Kate Betteridge (@k_betteridge) 's Twitter Profile
Kate Betteridge

@k_betteridge

Living with rheumatoid arthritis. Passionate about effective patient engagement through patient information, social media, communication and user involvement

ID: 425087973

calendar_today30-11-2011 14:57:45

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Vincent Stops (@vincentstops) 's Twitter Profile Photo

How many cases of reckless & dangerous cycling can you spot at this bus stop, 100 yards from Parliament? This is happening daily & results in real injuries. TfL says the design is compliant, Government & Heidi Alexander MP pretend it’s an accessible bus stop:

Neil Betteridge (@neil_betteridge) 's Twitter Profile Photo

CYPLER’s conference in Nicosia has gathered patient advocates & HCPs to consider remission in rheumatic disease. Honoured to share an update on GAfPA’s work on the Value of Pursuing Remission, which is often possible but too rarely pursued. Global Alliance for Patient Access

CYPLER’s conference in Nicosia has gathered patient advocates &amp; HCPs to consider remission in rheumatic disease. Honoured to share an update on GAfPA’s work on the Value of Pursuing Remission, which is often possible but too rarely pursued.  <a href="/globalafpa/">Global Alliance for Patient Access</a>
Global Alliance for Patient Access (@globalafpa) 's Twitter Profile Photo

GAfPA's Neil Betteridge was at CYLPER’s conference in Nicosia today to share an update on the coalition's work on the Value of Pursuing Remission in chronic inflammatory conditions, where remission is often possible but too rarely pursued. The event brought together patient

GAfPA's <a href="/Neil_Betteridge/">Neil Betteridge</a> was at CYLPER’s conference in Nicosia today to share an update on the coalition's work on the Value of Pursuing Remission in chronic inflammatory conditions, where remission is often possible but too rarely pursued. The event brought together patient
Global Alliance for Patient Access (@globalafpa) 's Twitter Profile Photo

The worldwide prevalence of #SpondyloArthritis is less well known. But over 100 million people, or roughly 0.5% to 2% of the world’s population, have some form of spondyloarthritis. Learn more: bit.ly/3FST6dF

The worldwide prevalence of #SpondyloArthritis is less well known. But over 100 million people, or roughly 0.5% to 2% of the world’s population, have some form of spondyloarthritis.

Learn more: bit.ly/3FST6dF
Global Remission Coalition (@globalremission) 's Twitter Profile Photo

Millions worldwide live with rheumatoid inflammatory rheumatic conditions—many without adequate care. Prioritizing the pursuit of #remission promises significant benefits for patients & healthcare systems.#ThePursuitIsOn Read more in GRC's new Fast Facts: bit.ly/3H2uOyp

Millions worldwide live with rheumatoid inflammatory rheumatic conditions—many without adequate care. Prioritizing the pursuit of #remission promises significant benefits for patients &amp; healthcare systems.#ThePursuitIsOn

Read more in GRC's new Fast Facts: bit.ly/3H2uOyp
Global Alliance for Patient Access (@globalafpa) 's Twitter Profile Photo

#DYK? Remission is not a medical term, it means getting your life back! Yesterday, GAfPA and the Global Alliance for Musculoskeletal Health hosted a Value of Remission Roundtable alongside the 78th World Health Assembly. Patient advocates hailed to Geneva from across the globe

#DYK? Remission is not a medical term, it means getting your life back!

Yesterday, GAfPA and the Global Alliance for Musculoskeletal Health hosted a Value of Remission Roundtable alongside the 78th World Health Assembly. Patient advocates hailed to Geneva from across the globe
Neil Betteridge (@neil_betteridge) 's Twitter Profile Photo

The greatest value from the pursuit of remission is the enhanced quality of life patients enjoy from the absence or disappearance of symptoms. But the pursuit also pays back. Less use of the health care system and greater capacity to work are just 2 examples. Do join in!

Neil Betteridge (@neil_betteridge) 's Twitter Profile Photo

Alongside the World Health Assembly in Geneva, people with experience of cardio kidney metabolic disease share insights, at an inspiring meeting hosted by Mended Hearts Europe and Global Alliance for Patient Access Enabling patients to take control is the shared goal. 👍 #CKMForum Global Patient Alliance for Kidney Health #WHA78

Alongside the World Health Assembly in Geneva, people with experience of cardio kidney metabolic disease share insights, at an inspiring meeting hosted by <a href="/mh_europe/">Mended Hearts Europe</a> and <a href="/globalafpa/">Global Alliance for Patient Access</a>
Enabling patients to take control is the shared goal. 👍  #CKMForum  <a href="/globalkidney/">Global Patient Alliance for Kidney Health</a>  #WHA78
Action On Disability (@aodisability) 's Twitter Profile Photo

Yesterday, we gathered at Westminster to join the Mass Lobby and speak out against proposed cuts to disability benefits. DLA and PIP are essential to independence, dignity and everyday life for millions of Disabled people. #NoBenefitCuts #DisabilityRights #DLA #PIP

Yesterday, we gathered at Westminster to join the Mass Lobby and speak out against proposed cuts to disability benefits. DLA and PIP are essential to independence, dignity and everyday life for millions of Disabled people.

