20 years 💙🍻💙🍻💙🍻

Exciting panel on the involvement of patient in research, making sure their views are present and help the results through the whole process of #clinicaltrials , from the very #designphase . Views of patients, patient organisations and drug developers discussed at #EMSP2024

Annual conference of European MS Platform starts now. You can still join using a link bellow. With EU elections ahead, we connect to hear the voice of 1.2 million people with #multiplesclerosis in Europe

I am taking part in the #MSAwerenessRun2024 on 26 May in Brussels! I would be grateful for support, but also, till 23 April, you can register and run as well!! Great people and nice t-shirt guaranteed ;-) donate.emsp.org/fundraisers/ja…

#1milminds #EUelections2024

#1milminds

There are over 1,2 million people living with #MultipleSclerosis in Europe. Six months before the #EuropeanElections ,European MS Platform is launching a campaign by introducing a Manifesto. Please join by signing the petition in the link below and contacting the possibly future MEPs🙏❤️

Panel 1: “Pokud ESLP shledá porušení Úmluvy, má se za to, že stát prohrál. Ve skutečnosti stát vyhrál: shledané porušení práva totiž často vede k tomu, že se stane lepším pro lidi, kteří v něm žijí.” říká právě soudkyně ECHR CEDH Kateřina Šimáčková.

“Today it is not censorship, but ownership, that distorts our media today.” Timothy Garton Ash at the #AspenAnnual2023 by Aspen Institute CE titled Values: A New Trend of the Digital Era. Ironic to post this on “Twitter”. #truthseeking #ValueBasedLeadership

Today I will be speaking about #HTA and #PatientInvolvement at a meeting of the MEP Interest Group on #BrainHealth and Neurological Conditions at the EU Parliament in Brussels.
#BHNCevent EFNA

10. Broumovské diskuze opět celé živě online na ceskatelevize.cz/porady/1536678…

Can #digital technologies support the #healthcare workforce & address the concerns raised:
🔹shortage of HCPs
🔹trainings time
🔹collecting data for better care and understanding of the issues, ...
Time to wait for these future solutions or are there quick wins?
POLITICO Live

#MS Milan2023 Patient Community Day is 🔜 this Saturday! Prof Mar Tintore highlighted during the opening:
👍 ECTRIMS ACTRIMS® are focusing more on patient engagement and this patient day is bringing in people with #MS together with researchers
#ECTRIMS4me
Link for registration 👇

🌓 #MSMilan2023 is half-way through. 9,000 researchers, clinicians, experts from more than 108 countries are here.
🗣️What are they talking about, what we are the learnings so far?
🔍Watch our Paty M highlighting main themes👇
ECTRIMS ACTRIMS® #MultipleSclerosis

Great panel on analyzing clinical data on the #Klasifikon2023 conference by Institute of Health Information and Statistics of the CzechRepublic. Patient perspective provided by Edita Müllerova from CZELAR and Národní asociace pacientských organizací . #datasaveslives #InternationalClasificationOfDiseases

👂Listening to #EHFG2023 discussions on health system crisis, one thing is clear: 'We need a deeper appreciation of our heroes, healthcare workers,' says Hans Kluge WHO/Europe.
At EMSP, we are focusing empowering nurses in MS care. Learn more👉msnursepro.org

📢 Only 4 days to go!
Take the Impact of #MultipleSclerosis Symptoms survey today and share with us how you are managing your symptoms!
🗣 You can still share your voice and help us make an impact on #MS

Supporting #MSresearch : Be sure to fill out the Impact of #MultipleSclerosis Symptoms (IMSS) survey. This survey by European MS Platform has been launched in 23 countries in Europe. If you are a person with MS tell us how you are caring for your symptoms: bit.ly/44kTXuj

EMSP’s eumsyouth participated in the #EYE2023 at the European Parliament today!

Within our activity:
⭐️We asked the youth what they want the EU to ACT on in 2024
⭐️ Shared our inspiring stories of youth activism & MS
⭐️ Engaged in discussions about the future of EU

Just starting! Young patient activists from European MS Platform are encouraging young people and the EU to ACT on issue that matters at the European Youth Event in Strasbourg! Which issues? We chose climate, health and security in our program, curious on the views of the audience.