Jett Foundation (@jettfoundation) 's Twitter Profile
Jett Foundation

@jettfoundation

Empowering families. Fighting Duchenne muscular dystrophy.

ID: 1707456762

linkhttp://jettfoundation.org calendar_today28-08-2013 14:47:48

2,2K Tweet

1,1K Followers

1,1K Following

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🐽 We Need YOU! 🐽 Looking for an incredible way to give back and make a real impact? Volunteer with Camp Promise and help create unforgettable experiences for teens and adults with neuromuscular disorders! 💞 🔗 jettfoundation.org/camp-promise/

🐽 We Need YOU! 🐽

Looking for an incredible way to give back and make a real impact? Volunteer with Camp Promise and help create unforgettable experiences for teens and adults with neuromuscular disorders! 💞

🔗 jettfoundation.org/camp-promise/
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A big thank you to Andreas Barth who was our guest speaker at yesterday's Community Webinar on cardiac devices for individuals living with Duchenne, Becker, or are female carriers. 🫀🗣 View a recording of the webinar by visiting youtube.com/watch?v=MJvfNO…

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Jett Foundation’s next Carrier Conversations session takes place this Thursday at 11am ET! 💜 We welcome new and returning female carriers to share advice, receive support, and learn from others in the community. 🔗 Register: jettfoundation.org/event/carrier-…

Jett Foundation’s next Carrier Conversations session takes place this Thursday at 11am ET! 💜 We welcome new and returning female carriers to share advice, receive support, and learn from others in the community.

🔗 Register: jettfoundation.org/event/carrier-…
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TONIGHT - Join fellow moms from the Duchenne community at Porch Nite, a virtual support group that offers assistance, a space to share your journey, and connections that last a lifetime. 🥰 Registration is free and available at jettfoundation.org/event/4-14-25-….

TONIGHT - Join fellow moms from the Duchenne community at Porch Nite, a virtual support group that offers assistance, a space to share your journey, and connections that last a lifetime. 🥰

Registration is free and available at jettfoundation.org/event/4-14-25-….
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Help us welcome Stephanie to our team of Community Ambassadors! ❤️🤝 Stephanie cares for her sons, Hayden and Steven, and daughter, Kyleigh. Both boys live with Duchenne and Stephanie and Kyleigh are female carriers. 📖 jettfoundation.org/community-amba…

Help us welcome Stephanie to our team of Community Ambassadors! ❤️🤝 Stephanie cares for her sons, Hayden and Steven, and daughter, Kyleigh. Both boys live with Duchenne and Stephanie and Kyleigh are female carriers.

📖 jettfoundation.org/community-amba…
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It’s time for another Community Webinar! 🩵🗣️ Hop on Zoom with us today at 1pm ET to hear from the team at Dyne Therapeutics who will speak on updates to the DELIVER trial of DYNE-251 in males with Duchenne mutations amenable to exon 51 skipping. 🔗 jettfoundation.org/event/clinical…

It’s time for another Community Webinar! 🩵🗣️ Hop on Zoom with us today at 1pm ET to hear from the team at Dyne Therapeutics who will speak on updates to the DELIVER trial of DYNE-251 in males with Duchenne mutations amenable to exon 51 skipping.

🔗 jettfoundation.org/event/clinical…
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Happening in just 1 hour… Carrier Conversations, Jett Foundation’s monthly virtual support group available to female carriers of Duchenne muscular dystrophy. 🔊💟 Join the conversation by registering at jettfoundation.org/event/carrier-….

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We are excited to welcome Avidity Biosciences on the first of May to speak on topline data from their EXPLORE44® clinical trial. 🔗 Check out more details and register to tune in: jettfoundation.org/event/communit…

We are excited to welcome Avidity Biosciences on the first of May to speak on topline data from their EXPLORE44® clinical trial.

🔗 Check out more details and register to tune in: jettfoundation.org/event/communit…
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🚨 Last Call! 🚨 Join us for a Family Workshop in Iowa, where families affected by Duchenne can connect with clinicians, researchers, and community members to learn about care, resources, and support. Register now to secure your spot: jettfoundation.org/family-worksho…

🚨 Last Call! 🚨

Join us for a Family Workshop in Iowa, where families affected by Duchenne can connect with clinicians, researchers, and community members to learn about care, resources, and support.

