Heidi Beate Bentzen
@heidibbentzen
Researcher @UniOslo_CME & CEO Governance Advisory AS | Privacy & data protection in health and genetics | Biolaw & bioethics | Precision medicine & AI | Biotech
ID: 3355745986
https://www.med.uio.no/helsam/english/people/aca/heidibb/index.html 02-07-2015 21:38:42
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Grateful thanks to Ciara Staunton & Deborah Mascalzoni for a brilliant meeting on #medical #AI & #genomics, & looking forward to follow up projects with participants Rosie Richards Dr Nora Ni Loideain Heidi Beate Bentzen Gianclaudio Malgieri Mahsa Shabani Harry Farmer & friends 😊
I am looking forward to the talk by Heidi Beate Bentzen on data sharing between countries in the #nordicbiobank2022
Exchange of Human Data Across International Boundaries. New review out in Annual Review of Biomedical Data Science, covering both legal challenges and solutions. Full text link annualreviews.org/eprint/YF4XDV3… Annual Reviews UiO - Det medisinske fakultet Nordic Society Human Genetics/Precision Medicine ROSiE Responsible Open Science in Europe #nordicbiobank2022 #GDPR
We're hiring! How does a PhD position in the legal aspects of medical AI sound? Interdisciplinary project, practically oriented, English work language, comparatively good salary. Deadline 15 Nov #GDPR #MDR #AIAct UIO – Det juridiske fakultet NRCCL//SERI jobbnorge.no/en/available-j…
We provide a legal recipe to enable EEA-US personal data transfers in more clinical trials, including use of US cloud providers and transfer of individual level data to the FDA thelancet.com/journals/lanep… The Lancet Reg Health-Europe Kreftregisteret UiO - Det medisinske fakultet U.S. FDA #GDPR #clinicaltrials
Steps European researchers can follow to develop ethical and sustainable result return pathways within their genomic research projects nature.com/articles/s4143… #OviedoConvention #Convention108 #GDPR #genomics #research #ethics UiO - Det medisinske fakultet Centre for Medical Ethics @biotekradet European Society of Human Genetics (ESHG)
DCE from 12 European countries on public preferences for health data sharing governance: Heterogeneity of preferences and necessity of governance flexibility. Please consider in HealthDataEU_pilot and EU One Health. jmir.org/2023/1/e47066/ ROSiE Responsible Open Science in Europe HYBRIDA UiO - Det medisinske fakultet #EHDS
Mine tanker om KI-forordningens innvirkning på helsesektoren – mer byråkrati og høyere overtredelsesgebyrer enn GDPR fører til at styrer og ledere må være påpasselige, juridisk støtte nødvendig for å sikre translasjon: overlegen.digital/overlegen/over… #AIAct UiO - Det medisinske fakultet Legeforeningen
To retain informed consent validity in the face of fast-paced developments in the stem cell research field, we propose dynamic governance StemCellReports Cell Press ISSCR hPSCreg.eu HAPLO-iPS HYBRIDA ROSiE Responsible Open Science in Europe UiO - Det medisinske fakultet cell.com/stem-cell-repo…
Delighted to see this edited volume in print, both paperback and hardback. Many thanks indeed to all the wonderful contributors, and to Routledge Law for their support. MU School of Law & Criminology routledge.com/Confidentialit…
New edited book published today on Routledge Law – in my chapter, I clarify and make recommendations for the legal regulation of human organoids alongside sample/data distinction and international transfers HYBRIDA ISSCR UiO - Det medisinske fakultet #GDPR taylorfrancis.com/chapters/edit/…
New paper in JAMA Network Open on Key Features of a Genetic Nondiscrimination Policy, using a global Delphi study to survey 60 experts in 20 jurisdictions to identify effective policies. Thanks to Uberoi, Joly and colleagues for leading this UiO - Det medisinske fakultet jamanetwork.com/journals/jaman…