event to raise funds for LMNA-related heart disease. Support their mission—every step fuels research + awareness. 📷 📷 lmnacardiac.org/walking-for-a-… #LMNA #Cardiomyopathy #RareDisease #HeartFailure #fundraising

LMNA-331 Research Collaboration 🚨 Excited to launch LMNA-331 with Maastricht University — a major step forward in LMNA-related cardiomyopathy research. 🔬 Learn more: 👉 lmnacardiac.org/lmna-331-resea… #LMNA331 #LMNAcardiac #Cardiomyopathy #RareDisease #ResearchCollab

⏰ Last chance to register! Join leading experts to learn about LMNA-related cardiomyopathy. 🗓️ Don’t miss this free webinar! 🔗 lmnacardiac.org/understanding-… #LMNA #Cardiomyopathy #RareDisease #HeartHealth

🎥 Missed our webinar this week? The recording is now live! Thank you to HHIF for partnering with us on this important session about LMNA-related cardiac conditions. 👉 Watch here: youtu.be/Yax2QMl95dQ #LMNAcardiac #Webinar #RareDisease #CardiacCare #HHIF

Big news: We’re proud to support the launch of the Center for Pediatric CRISPR Cures at UC San Francisco and UC Berkeley which will bring personalized CRISPR cures to children with rare genetic diseases. 🔗 chanzuckerberg.com/newsroom/cente…

🫀 𝐈𝐧𝐟𝐨𝐫𝐦𝐚𝐭𝐢𝐨𝐧: 𝐋𝐌𝐍𝐀 𝐚𝐧𝐝 𝐋𝐌𝐍𝐀 𝐂𝐚𝐫𝐝𝐢𝐚𝐜 𝐃𝐢𝐬𝐞𝐚𝐬𝐞𝐬 (𝐕𝐢𝐝𝐞𝐨) This is part 1 of a 6-part series on LMNA-related cardiac diseases and the impact of LMNA gene mutations on heart health. 🎥 Watch & share to raise awareness! #LMNA #HeartDisease

📣 We need your help! 💙 Download our flyer & spread the word about LMNA-related heart disease: ✅ Share online ✅ Hang in clinics & waiting rooms ✅ Send to your network Will you help us grow? 🌍 👉 lmnacardiac.org/help-us-raise-… #LMNA #RareDisease #HeartHealth

Please spread the word about this foundation dedicated to dilated cardiomyopathy caused by mutations in the LMNA gene. It helps connect patients and provide them with resources and connections to clinicians and researchers.

You can now get genetically RETESTED for free! We are, as a GCAC partner, collaborating with a genetic testing company to provide FREE testing. 👉 geneticcardiomyopathy.org/testing/get-te… #genetictesting #lmna #dcm #gcac #lmnacardiac #testing

Thank You, Team Action for LMNA! 🌟 Your dedication and teamwork at the 4 Days Marches raised over €20,000 for LMNA cardiac disease research! 💛 Karen, Bernard & team — you’ve inspired us all and brought hope to our community. 🙌 #ActionForLMNA #LMNAcardiac #4DaysMarches

We’re proud to be featured in this edition of the ERN GUARD-Heart newsletter with LMNAcardiac.org! 💙 Read the full article 👇 #ernguardheart #LMNAcardiac #patientadvocacy #raredisease #cardiology

Generative AI is the new lab assistant in longevity research. What once would take 150 years can be done in a month and for one billionth the cost

𝐇𝐞𝐥𝐩 𝐬𝐩𝐫𝐞𝐚𝐝 𝐭𝐡𝐞 𝐰𝐨𝐫𝐝 𝐚𝐛𝐨𝐮𝐭 𝐋𝐌𝐍𝐀 𝐡𝐞𝐚𝐫𝐭 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 📄 Download the flyer 🖨️ Print & hang it during your next hospital visit or 📧 email it to your medical team. 💙 Ask your doctor or clinic if you can post it in their office or waitingroom.