The 2023 Australian #NiemamnPickC #conference is now happening in the Ian Potter Auditorium The Florey @NiemannPickOz #NPConf20234

Prof Professor Mark Walterfang presenting on #NiemannPickC clinical research in #Melbourne at the @NiemannPickOz Australian NP-C Conference. #NPConf2023 The Royal Melbourne Hospital The Florey

What are Lysosomal Storage Diseases? youtu.be/gW6_QWbQLCs via YouTube Neat intro video from a collab with Platt lab team Pharmacology Oxford NPUK

It's #ChildhoodDementia Day today! My team at @theflorey is helping to raise Childhood Dementia awareness by putting stickers on our faces to #FACEit. Learn more 👉 Childhood Dementia Initiative childhooddementia.org

Today is the Global #NiemannPickDisease Awareness Day. If you have not heard of Niemann-Pick Disease, learn more about this rare and devastating condition and how you can help to support the #NiemannPick community 👉 npcd.org.au

Very pleased to see the launch of this short comedy/drama on the importance of increasing the number of conditions included in newborn heelprick tests - please watch and share! Fragile X Society, UK @M4RareDiseases Genetic Alliance UK Cambridge Rare Disease Network (CamRARE) #rareconditions youtube.com/watch?v=oVKBVE…

Promoting understanding and offering support, the @NiemannPickOz is dedicated to improving lives affected by Niemann-Pick disease. Learn more on their website: npcd.org.au . #RareDiseaseDay2024 #LightUpForRare #ShareYourColours #RareDiseaseDay #raredisease

We love Renee's intro to her kids. She's one of the parents raising awareness to create change. Sadly, Hudson, Holly and Austin all have #childhooddementia caused by Niemann-Pick disease type C. You can see Renee’s full interview here: bit.ly/3SuyYRz

Today is 29th February - a day that occurs only every 1,461 days. A rare day, making it is extra special to celebrate #RareDiseaseDay today to raise awareness and support for 300 million people living with a #RareDisease. Learn more about our rare disease research The Florey 👇

This International Women's Day, hear from some of our Florey scientists who have shared their perspectives and stories being women in science. Read the story in full: florey.edu.au/news/2024/03/i… #TheFlorey #IWD2024 #InspireInclusion

Please join us for this important event #YOD

It's great to see our partners from the Australian NPC Disease Foundation (@NiemannPickOz) featured in the Herald Sun this morning. Thank you @NiemannPickOz for supporting Florey's research to help Noah and other children with NPC disease. Read here: heraldsun.com.au/lifestyle/heal…

It's an honour to take part in the 2024 NPC Conference held by the Australian NPC Disease Foundation this week, with Dr Ya Hui Hung from The Florey presenting her team's research in developing an effective mRNA gene therapy for #NiemannPickC.

We are grateful to the Australian NPC Disease Foundation (@niemannpickoz) for supporting our research at The Florey to improve the health and wellbeing of those living with NP-C. Learn more: florey.edu.au/research-proje… #TheFlorey #impact #neuroscience #NiemannPickC Ya Hui Hung

In honour of Niemann-Pick Disease Awareness Day, we spoke with Mandy Whitechurch, Founder of @NiemannPickOz Foundation and mother of Timothy and Matthew. With volunteers and families, @NiemannPickOz supports our research into a new gene therapy for NP-C: bit.ly/3YpTBTg

Today is Niemann-Pick Disease Awareness Day, a time to support those affected by conditions such as Niemann-Pick Disease Type C (NP-C). Supported by @NiemannPickOz, Dr Ya Hui Hung's team is working on an innovative mRNA gene therapy for NP-C. Learn more: florey.edu.au/research-proje…