#NoBenefitCuts #DisabilityRights #DLA #PIP
Global Remission Coalition (@globalremission) 's Twitter Profile Photo

Prevalence of inflammatory #rheumatic conditions will rise substantially. Prioritizing the pursuit of remission means patients can do more than manage their symptoms; they can get their lives back. Read GRC’s updated evidence glossary: bit.ly/3FLdr4U #EULAR2025

Prevalence of inflammatory #rheumatic conditions will rise substantially. Prioritizing the pursuit of remission means patients can do more than manage their symptoms; they can get their lives back.

Read GRC’s updated evidence glossary: bit.ly/3FLdr4U
#EULAR2025
Global Remission Coalition (@globalremission) 's Twitter Profile Photo

Around 1 in 3 people with rheumatoid arthritis stop working within 5 years of diagnosis. Pursuing #remission allows patients to get back to work, reduces medical expenditures & improves outcomes across the board.#EULAR2025 Read GRC’s Evidence Glossary: bit.ly/3FLdr4U

Around 1 in 3 people with rheumatoid arthritis stop working within 5 years of diagnosis. Pursuing #remission allows patients to get back to work, reduces medical expenditures &amp; improves outcomes across the board.#EULAR2025

Read GRC’s Evidence Glossary: bit.ly/3FLdr4U
Neil Betteridge (@neil_betteridge) 's Twitter Profile Photo

We need evidence based policy to ensure better lives for all. For people with inflammatory rheumatic conditions like #lupus #RA #PsA & #axSpA there’s good evidence as to the problems they face and the solutions that can help. So why don’t policymakers act on what works? Read more

Neil Betteridge (@neil_betteridge) 's Twitter Profile Photo

We’re not asking for the world. Just that people with a chronic inflammatory condition are supported to get the best possible outcome, ideally remission.

Kate Betteridge (@k_betteridge) 's Twitter Profile Photo

Clearly people living with hip conditions or hip pain won’t be well represented at this conference seeing as the local public transport hub isn’t accessible to disabled people or people with limited mobility. Come on British Hip Society , pls help to lobby TfL Access TfL

Neil Betteridge (@neil_betteridge) 's Twitter Profile Photo

The 2025 Agora Conference in Athens, endorsed by Global Alliance for Patient Access, is inviting rheumatic disease advocates to focus on Innovation, Empowerment & Holsitic Care. All key aspects of Global Remission Coalition as we seek policy change to enable more patients to pursue remission. #ThePursuitIsOn

The 2025 Agora Conference in Athens, endorsed by <a href="/globalafpa/">Global Alliance for Patient Access</a>, is inviting rheumatic disease advocates to focus on Innovation, Empowerment &amp; Holsitic Care. All key aspects of <a href="/globalremission/">Global Remission Coalition</a> as we seek policy change to enable more patients to pursue remission. #ThePursuitIsOn
Neil Betteridge (@neil_betteridge) 's Twitter Profile Photo

At the 2025 Agora conference in Athens, endorsed by Global Alliance for Patient Access, Valentini Konstantinidou RDN, MSc, PhD describes the mutual effects of obesity & inflammatory rheumatic diseases. The Mediterranean Diet now updated to include lifestyle. A key factor in pursuing #remission. Global Remission Coalition

At the 2025 Agora conference in Athens, endorsed by <a href="/globalafpa/">Global Alliance for Patient Access</a>, <a href="/valkonsta/">Valentini Konstantinidou RDN, MSc, PhD</a> describes the mutual effects of obesity &amp; inflammatory rheumatic diseases. The Mediterranean Diet now updated to include lifestyle. A key factor in pursuing #remission. <a href="/globalremission/">Global Remission Coalition</a>
Neil Betteridge (@neil_betteridge) 's Twitter Profile Photo

People with chronic inflammatory conditions like #RA need not accept second best treatment when they could be supported to pursue #Remission. At the Patient Empowerment World Congress in London I’m presenting Global Remission Coalition as a case study in empowerment #PatientEmpowerment25

People with chronic inflammatory conditions like #RA need not accept second best treatment when they could be supported to pursue #Remission.

At the Patient Empowerment World Congress in London I’m presenting <a href="/globalremission/">Global Remission Coalition</a> as a case study in empowerment #PatientEmpowerment25
Neil Betteridge (@neil_betteridge) 's Twitter Profile Photo

Inspiring! The Sjõgren Europe Conference has been bursting with passion & creative ideas to turn awareness into action. So pleased to contribute on behalf of Global Remission Coalition & Global Alliance for Patient Access by delivering a patient advocacy workshop with Marios Kouloumas Congratulations SE!👏

Neil Betteridge (@neil_betteridge) 's Twitter Profile Photo

Today is #WorldArthritisDay. Please do (at least) one thing to raise awareness of rheumatic and musculoskeletal diseases(RMDs). 🙏 At Global Remission Coalition we will be releasing new resources every day this week & supporting activities of our 61 members. #worldarthritisday2025

Today is #WorldArthritisDay. Please do (at least) one thing to raise awareness of rheumatic and musculoskeletal diseases(RMDs). 🙏 At <a href="/globalremission/">Global Remission Coalition</a> we will be releasing new resources every day this week &amp; supporting activities of our 61 members. #worldarthritisday2025
Back in Time West London (@oldlondonw14) 's Twitter Profile Photo

I’d be very grateful if you could all sign and share this petition - mobility issues affect so many people. We need Kensington Olympia Station to have a lift. Thank you! change.org/p/give-olympia…