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#EndALS Senator John Cornyn @JoaquinCastroTX Senator Ted Cruz #KSAT

#EndALS Senator John Cornyn @JoaquinCastroTX Senator Ted Cruz #KSAT

We asking all the data for #NurOwn be considered for always fatal #ALS Senator John Cornyn @JoaquinCastroTX Senator Ted Cruz Leigh Waldman @KSATnews

I have a nurse who comes to place my Radicava needle twice a month, her first #ALS patient was a #NavySEAL help #TXVets get a chance to try #NurOwn Senator John Cornyn @JoaquinCastroTX Senator Ted Cruz Leigh Waldman @KSATnews

I want to keep watching the #SanAntonioSpurs and the #HoustonTexans help me do so by signing the petition to get #NurOwn a hearing for #ALS from the #FDA Senator John Cornyn @JoaquinCastroTX Senator Ted Cruz Leigh Waldman @KSATnews

pALS youtu.be/wFN8opYJCCo via YouTube

My #Akitas take care of me, I dream of being able to pet them. Can you help me by signing the petition please? I would like the chance to try #NurOwn Senator John Cornyn @JoaquinCastroTX Senator Ted Cruz @KSATnews Leigh Waldman

I have heard several stories of how #NurOwnWorks, we the #ALSCommunity would like the chance to try it, please help us by signing the #petition Senator John Cornyn @JoaquinCastroTX Senator Ted Cruz @KSATnews Leigh Waldman

Too many #families have #lovedones who are #DyingWaiting for a chance to try #NurOwn for treatment of #ALS help us #EndALS please Senator John Cornyn @JoaquinCastroTX Senator Ted Cruz @KSATnews Leigh Waldman

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Thought I would share some great news with you Leigh Waldman

Please sign 🔱 #ALSWarrior 🔱 #IAmALS #ALSAwarenes #ALSsucks #ALS #AmyotrophicLateralSclerosis #MotorNeuronDisease #MND #ItMattersThatYouDontJustGiveUp #WhatDoWeSayToTheGodOfDeathNotToday 🧜🏻‍♀️ #LahainaLaura #SanAntonio #210 #SAT #SATX #SanAntonioTexas #TX #Texas #LoneStarState ⭐

Today is the third anniversary of me receiving the worst news of my life : "You have #ALS"; yet I choose to be grateful to still be here, grateful for your love and support, grateful for my awesome sleeping partners. 🤣✨🤍✨ #ALSWarrior #ALSAwareness #ALSCommunity #ALSsucks

Day three of #Relyvrio thank you again Synapticure Relyvrio has such a bad taste Amylyx sent Listerine strips in the welcome packet, I am like SteveO with things that taste bad, so I have never been happier to have a feeding tube!

We asking the FDA to use the same regulatory flexiblity it does for cancer. Senator John Cornyn Senator Ted Cruz @JoaquinCastroTX @KSATnews Leigh Waldman 🤍

I stand on the shoulders of giants. Sandra and Brian are my heros, I am can only dream of changing the world the way they have. Leigh Waldman 🤍

Look who I found! Just some @Synapticure folk hanging out! We should have taken a picture before Eric Anderson MD PhD MBA FAAN left, Dr. Faber!! 😉 American Academy of Neurology #AAN2023 #ALSAwareness ✨❤ Laura Triplett ❤✨ #LauraTriplett #Parkinsons #LetsTalkAboutHD #Huntingtonsdisease #AANAM

Breaking news: The FDA has approved Tofersen for SOD1 ALS! U.S. FDA thank you for living up to your promise of regulatory flexibility for ALS. ALS community: YOU made this happen with your relentless advocacy. Remember that. Stay tuned for updates on access to this treatment!

This is why my #Synapticure neurologist is a total #rockstar #ALS #AmyotrophicLateralSclerosis