Kendra Gottsleben (@kegottsleben) 's Twitter Profile
Kendra Gottsleben

@kegottsleben

Disability and rare disease advocate. Executive director of @RareByDesign. Author and fashion enthusiast committed to representation and inclusion.

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linkhttp://kendragottsleben.com calendar_today05-05-2010 04:38:07

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Kendra Gottsleben (@kegottsleben) 's Twitter Profile Photo

Have you gotten your tickets for The Film Festival? We are so excited to be hosting our #TheFilmFestival at the iconic Sioux Falls State Theatre this September 19! Better snag your tickets before they are all sold out. Tickets here: eventbrite.com/e/rare-by-desi… See you there!

RareByDesign (@rarebydesign) 's Twitter Profile Photo

“Embracing the 'nothing about us without us' principle ensures that #marketing campaigns resonate genuinely with disabled consumers (and non-disabled audiences too), unlocking a market worth £274 billion and fostering brand loyalty." Forbes #Disability forbes.com/sites/caroline…

Kendra Gottsleben (@kegottsleben) 's Twitter Profile Photo

Join Center4Disabilities for the upcoming South Dakota #Disability Cultural Responsiveness ECHO Series! I'm joining my coworker in presenting on 8/21. Register today! Register here: iecho.org/public/program…

Kendra Gottsleben (@kegottsleben) 's Twitter Profile Photo

This is why I work so hard at showing the world what #PWDs and #RareDiseases have to offer the world. Shane's words are sadly real and so many people need to think about them when they say such cruelness. We Matter! My Friends Matter! I Matter! Read here: facebook.com/photo?fbid=102…

Kendra Gottsleben (@kegottsleben) 's Twitter Profile Photo

Four years ago today, I had #OpenHeart surgery at M Health Fairview Pediatrics & knew there wasn’t a guarantee when one heads into an operating room that all would be successful. I knew all I could do was trust in God’s plan & believe that my medical team was as... instagram.com/p/C-nHXUIugNq/

Kendra Gottsleben (@kegottsleben) 's Twitter Profile Photo

Join me at Global Genes' #WeekInRARE in Kansas City, MO! I'm thrilled to share I'll be speaking on 3 session panels: Careers for RARE Adults, Living with Visible and Invisible Disabilities - and How to Educate Others, and Disability and Access. This is... instagram.com/p/C-5VsexMRB8/

Join me at <a href="/GlobalGenes/">Global Genes</a>' #WeekInRARE in Kansas City, MO! I'm thrilled to share I'll be speaking on 3 session panels: Careers for RARE Adults, Living with  Visible and Invisible Disabilities - and How to Educate Others, and Disability and Access. This is... instagram.com/p/C-5VsexMRB8/
Michelle Obama (@michelleobama) 's Twitter Profile Photo

I was touched to see Gus Walz’s joy when his dad Tim Walz took the stage last night. Thankful for you showing us all what real love looks like, Gus. Let’s be a nation that embraces this kind of warmth and vulnerability, instead of making fun or mocking it. We could all use some

RareByDesign (@rarebydesign) 's Twitter Profile Photo

Our founder is looking forward to attending Global Genes' Week in RARE this September! Kendra Gottsleben would love to see you all there! Register here: go.globalgenes.org/4bAyod5 #WeekInRARE #RARESummit #RAREHealthEquity #GGSummit #GlobalGenes

Our founder is looking forward to attending <a href="/GlobalGenes/">Global Genes</a>' Week in RARE this September! <a href="/Kegottsleben/">Kendra Gottsleben</a>  would love to see you all there! Register here: go.globalgenes.org/4bAyod5
#WeekInRARE #RARESummit #RAREHealthEquity #GGSummit #GlobalGenes
RareByDesign (@rarebydesign) 's Twitter Profile Photo

Our founder was reached out to yesterday by Sioux Falls Simplified after a local 12 year old was excluded from joining her peers on stage to perform with Foreigner. Inclusion for all still has a long way to go! #InclusionIsAlwaysIn #InclusionMatters sfsimplified.com/how-a-12-year-…

Kendra Gottsleben (@kegottsleben) 's Twitter Profile Photo

Really feeling this song today! #MercyMe "I'm gonna run No, I'm gonna fly I'm gonna know what it means to live and not just be alive The world's gonna hear 'cause I'm gonna shout And I will be dancing when circumstances drown the music out Say I won't" youtu.be/ksqH6OHrkYs?si…