Also excited for the opportunity to present with Katharine Press Callahan, MD, MSME and Becca Mueller on ‘Managing prognosis’ in genetics: Utility, Communication, and Imagination. Come check it out Thurs 10/27 at 9:45am! eppro02.ativ.me/appinfo.php?pa… #ASBH22

Remarkably, for two babies with the same complex problems the likelihood of genetic testing being done varies dramatically depending on which hospital is caring for them #NICU #genetictesting Katharine Press Callahan, MD, MSME bit.ly/3H6VbAZ

24 days ago I learned my daughter was dying in utero, and if untreated I risked preeclampsia and stroke. Termination is illegal in NC after 21 weeks, which I was, even when she had no hope of surviving and I was in danger. Because I had the means to leave, I’m ok and recovering.

Carrying Simone, for five months inside me and then for five minutes in my arms, was the greatest honor and joy of my life. I miss her unspeakably, but feel lucky to continue living for her.

Thank you all for your beautiful words and stories. Every one of them has made me cry. I am thinking especially of your children, who would have been 3 or 13 or 16 or 50 and 2 months, today and always. ❤️

thehastingscenter.org/centerreports/… Really proud to have worked on this with Naomi Scheinerman ! #PennELSIT32 UPenn Medical Ethics & Health Policy

Grateful to have participated in this important study led by Katharine Press Callahan, MD, MSME. The first study to identify and rank outcomes that are important to parents of children with BPD. #neotwitter Nicolas A. Bamat, MD MSCE Sara DeMauro The BPD Collaborative jpeds.com/article/S0022-…

#Undiagnosed patients may enroll in research in hopes of finding a diagnosis. However, our study suggests #ethical challenges related to diagnostic misconception may arise when the lines between research and clinical care blur. sciencedirect.com/science/articl…

With 10000 thanks to 10000 people

A study in JAMA Pediatrics by @dus10flan et al evaluates trends in antibiotic use in U.S. NICUs from 2009 to 2021 buff.ly/3S2aXTg #EBNEOalerts #neoEBM #neotwitter

Gabe’s book is out today. I first read it as a word doc before we were married, before we experienced the kind of grief that begins it. The book taught me about hope and humor and suffering and how to get through it. I can’t wait for the world to read it. npr.org/2023/11/12/121…

publications.aap.org/neoreviews/art…

How do you respond to surprise? publications.aap.org/pediatrics/art…

Why do some parents refuse genetic testing for their sick newborns? 1) Don't see how it will help their baby right away, and 2) Worry about getting scary news. Considering their perspectives can inform guidance on educating families bit.ly/4g8rPkA Katharine Press Callahan, MD, MSME #GIMO

What are "indirect costs"? youtube.com/watch?v=yxTDlF… Thanks for the very helpful video Steve Joffe

We are looking for help! If you would like to join my lab, or know anyone who might be, take a look: chop.wd5.myworkdayjobs.com/CHOPExternalCa…

Being human is hard sometimes. Rewarding when something positive comes from a tough experience: nejm.org/doi/full/10.10…