What a wonderful way to end the POS/IPOS training days CSI Palliative Care, celebrating the successes of the C-POS (Children’s Palliative care Outcome Scale), with a few of the team (missing those not here!) CYP Research in Palliative Care

Thrilled to have won an award for best abstract at the POS/IPOS training days CSI Palliative Care presenting the findings from my #PhD on developing an #implementation plan for integrating the novel C-POS:UK CYP Research in Palliative Care into routine #NHS care for #children with #LifeLimiting and their families

Lucy Coombes presenting at the POS/IPOS training days CSI Palliative Care on the development and validation of the UK C-POS: a novel #PROM / #PCOM for #children & #YoungPeople with #LifeLimiting & #LifeThreatening conditions and their #families

Fantastic presentation from Rachel Chambers on the findings of her systematic review from her pre-doctoral fellowship: there is currently no ideal, holistic, psychometrically valid #PROM for #YoungAdults with #LifeLimiting conditions

We are excited to share our 16th C-POS study newsletter. Please get in touch for more information on the project, or to request a PDF copy of the newsletter #pedpc Lucy Coombes Nursing, Midwifery & Palliative Care at King's 💙 Palliative Medicine Sydney Children's Hospitals Network Anthony Herbert CPCCONF2024 Lorna Fraser MAH Conferences

Development and psychometric evaluation of Children’s Palliative Care Outcome Scale (C-POS)- Prof Lorna Fraser, from King's College London

Attending the 6th All Island Children's Palliative Care Conference 2024? Don't miss Lorna Fraser presenting on behalf of Daney Harðardóttir today on the development and psychometric evaluation of the novel C-POS in the oral abstract presentation session at 12:10pm IST #cpcc2024

Attending the 18th National Current Issues in Palliative Care Conference 2024? Join Lucy Coombes in the Paediatric Palliative Care break-out session to find out about outcome measurement in paediatric palliative care #pedpc

Do you have a child (more than 3 mths but less than 3 years old) with sickle cell (SCD) or are a HCP caring for children with SCD who would consider being interviewed (1 hour). You will be compensated for your time.
Please contact: [email protected] Sickle Cell Society

Following development of the first C-POS for children with life-limiting conditions in sub-Saharan Africa, Julia Downing, Eve Namisango & RichardHarding discuss lessons learned & future developments for outcome measurement in paediatric palliative care: doi.org/10.21037/apm.2…

Over 400 people have now participated in the C-POS questionnaire study! This makes us one of the largest primary data #pedpc studies ever! Thank you to everyone who has taken part and to the 76 UK sites who continue to recruit to the study to reach our target of 600 participants!

Paper of the week!🌟New #qualitative work from
Hannah Scott & CYP Research in Palliative Care identifies anticipated benefits, risks, barriers & facilitators to #implementing person-centred outcome measures ( #PCOMs ) into #PaediatricPalliativeCare #pedpc . Full paper: doi.org/10.1177/026921…

Following development of the first C-POS for #children with #LifeLimiting conditions in #SubSaharan #Africa , Eve Namisango led a study to determine the face & content validity, acceptability, feasibility & implementability of the new tool. Full paper: doi.org/10.1177/026921…

Dementia Journeys opens at Science Gallery London today!💐

This new exhibition presents the experiences of those who care for people dying with dementia, and uncovers ways in which care could be improved.

Get down before 22 June 🚨 kcl.ac.uk/events/dementi…

This is beginning to feel very real!

Paper of the week🌟! This CSI Palliative Care CYP Research in Palliative Care paper led by @CSI_linguist advances understandings of how children describe and make sense of their own conditions. Using discourse methods enabled us to identify ways to help clinicians to 'do' child centredness journals.sagepub.com/doi/10.1177/02…

Selection of great interesting posters at #rcpch24 on theme of palliative care

How do #children and #YoungPeople with #LifeLimiting conditions want to participate in self-reporting on their own #health outcomes? Lucy Coombes led a qualitative interview study to find out #pedpc . Full article: doi.org/10.1007/s40271…

📢 NEW C-POS PAPER: ‘What are the anticipated benefits, risks, barriers & facilitators to implementing #PCOMs into routine care for CYP with life-limiting/life-threatening conditions? Published in Palliative Medicine doi.org/10.1177/026921… 1/13 🧵

REGISTER NOW for the Palliative Outcome Scale ( #POS + IPOS) Training Days on 1 & 2 May 2024: tinyurl.com/POSDay2024 Spaces are limited, so sign up early! Visit pos-pal.org for more information. #POS 2024 #PalliativeCare #Outcomes