Our publication on Indian physicians’ attitudes and practice in menopause management. Do check the article and watch the video on links.lww.com/MENO/B17 for insights on the paper. Menopause Journal Dr Tejal Lathia Dr Chitra Selvan Shraddha Namjoshi @mahatichittem Lauren Kelada PhD لورين كيلادا

Are you an Aus health professional/stakeholder involved with young people affected by cancer? We want to hear your voice and your priorities relating to #digitalhealth and #physicalactivity for #childhoodcancer. Read the study information sheet here: unsw.au1.qualtrics.com/jfe/form/SV_6x…

⭐NEW PUBLICATION📑: Acceptability and feasibility of an online information linker service for caregivers who have a child with genetic epilepsy: a mixed-method pilot study protocol. See video below for a quick overview 🔊bmjopen.bmj.com/content/12/10/… dx.doi.org/10.1136/bmjope…

Spread the word! We are hiring at the Behavioural Sciences Unit, UNSW Sydney 💬 Join our interdisciplinary team + contribute to vital #research on #AYAcancer, #PrecisionMedicine, transition for children with #chronicillness, & vision loss 💪🏻 Job ad 👉🏻external-careers.jobs.unsw.edu.au/cw/en/job/5142…

🤩NEW JOB OPPORTUNITY ⬇️ Looking for a senior program officer keen to improve health care for people with intellectual disability as part of our inclusive research team. Please share with your networks. Email me any questions! [email protected] external-careers.jobs.unsw.edu.au/cw/en/job/5144…

NEW PAPER led by Jenny Davies (PhD Psychology) Socio-cultural norms influence dads' experiences of childhood cancer e.g. need to 'be strong': "Go cry in the shower, just don't let it out in front of your family". We discuss the implications for fathers' mental health: journals.sagepub.com/doi/10.1177/10…

It is #rarediseaseday2023. With >7000 rare diseases health professionals can struggle knowing how to best support their patients. ⬇️Check out our NEW free online clinician resources highlighting point-of-care tools and effective partnerships rarevoices.org.au/rarest-project/

Eye-opening talk by Gail Hilton & Leigh Donovan PhD at Sydney Children’s Hospital Network Paediatric Palliative Care Symposium 💪🏻 Shows the power of words + labels to identify with - like #ChildhoodDementia - to “make the rare, a bit less rare” Childhood Dementia Initiative Child UnLimited #PedPC

Stoked to be working with Genepath Bonny Parkinson Dr Carolyn Mazariego-Jones Claire Wakefield PhD 🎗️ Lauren Kelada PhD لورين كيلادا Brittany McGill, PhD Rare Voices Australia and many more on our $2.9m MRFF CTA to transform newborn screening across Australia! newsroom.unsw.edu.au/news/health/un…

So so proud of my brother participating in the Lagunta Dance during #DreamtimeAtTheG Such a special experience 🖤💛❤️ #AlwaysWasAlwaysWillBe

Urgent issue in Australia to gain access to #Fenfluramine for Dravet syndrome to save lives and improve outcomes. Already available in Europe and the US for some time

Check out this poster by Elijah Tyedmer (PhD candidate) presented at UNSW Cancer Symposium today🗒️ Interviews with HCPs informed the design of Pro-Cure 💬 It will be a vital tool to streamline the application process for compassionate-use cancer therapies in childhood cancer 💊

Claire Wakefield PhD 🎗️ radiating passion for Minderoo Foundation projects 👏 Frightening 25% of global cervical cancer burden is in Western Pacific 🌎 This will change with this HPV management program 🙌🏻 A reminder of how lucky we are to have access to healthcare screening in Australia 🏥🔬

PhD opportunity UNSW! Support families of children with severe epilepsies in Australia -Location: Sydney or Melbourne -Employment: 3 years full-time -Scholarship: AUD$35,000 for the first year Find out more👉unsw.edu.au/research/hdr/o… Child UnLimited Claire Wakefield PhD 🎗️ Prof Ingrid Scheffer

NEW PAPER! Can support from friends help mothers with breast cancer to maintain positive parenting practices? link.springer.com/article/10.100… #positivepsychology Springer Nature International Society of Behavioral Medicine International Journal of Behavioral Medicine

🆕PAPER! Data from GenE Compass w/ 72 parents of a child w/ a DEE showed: ⭐parents' common unmet needs were re: doing enjoyable activities & self-care ⭐parents w/ higher social care-related QoL may perceive their child's illness as less threatening doi.org/10.1111/dmcn.1…

I am breaking a little twitter hiatus with some exciting news to share 🚨The psychosocial impact of childhood dementia on children and their parents: a systematic review 🚨 has been published OrphanetJournal at BMC ! Hope you enjoy reading 👉 rdcu.be/dlBNp Key points (🧵):

Kids can get dementia too. So proud to share this study, led by Suzanne Nevin, PhD Claire Wakefield PhD 🎗️ in partnership with Childhood Dementia Initiative just in time for Childhood Dementia Day #childhooddementia #awareness #advocacy link.springer.com/epdf/10.1186/s…