Members of #MIHRA Psychological Impact and th Rehab & Exercise Scientific Working Groups 🌟
Nicole Voet, Ingrid de Groot, Christopher Graham
Clarifying important ground in NMD clinical trials & practice, laying a map for future work in Patient-Reported OMs
acrobat.adobe.com/link/review?ur…

Doors are now open for the 2024 International Annual Patient Conference! Join TMA and the myositis community in Baltimore, MD September 6-8, 2024 for an unforgettable event.

myositis.org/myositis-libra…

Our study in @BrainComms 🔥
94 pts with #Mitochondrial #myopathy
Common features regardless of geno/phenotype:
1️⃣slow progression
2️⃣high morbidity&mortality⚠️
3️⃣main risk factor🫀

New 💊 urgently needed‼️
Timely diagnosis is 🗝️
👀 for complications

academic.oup.com/braincomms/art…

A fabulous conversation with Dr. Ami Shah from Johns Hopkins Department of Medicine about the #autoimmune #cancer connection. Listen in and learn all about scleroderma!

We treated 4 patients with refractory Lupus-associated pericarditis with Rilonacept. As in most cases of Lupus, CRP was negative. Yet, clinical response was outstanding pubmed.ncbi.nlm.nih.gov/38526001/ Congratulations to Andrea Fava #cardiacimmunology Johns Hopkins Cardiology Johns Hopkins Medicine

What it's like to be MIHRA
memb & work w beautiful peeps Pedro Machado
Julie J. Paik
Helene Alexanderson
Elie Naddaf
Latika
Didem Saygin, MD Myma Albayda, MD, RhMSUS
Antonia Valenzuela
youtu.be/3E1VBCcA76E

Community Joy effervescencing usual & challenging tasks 💕 ..

GCOM 2024 was filled with excellent sessions in all aspects of myositis. Great representation by Johns Hopkins Rheumatology Hopkins Myositis! Above all, it was wonderful to see old friends and colleagues and build new collaborations! Looking forward to Lisbon 2026!

Ditto! Fantastic meeting, excellent work presented, quality time spent with #myositis friends, old collaborations reinforced, new collaborations forged. Looking forward to #GCOM2026 in Lisbon!

Excellent session on a wide breadth of imaging tools in myositis chaired by MIHRA Vice-Chair Pedro Machado and member Myma Albayda, MD, RhMSUS. Talks from Marianne de Visser gave updates from the ENMC imaging group, ADoria on MRI, and C.Saris from Radboud on U/S in myositis.

Day 2 of GCOM! It was a special treat to Co-Chair a phenomenal session on the Challenges of Clinical Trials in Myositis with LisaChristopherStine. Much work needs to be done! Our amazing research coordinators who keep our studies running were also in attendance! Johns Hopkins Rheumatology

Brilliant and very informative presentation by MIHRA Board Member Elie Naddaf on IBM mimics and atypical presentations: clinical judgment informed by appropriate investigations is critical! The Myositis Association Myositis Support and Understanding (MSU) Myositis UK Cure IBM—Inclusion Body Myositis Dutch Myositis Network

MIHRA Mentorship Programme Lead Latika and MIHRA Vice-Chair Pedro Machado now presenting at #GCOM and dissecting the safety of #COVID vaccines in myositis/rheumatic diseases #vaccines -save-lives!

Dive into the world of myositis research with MIHRA! Discover the power of collaboration in tackling myositis-related disorders. Explore our newest publication in the #Myositis issue of Clinical Experimental Rheumatology: clinexprheumatol.org/abstract.asp?a…

💥 An absolute honor to be amongst the illustrious JACC Journals Editor-in-Chief’s Top Picks From 2023 for our article “Novel Imaging Approaches to Cardiac Manifestations of Systemic Inflammatory Diseases: JACC Scientific Statement”

pubmed.ncbi.nlm.nih.gov/37993205/

Hallelujah! Thanks to the brilliance of 🌟 Pedro Machado 🌟 MIHRA is on 🐦!!
MIHRA 🌿- a wonderful place for hearts and minds to 🐝
Julie J. Paik @[email protected] Latika Elie Naddaf

Congratulations Caoilfhionn Connolly on your publication in NEJM - 'Peeling and Plummeting'- very instructive clinical problem-solving case! Johns Hopkins Rheumatology Johns Hopkins Rheumatology Fellows

📣 Don't miss our #VEXAS article collection!

Featuring the latest research from Rheumatology and Rheumatology Advances in Practice, all articles in this collection are free to read until 31 March 👀

👉 bit.ly/3SueM2q

#RheumTwitter

Excited that the Annual Patient Conference will be in Baltimore this year where our very own Hopkins Myositis resides! LisaChristopherStine Myma Albayda, MD, RhMSUS Eleni Tiniakou and Chris Mecoli MD Johns Hopkins Rheumatology