Leah (@leahedscn2a) 's Twitter Profile
Leah

@leahedscn2a

Founder, Executive Director and Former President of the FamilieSCN2A Foundation. Mom and rare disease advocate of epilepsy and autism, SCN2A-related disorders.

ID: 1009192591609516033

linkhttp://scn2a.org calendar_today19-06-2018 21:53:58

468 Tweet

959 Followers

1,1K Following

FamilieSCN2A (@familiescn2a) 's Twitter Profile Photo

#SCN2A Fact of the Day Knowledge is power, & sharing these insights, we can create a more informed & supportive community. Read, learn, & share because awareness is the first step towards understanding & change #SCN2ADay24 #SCN2AAwareness #GlobalAdvocacy #cureSCN2A #HopeForACure

#SCN2A Fact of the Day
Knowledge is power, & sharing these insights, we can create a more informed & supportive community. Read, learn, & share  because awareness is the first step towards understanding & change
#SCN2ADay24 #SCN2AAwareness #GlobalAdvocacy #cureSCN2A #HopeForACure
FamilieSCN2A (@familiescn2a) 's Twitter Profile Photo

#SCN2A Awareness Day countdown! Today’s beautiful advocate is Emery from Dubai. You can help us in this global movement by liking, commenting, and sharing our posts. #SCN2AAwareness #GlobalAdvocacy #HopeForACure #SCN2ADay24 #cureSCN2A

FamilieSCN2A (@familiescn2a) 's Twitter Profile Photo

Are you ready?? International SCN2A Awareness Day is on February 24th! We need your help to tell the world why they should care about SCN2A! Order your gear now to ensure it arrives in time. shop.scn2a.org/collections/st…

Are you ready??

International SCN2A Awareness Day is on February 24th! We need your help to tell the world why they should care about SCN2A!

Order your gear now to ensure it arrives in time. 
shop.scn2a.org/collections/st…
FamilieSCN2A (@familiescn2a) 's Twitter Profile Photo

#SCN2A Awareness Day countdown! Today’s SCN2A Warrior is Ali from India. You can help us in this global movement by liking, commenting, and sharing our posts. #SCN2AAwareness #GlobalAdvocacy #HopeForACure #SCN2ADay24 #cureSCN2A

Leah (@leahedscn2a) 's Twitter Profile Photo

$20K MATCH ANNOUNCED! Help us help more families with any size gift that is meaningful to you. This campaign fuels our direct patient and family support programs. #SCN2A Annual Campaign secure.qgiv.com/event/scn2a-an…

Leah (@leahedscn2a) 's Twitter Profile Photo

It’s so cool to know our #SCN2A kids participation in this study had such a huge impact for the entire #autism community!

Leah (@leahedscn2a) 's Twitter Profile Photo

Looking forward to speaking on Research Readiness in Rare Disease at the ASGCT conference next week. #SCN2A #RareAsOne Who will I see there?

Looking forward to speaking on Research Readiness in Rare Disease at the <a href="/ASGCTherapy/">ASGCT</a> conference next week. #SCN2A #RareAsOne 
Who will I see there?
Leah (@leahedscn2a) 's Twitter Profile Photo

Please consider helping us to continue to fund amazing research to #cureSCN2A. Even a small gift would mean a lot to me and to FamilieSCN2A charity.pledgeit.org/f/71UKiEvDHM

Leah (@leahedscn2a) 's Twitter Profile Photo

Help us by nominating a professional who has contributed to the #SCN2A field while exemplifying one or more of the Foundation’s core values!