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Patients and members of the public want to be involved in every step of the guideline process- so what’s stopping us? Lyubov Lytvyn 🇺🇦 MuSE Guidelines GIN Member #GIN2023

‼️Engaging the right people is a FACILITATOR, NOT a barrier to research and guidelines - Dr Danielle Pollock #GIN2023Glasgow

Shoutout to MuSE Guidelines for their fantastic work on engaging interested people & groups in guideline development & evidence synthesis by plenary speakers Dr Danielle Pollock @PerVandvik #GIN2023Glasgow

Guideline developers should know that the research we found & folks we interviewed showed us that “Patients, caregivers, and patient organizations” & “Public” members want to be involved at EVERY step of the guideline development process MuSE Guidelines #GIN2023Glasgow

Challenging to find research & interview policymakers re: when & how they want to be engaged in guideline development - it was less decision-making than we expected! MuSE Guidelines Moderator Olivia Wu said she was surprised re: evidence appraisal step. #GIN2023Glasgow

The legendary Gordon H. Guyatt presenting on work led by Dr Linan Zeng on clarifying panel views of patients’ values and preferences. Qualitative study of panelists using this approach found it helpful in understanding each other & reaching consensus #GIN2023Glasgow

The STrengthening the Reporting of OBservational studies in Epidemiology (STROBE)-Equity initiative seeks consultation on the draft STROBE-Equity guidance. Have a say in how equity should be considered in research! surveymonkey.ca/r/3SG58KX theoche.ca/f/survey-impro…

Watch a recording from our recent webinar for a great discussion on engaging citizens in providing evidence synthesis and support ▶️ mcmasterforum.org/networks/evide… #E2PSummit2023 #Evidence4Life @CochraneConsmr World Health Organization (WHO)

The deadline has been extended until Oct. 31

Trustworthy guidelines are the cornerstone of evidence-based healthcare. But how can we distinguish between trustworthy and untrustworthy guidelines? This useful article by Gordon H. Guyatt and colleagues can help fmch.bmj.com/content/fmch/1…

GRADE has important potential application in evidence to coverage decisions. doi.org/10.1016/j.jcli…

Excellent advice for centring equity in public engagement - early and at every stage of evidence synthesis #WWGS2023 MuSE Guidelines

An important principle of The Cochrane Library reviews is co-production & stakeholder involvement. 📃 'Involving People' is a free learning resource for systematic review authors & editors with best practice & practical suggestions ➡️ buff.ly/2zSYomQ Cochrane Consumer Network

Interested in health equity? There is still time to provide your feedback for the STROBE-Equity reporting guideline: surveymonkey.ca/r/B7WDN9Q.

Calling patients, carers & the public. There are many ways to be involved in research on Cochrane Engage. Your perspective is vital to producing evidence that’s relevant and accessible. Find out more at bit.ly/3t9L2wE to find out more.

PAN is excited to share this opportunity for ALL patient/caregiver partners - not just those in research -- to participate in the future of patient-oriented research. Share your thoughts and insights about health research in this survey. bit.ly/47Vzej0

Our upcoming webinar will showcase effective structures & processes that support citizens to have a voice at decision-making tables so they can better hold leaders to account for achieving the system transformations that citizens need mcmasterforum.org/networks/evide…

Exciting news! 🎉The Global Evidence Summit is back in 2024! Cochrane JBI @GIN_member & @campbellreviews have again joined forces to deliver the highly anticipated second Global Evidence Summit in Prague! Save the date: 🗓️ 10-13 September #GES2024 GESummit

Are you a patient, carer or member of the public & interested in trustworthy health research? Why not join the Cochrane Consumer Network consumers.cochrane.org? Be part of a growing international community of people like you, learn and take part in research.

From experience to expertise: Patients lead as authors in Cochrane's widely-used breast cancer review. Read the story of what breast cancer patients experienced when contributing to a Cochrane Review. cochrane.org/news/experienc…