2️⃣2️⃣7️⃣1️⃣ participants to date! Thx for ur contribution 🇬🇧 43% 🇦🇺 22% 🇺🇸 7% 🇨🇦 4% 🇫🇷 4% 🇩🇪 2%..Julian Elliott Jonathan Craig Sally Crowe COMET Cochrane Australia Andrea Matus G Giovanni FM Strippoli @DocWoc71 @allisontong1 ArmandoTeixeiraPinto Andy Conway Morris 🇬🇧🇪🇺🇺🇦 Lilia Cervantes covid-19-cos.org/get-involved/

A Core Outcome Set for Peritoneal Dialysis: the SONG-PD Consensus Workshop buff.ly/2XoL6sG Karine Manera Jonathan Craig Talia Gutman Yeoungjee Cho Angela Wang @EdwinaB23513542 Rajnish Mehrotra Roberto Pecoits-Filho Jeff Perl Martin Wilkie @allisontong1 SONG

Core Outcomes for #ADPKD buff.ly/2C42DxO Yeoungjee Cho @allisontong1 Jonathan Craig Kevin J. Fowler Principal The Voice of the Patient Helen Coolican Tess Harris ((in need of another kidney sadly)) Talia Gutman Andrea Viecelli David W Johnson Eric Au Ragada El-Damanawi charlottelogeman Angela Ju Karine Manera Michel Chonchol Sautenet Bénédicte SONG

Fantastic to see such strong interest in codesign of healthcare with consumers! Respect, partnership and optimism are key - Coralie Wales NSW Health Western Sydney Health University of Sydney Ellie Hannan @allisontong1 Amanda Dominello Sydney Health Partners @ChandanaGuha Cancer Voices NSW

I was sceptical when I heard my medical practice was getting a social prescriber but having worked with her for a few months, she has made a real difference. She has helped guide many patients through the health, social care and benefits systems and improved their quality of life

.Karine Manera #phd on SONG PD Jonathan Craig @allisontong1 David W Johnson Roberto Pecoits-Filho Martin Wilkie ArmandoTeixeiraPinto Ayano Kelly Andrea Matus G Anita van Zwieten Angela Wang

.SONG PD core outcomes ... now to implement!! Karine Manera Martin Wilkie David W Johnson Jonathan Craig nichole jefferson Nicole Evangelidis @ChandanaGuha Roberto Pecoits-Filho Angela Wang @EdwinaB23513542 Rajnish Mehrotra @allisontong1 Ayano Kelly

Received my first #grantrejection today. Thought I was prepared. It stung. Realising that resilience is critical for academia. Would love to know what others do when you get a rejection. Do you call a loved one? Go for a walk? Buy a puppy? #VulnerableAcademic Academic Chatter™

A new systematic review in NDT reports on the characteristics, content, and psychometric properties of patient reported outcome measures for life participation used in #PeritonealDialysis research. bit.ly/2WVpxyr

🆕Scope and heterogeneity of outcomes reported in randomized trials in patients receiving peritoneal dialysis 📖bit.ly/2X8qymH Karine Manera University of Sydney @EdwinaB23513542 @allisontong1 Martin Wilkie Jonathan Craig Roberto Pecoits-Filho Jeff Perl Rajnish Mehrotra Angela Wang

Soooo excited that we have just organised to send the #NormBourkebox to another PD training hospital. Will update soon #PD #ckd Int. Soc. for Peritoneal Dialysis Martin Wilkie Karine Manera SONG @allisontong1 Dream big❤️❤️❤️

#OnlineFirst Alert - #SystematicReview on technique survival in #PeritonealDialysis #openaccess ✍️: Emma elphick Mark Lambie 🔗: journals.sagepub.com/doi/full/10.11… 🎯: Substantial heterogeneity in definitions. Standardized measures for reporting #techniquesurvival in PD are needed.

Did you have genetic testing when planning to start your family or during pregnancy? Researchers UTS_GeneticCounselling are interested in hearing from individuals or couples who have had reproductive genetic carrier screening. Follow the link to register your interest tinyurl.com/r9cnf4xt

POP QUIZ: How many of your patients take their meds correctly? Listen to our latest PODCAST with ARA Early Career Group Dr Ayano Kelly to find out..& it's a smaller number than you might think. player.whooshkaa.com/episode?id=907… #rheumatology South Western Sydney Local Health District

Exercising my right as a patient: Reflections on physical activity & exercise in #PeritonealDialysis -- an editorial by Loretta Lee, Nicki Scholes, Karine Manera on the importance of exercise from the perspectives of persons living with kidney disease ➡️ bit.ly/3m4aBuy

New study IJBNPA found that the detrimental associations of poor #physical activity and #sedentary behavior with #mortality were consistently amplified by #social isolation. #Australia

"There is a scarcity of information about the impacts of CKD and treatments on sexuality and libido, and how to deal with the feelings of shame, vulnerability and insecurity." This Perspective discusses the need for better sexual health management in CKD bit.ly/CJASN0140

Read our new scientific paper on the prevalence of episodic and chronic #loneliness and #socialisolation in Australia here now. nature.com/articles/s4159… Karine Manera Katherine Owen PH Phongsavan

"We need to start a conversation about the effect of CKD on our sex lives and sexuality." This Perspective calls for more awareness & better management of sexual health in people with CKD bit.ly/CJASN0140 Karine Manera Nicki Scholes Andrea Viecelli Simon Carter Amanda Sluiter

BEAT-CKD patient engagement officer Amanda Sluiter delivered a poster presentation during Hospital Week at Westmead. The focus of her poster was on the profound impact of loneliness and social isolation experienced by patients with #CKD and their caregivers. Well done, Amanda!!!