Jain Foundation (@jainfoundation) 's Twitter Profile
Jain Foundation

@jainfoundation

Orchestrating a Cure - LGMD2B/Dysferlinopathy/Miyoshi

ID: 1532208547

linkhttp://www.jain-foundation.org calendar_today19-06-2013 22:38:52

197 Tweet

1,1K Followers

2,2K Following

Jain Foundation (@jainfoundation) 's Twitter Profile Photo

Jill Viles gave an inspirational talk at the #2BEmpowered2016 Patient Conference youtu.be/HDTZEmMKNMU #LGMDawareness #JainFoundation

Jain Foundation (@jainfoundation) 's Twitter Profile Photo

2016 #LGMD Awareness #Scholarship = huge success reaching over 87,000 people! Even got mentioned here goo.gl/7FL44A #LGMDawareness

Jain Foundation (@jainfoundation) 's Twitter Profile Photo

Chris gave an inspirational talk about achieving your dreams despite #lgmd at #2bempowered2016 #lgmdawareness youtu.be/1KS-xkNg-_E

Jain Foundation (@jainfoundation) 's Twitter Profile Photo

LGMD Consortium provides free genetic sequencing, visit lgmd-diagnosis.org to learn more businesswire.com/news/home/2016… #LGMDawareness #lgmd

Jain Foundation (@jainfoundation) 's Twitter Profile Photo

Step aside, Olympics here’s the Cybathlon: devices to help people with disabilities #lgmdawareness via @NatureNews goo.gl/gbxqah

Jain Foundation (@jainfoundation) 's Twitter Profile Photo

#LGMD Consortium's Free Genetic Testing Program Is A Major Success, helping over 1200 people! shar.es/1ZEQQV @rareDR #LGMDawareness

Jain Foundation (@jainfoundation) 's Twitter Profile Photo

Stephanie gave a very moving talk at the #2BEmpowered2016 conference youtube.com/watch?v=poZtoe… #LGMDawareness #LGMD #causes #raredisease

Jain Foundation (@jainfoundation) 's Twitter Profile Photo

Want some cool gear for LGMD awareness day Sept 30th? Check out our new store! cafepress.com/lgmdawareness #lgmdawareness #lgmd

Jain Foundation (@jainfoundation) 's Twitter Profile Photo

For Rare Disease Day, we want to share a documentary (made by an amazing person) that inspires us. youtube.com/watch?v=-Opi4d…