🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

⏰ Final Call To Register for the #WalkForLGS in #Virginia! ⏰ 📅 Sunday, April 27th, 2025 at 10:30am 📍 Douglass Community Center Pavilion – Leesburg, VA 👉 Register now at ow.ly/9yzY50VyQju #Leesburg #Epilepsy #TogetherForACure

Tad and his family have spent years advocating for inclusion, opportunity, and understanding. Their journey is a powerful reminder that everyone deserves to be seen, heard, and included, regardless of ability. 🔗 Watch the full video of Tad's story at youtu.be/KIxk_hUrJnI

Check out the latest episode of Talk About It! with Addie Decter, who had #LennoxGastautSyndrome growing up. youtu.be/N-ffpds1QhQ?si…

Savannah Salazar Virtual Celebration of Life. The Celebration of Savannah's Life will begin at 10:00 am PDT. We will live stream the service and will update with a link once available. Please join us if you would like. In lieu of flowers, please consider a donation to the

The LGS Research Meeting of the Minds is July 21-23 in Philadelphia. This #research conference pushes the conversation beyond only treating the symptom of seizures, but also finding treatments. 🔗 Learn more and view the agenda at ow.ly/1FjX50VFwFL

Did you know Lennox-Gastaut Syndrome (LGS) can take years to diagnose, delaying critical treatments? To improve the care of people with LGS, Anthony Fine, MD of the Mayo Clinic and Juliet Knowles, MD, PhD Juliet Knowles of the Stanford University SOM, seek to establish expert

The Savannah Raine Salazar Memorial Research Fund honors her life—and the lives of all those we’ve lost to LGS—by fueling critical research and bringing hope to families still fighting. Join us in honoring their legacy by supporting the fund today. 💜lgsfoundation.org/savannah-forev…

All funds raised during the 10th Annual #WalkForLGS will support a groundbreaking Consensus Opinion Project—uniting leading experts from around the world to establish formal treatment recommendations and a standard of care for #LennoxGastautSyndrome. 🔗givegab.com/campaigns/2025…

🌟Reminder to SHARE your walk pictures and use #WalkForLGS! 🌟 We want to see all your smiling faces and all the fun you are having as you Walk 'n' Wheel for #LennoxGastautSyndrome today!

You are making history as you #WalkForLGS at the Walk ‘n’ Wheel for LGS Research! 💜 We are putting the power of patient families front and center. We are the experts in what it’s like to live with LGS—and your participation fuels the research that truly matters most to us.

🌟 It's Not Too Late to Get Involved! 🌟 Join the action by: ✔️Getting out and walking ✔️Joining the conversation on social media ✔️Giving to support research 🔗 lgsfoundation.org/walk-n-wheel-f… 🔗 #WalkForLGS #WalkForResearch #RareDisease #LennoxGastautSyndrome

🌟 The 10th Annual Walk ‘n’ Wheel for LGS Research was INCREDIBLE! 🌟 Thank you to everyone who joined us—whether you walked, rolled, or cheered us on virtually—you made this milestone year one to remember! 🔗 lgsfoundation.org/walk-n-wheel-f… 🔗 ow.ly/INGj50VHqYb

Celebration of Savannah's Life 10:00 am PDT this Saturday. We will live stream and post link here the day of: youtube.com/user/lgsfounda… To share your favorite photos/videos of Savannah: app.guestsnap.com/events/xkgkx6y… In lieu of flowers, pls consider a donation. secure.everyaction.com/REkdeZadFky-4c…

🚨 New Publication Alert 🚨 "Diagnosing Lennox-Gastaut Syndrome in an Adult and Its Direct Impact in Epilepsy Care" highlights the critical importance of recognizing LGS even later in life to guide more effective treatment strategies. 📖 Read more: onlinelibrary.wiley.com/doi/epdf/10.16…

The Celebration of Life for Savannah Salazar will be held Saturday, May 3rd, at 10:00am PT and will be live-streamed so the community can attend virtually. Subscribe to our YouTube channel and you will get an alert when the livestream starts on Saturday. lgsfoundation.org/savannah-forev…

The Chung family was looking for a solution to help support their son’s physical activity. Thanks to our Elevate Patient Assistance Program, they were able to receive Q-Pads — a fun tool that encourages movement and exercise. Learn more: ow.ly/kt0L50PE5Yf

The LGS Foundation is dedicated to providing a comprehensive LGS Learning and Resource Center for all! Safety is a constant concern for those with LGS. Children and adults with LGS have frequent seizures and are at high risk of injury. 👉 Learn more: lgsfoundation.org/seizure-safety

2025 Savannah Salazar Celebration of Life Video youtu.be/89VrfJoYmwk?si… via YouTube

Pediatric neurologist Dr. Shafali Jeste will explain neurodevelopmental disorders: what they are, how they’re diagnosed, how they can overlap with epilepsy, and how the correct diagnosis can help unlock proper supports and services for your child. us02web.zoom.us/meeting/regist…

🚨 New Publication Alert 🚨 "Neuromodulation Strategies in Lennox‐Gastaut Syndrome: Practical Clinical Guidance from the Pediatric Epilepsy Research Consortium" offers essential insights into using VNS, DBS, and RNS to manage the challenges of LGS. 📖 sciencedirect.com/science/articl…