We are delighted that ITV news has shared our open letter signed by paediatric neurosurgeons calling on Wes Streeting to commission a review of infant head circumference measurement in the UK. #GetAHead Sign the public petition: change.org/measurebabyhea…

A Department of Health and Social Care spokesperson said: “This government is committed to ensuring all babies and their parents receive the care they need. “The UK takes a risk-based approach to screening for Hydrocephalus in babies, according to agreed clinical guidelines.”

Speaking about #GetAHead and why it's so important that the government reviews the current UK guidelines to prevent fewer babies with #hydrocephalus from slipping through the net.

Harry's HAT hoodies are ready for autumn and can be purchased for £25 plus postage. If you'd like one please email [email protected] and we'll add your name to the order list 💙🧡

🙏Share. Our last 2 places in the #RoyalParksHalfMarathon on 13th October. All runners must be signed up by 2nd September so please email asap if you'd like to run to help children affected by hydrocephalus [email protected] #halfmarathon #royalparksHM

Tune into BBC North West to watch Victoria, Caz and of course Seb, talk about #GetAHead

Read Jay's remarkable story 💙🧡

Paediatric Neurosurgeon @jayjayamohan shares his personal reason for backing our Eye Test campaign. bbc.co.uk/news/articles/… Read more about the campaign here: harrys-hat.org/eye-tests/

There is still time to complete our survey which aims to capture the lived-experience views of families of children with #hydrocephalus who have been through the #EHCP process. bit.ly/HydroEHCP

Today is #WorldHydrocephalusDay The amazing Oliver is one of the #facesofhydrocephalus highlighting why more awareness is needed. To get involved www.worldhydrocephalusday

Thank you to Global's Make Some Noise for supporting #smallcharities to make a big difference to families who need them. It was great to chat to Heart about our work and how Global's Make Some Noise has helped us help children and their families affected by #hydrocephalus.

This is amazing and we're so thankful to Alex Brewer MP 🔶 for backing our #GetAHead campaign. #Hydrocephalus

gofundme.com/f/tough-mudder… Go Deborah! 💙🧡

The number of charities signing our letter to HM Treasury is growing by the second. What's clear to us is not only the strength of feeling, but the real need for action. Am proud to see our sector come together in this way. If you haven't signed yet, there's still time to join!

#GetAHead

#BrainTumourResearch is honoured to join the #LordMayorShow tomorrow, thanks to the incredible support of the Feltmakers! Watch us as we don our silk top hats 🎩 Join us as we parade through London tomorrow! Let us know if you spot us in the crowd!💛 #TogetherWeWillFindACure

Thrilled to announce that following our meeting, Secretary of State for Health and Social Care Wes Streeting will be reviewing whether change is needed. Together we will #GetAHead. @victoriaaglover Alex Brewer MP 🔶 Anna Dixon MP for Shipley Monica Harding MP hellorayo.co.uk/greatest-hits/…

Thank you so much for your support 🧡💙

Thank you DrSarahJarvis for sharing the #GetAHead campaign & supporting our call for a review of the current guidelines for infant head circumference measurement. Sadly, we lag far behind other counties & babies showing signs of the condition continue to slip through the net.

We are delighted to share this Voices Blog by Caroline Coates, founder of Harry's HAT Charity. Caroline shares her personal experiences & the charity’s mission to increase awareness of hydrocephalus, champion better treatment & campaign for improved detection. buff.ly/NRTTk0y