Register now to secure your spot: jettfoundation.org/family-worksho…
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Jett Foundation's Porch Nite on April 28, 2025–just one week away! Connect with caregivers in the Duchenne community through an evening of support, laughter, and shared experiences. ➡️ jettfoundation.org/event/4-28-25-…

Jett Foundation's Porch Nite on April 28, 2025–just one week away! Connect with caregivers in the Duchenne community through an evening of support, laughter, and shared experiences.

➡️ jettfoundation.org/event/4-28-25-…
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

Thank you to the team at Dyne Therapeutics for joining our Community Webinar Series last Thursday to present on updates to the DELIVER trial of DYNE-251 in males with Duchenne mutations amenable to exon 51 skipping. 🎥 youtube.com/watch?v=C8x48z…

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🌲 Take a break. Connect. Recharge. 🌙 Calling all Duchenne moms! 💛 Join us June 6–8 in beautiful Ellicottville, NY for an unforgettable Porch Nite weekend with Jett Foundation. ✨ Space is limited—save your spot today: jettfoundation.org/event/porch-ni…

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🏃‍♀️🚴‍♂️ Join Jett Foundation's National Challenge from June 1-8 and show your strength in the fight against Duchenne! Whether you walk, run, roll, or choose your own way to move, you can make a difference right from your hometown. jettfoundation.org/team-jett/nati…

🏃‍♀️🚴‍♂️ Join Jett Foundation's National Challenge from June 1-8 and show your strength in the fight against Duchenne! Whether you walk, run, roll, or choose your own way to move, you can make a difference right from your hometown.

jettfoundation.org/team-jett/nati…
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

Join us for a Community Webinar on May 1 as the team from Avidity Biosciences presents on topline data from their EXPLORE44® clinical trial. Register: jettfoundation.org/event/communit…

Jett Foundation (@jettfoundation) 's Twitter Profile Photo

🏃‍♀️The Emerald City’s hometown marathon series is on a beautiful course with rolling hills and scenic views of downtown Seattle. Head over with Team Jett this June to run or volunteer during the 5k/10k/half marathon weekend! Secure your bib: jettfoundation.org/team-jett/seat….

🏃‍♀️The Emerald City’s hometown marathon series is on a beautiful course with rolling hills and scenic views of downtown Seattle. Head over with Team Jett this June to run or volunteer during the 5k/10k/half marathon weekend!

Secure your bib: jettfoundation.org/team-jett/seat….
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

TONIGHT - All caregivers are welcome to hop on Zoom for an open Porch Nite session! Build connections, gather resources, share a laugh. ❤️ jettfoundation.org/event/4-28-25-…

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🔥 Huge shoutout to the Sigma fraternities at the University of Florida for firing up support for Duchenne families! 💪 Check out how these incredible students are making a difference through backyard barbeques: jettfoundation.org/blog/universit…

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🌟 Join us for a Family Workshop in Birmingham with Jett Foundation! Hear from experts, explore resources, and connect with a supportive community. #JettFoundationWorkshop 🔗 jettfoundation.org/family-worksho…

🌟 Join us for a Family Workshop in Birmingham with Jett Foundation! Hear from experts, explore resources, and connect with a supportive community. #JettFoundationWorkshop

🔗 jettfoundation.org/family-worksho…
Jett Foundation (@jettfoundation) 's Twitter Profile Photo

Jett invites you to tune in this afternoon for a Community Webinar: Topline Data from EXPLORE44® Clinical Trial with Avidity Biosciences. 💻 🔗 Zoom link: jettfoundation.org/event/communit…

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Next up on our Community Webinar Series: Opportunities for Financial Autonomy & Independence Through ABLE Accounts. 💲🗣️ jettfoundation.org/event/communit…

Next up on our Community Webinar Series: Opportunities for Financial Autonomy & Independence Through ABLE Accounts. 💲🗣️

jettfoundation.org/event/communit…