Explore a new HCU formula this fall with HCU Maxamum! A nice orange flavor when mixed w/water or get creative & create a custom smoothie. ➡️ nutriciametabolics.com/blueberry-powe… *often we share information from our Network Affiliates - this is not an endorsement of the product.

This free, online self-paced course offered by Pediatric Epilepsy Surgery Alliance helps you understand everything you need to know about IEPs. Arm yourself with knowledge and be a powerful advocate for your child. Learn more/Register ➡️ bit.ly/4dkVoNA

This week we attended SIMD/NAMA's annual conference/training! Liz chatted w/trainees in medical & biochemical genetics & share the resources and support that HCU Network America provides. It was an excellent opportunity to start building relationships w/our future providers!

Please see the latest from Travere Therapeutics. ➡️ tinyurl.com/3dn8wws6

It's your *Week 4* Race update & leaderboard! Just 4 days left, #HCUHeroes: LET'S DO THIS! We're just $13,000 shy of our $50,000 goal! Head to ➡️ bit.ly/HCURace24 to make a donation in support of a team! #RaceforResearch2024 #homocystinuria #HCU

🚨 Happening in 1 week! 🚨 Join us for our fall Community Virtual Meetup! 🖥️ Danae' will share some important community updates, and we will also have time to chat & connect! 👥 🫂 ➡️ Register: bit.ly/fall-meetup

🚨 Happening in 1 week! 🚨 Join us for our fall Community Virtual Meetup! 🖥️ Danae' will share some important community updates, and we will also have time to chat & connect! 👥 🫂 ➡️ Register: bit.ly/fall-meetup

Today is the FINAL DAY of our #RaceforResearch2024! It's your final chance to log those miles & get your final donations submitted! Let's Go #HCUHeroes - it's time to cross that finish line!!! 💪 🏁 ➡️ charity.pledgeit.org/HCURaceforRese… #homocystunria #research #HCU #HopeConnectsUs

🎙️ New HC&U: A Homocystinuria Podcast episode out NOW! Get ready for a special edition: #NewbornScreening Awareness Month Episode! 👣 ➡️ Catch the HC&U Podcast on Spotify, Apple Podcasts, iHeart, or Amazon Music! Or, head to hcunetworkamerica.org/hcu-podcast/ #2024NBS RARE-X

It's October 1st, and you know what that means - today is the 1st day of HCU Awareness Month!!! 💙 Show your support by changing your profile picture to the awareness ribbon and start your fundraiser! #HCUAwareness #GoBlueforHCU #homocystinuria #HCU #HopeConnectsUs

Kick off #HCUAwareness Month with the HCU Herald newsletter! 💙 Read it here ➡️ bit.ly/oct-herald #GoBlueforHCU #Research #newsletter #Homocystinuria #NewbornScreening #podcasts #RareDisease #HCU #HopeConnectsUs

#HCUAwareness month - Day 2! 💙 ➡️ Did you know that there are 10 types of #homocystinuria? Homocystinuria is an elevation of the amino acid #homocysteine in urine or blood. #GoBlueforHCU #HCU #HopeConnectsUs

It's #HCUAwareness Month - Day 3! 💙 How can you spread #awareness? Join us on social media & share, share, share! Next week (week 2), starts our focus on #ClassicalHCU! #GoBlueforHCU #homocystinruia #HCU #HopeConnectsUs

Please see the following information from Mead/Johnson Nutrition.

🔦 Spotlight on #RaceforResearch team Miles for Marcus! Marcus & his family held a cornhole tournament to raise funds for #HCU research! They raised an incredible $3,110 and put in 198 miles! 👏👏👏 Marcus is our #HCUHero this month! Read his story ➡️ bit.ly/hero-marcus

It's #HCUAwareness Month - Day 4! 💙 We've made SO much progress since 1962 when #homocystinuria was first identified, and we won't stop working until a cure is found for all! 🙌 #GoBlueforHCU #HCU #HopeConnectsUs

It's #HCUAwareness month - Day 5! 💙 Meet our October #HCUHero, Marcus! Marcus was diagnosed as a newborn with #homocystinuria + methylmalonic academia (Cobalamin C). ➡️ Read Marcus's story here: hcunetworkamerica.org/cobalamin-pati… #GoBlueforHCU #cobalaminC #CblC #HCU #HopeConnectsUs

🚨 Our community meetup is TODAY@ 4pm ET! 🚨 We hope you'll join us - it's not too late to register! ➡️ Register here: bit.ly/fall-meetup

It's #HCUAwareness Month - Day 7! 💙 This week, we'll shine a spotlight on #ClassicalHCU! 🔦 #homocystinuria #CBSdeficiency #homocysteine #methionine #lowprotein #lowproteindiet #medicalnutrition #GoBlueforHCU #HCU #HopeConnectsUs

Join HCU Network America & Propionic Acidemia Foundation at the PKU Illinois annual meeting. Join us for speakers, breakout sessions, vendor presentations, scholarship winners, and more. Meals w/ low-protein options will be provided, as will childcare. Register here >pkuil.org/newsevents.html