If you’ve had/have a baby in NICU join the Humber Dads for a catch up and a coffee. The groups are run by Matthew, Rhys and Jon whose children have all spent time in Hull NICU. Any questions get in touch, or add Humber Dads on Facebook 👍🏻 Next group 4/12/23 @ 7pm

Delighted to share our study on “Experiences of music therapy in paediatric palliative care from multiple stakeholder perspectives: A systematic review and qualitative evidence synthesis” has been published in Palliative Medicine and available at doi.org/10.1177/026921…

Are you a parent of a baby or child who has died in the last five years after receiving care in #NICU and #PICU? UoYppcrg would like to hear about your experiences. Contact details below 👇

Are you a parent of a baby or child who has died in the last five years after receiving care in #NICU and #PICU? UoYppcrg would like to hear about your experiences. 📧 [email protected] 📞 07384239136

We are supporting research to improve end-of-life care for babies and their families. Researchers would like to hear from parents about the care their babies received on NICUs before they died. Take part ⬇️ 📧 [email protected] ☎️ 07384 239136 #BabyLoss

Beautifully written, researchers in this area can definitely relate / learn from this too

The first mention of #PalliativeCare can sound scary as people can think that it means treatment has not worked. However, palliative care is far more than just end-of-life care 💛 So, what exactly is it? Find out at: bit.ly/3UKhVNC #DyingMattersWeek #ResearchRoundup

We are recruiting! Interested in #paediatricpalliativecare? Come and work with us UoYppcrg as a Research Associate. Full time £36,024-£44,263, Fixed Term for 12 months. For more info contact me: [email protected]. Apply by 27th June 2024 jobs.york.ac.uk/vacancy/resear…

If you or someone you know fancies working with us at the Candlelighters Trust Supportive Care Research Centre at University of York Hull York Medical School a PhD looking at wellbeing interventions for families of children with cancer - chat with me! (Please share widely) findaphd.com/phds/project/i…

It was brilliant to be a part of this and fantastic to work truly collaboratively with parents, thank you to all involved #ppc #palliativecare

This is so beautifully written and a must read for all. Not just all who work in #ppc but all of us. Thank you for sharing Neve and your story Emily Tammam

Going back to school can be a daunting time when it comes to ARFID. Here's some ways that school could be a little easier for a child struggling with ARFID. Parents, if you have any advice on back to school with ARFID, comment below! #ARFID #ARFIDAwareness #ARFIDAwarenessUK

Delighted to share this - a real team effort: Evaluating PPI activities within a paediatric palliative care research centre: Route map to impactful and meaningful engagement: UoYppcrg Julia Hackett, Jo Taylor, Andrew Papworth , Gabriella Walker, Lorna Fraser journals.sagepub.com/doi/full/10.11…

Thought-provoking words from Elisabeth Kübler-Ross for this week's #GriefWords 💛

We're looking for someone to help us improve the development of interventions to support families with a child with cancer - could this be the PhD you're looking for? Dr Nicola O'Donnell Hull York Medical School findaphd.com/phds/project/i…

We're hoping families who've experienced haematopoetic stem cell (bone marrow) transplant, or had follow-up scans after treatment, or worried about infection or mucositis can come to Candlelighters Trust Sat 30th Nov - we're hosting researchers who need your input! (Travel covered)

This is a brilliant must see video highlighting what ARFID is and how we can support people living with this. Thank you ⁦ARFID Awareness UK⁩ #EDAW2025 #ARFID #ARFIDAwareness #EatingDisordersAwarenessWeek instagram.com/reel/DGgHiVLNn…

Each day this week, we'll be highlighting a type of eating disorder - today we're talking about ARFID. If you recognise these signs in yourself, or someone you love, contact our Helpline today 💜 #EatingDisordersAwarenessWeek #ARFID #EDAW2025 #AnyoneAnytime