Marco (@gmwetz) 's Twitter Profile
Marco

@gmwetz

Tweets about Long Covid, ME and politics // NAFO fella

ID: 1728542827

linkhttps://marcowithlc.wordpress.com calendar_today04-09-2013 11:49:09

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Peter Neehus (@peenee2) 's Twitter Profile Photo

New preprint Rob Wüst + team #LongCovid #ME #MEcfs "our observations suggest intrinsic skeletal muscle abnormalities contribute to limited exercise capacity, including reduced capillary supply relative to muscle fiber size and mitochondrial impairments." medrxiv.org/content/10.110…

New preprint <a href="/RobWust/">Rob Wüst</a> + team
#LongCovid #ME #MEcfs
"our observations suggest intrinsic skeletal muscle abnormalities contribute to limited exercise capacity, including reduced capillary supply relative to muscle fiber size and mitochondrial impairments."
medrxiv.org/content/10.110…
Rob Wüst (@robwust) 's Twitter Profile Photo

🧵 THREAD: Skeletal Muscle Alterations in Long COVID and ME/CFS 1/ 💡 Study Overview We studied whether skeletal muscle changes in Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients are due to inactivity or distinct pathological processes.

Michael R Scoma MD (@drscomame_cfs) 's Twitter Profile Photo

🚨🚨🚨 In real time, real world clinical medicine - not opinion, not theory, not AI, not academic detachment - my patients on Pemivibart (n=12) and my patients receiving 30 day antiviral courses (n=25) are demonstrating significant clinical improvement. 🧵

🚨🚨🚨 In real time, real world clinical medicine - not opinion, not theory, not AI, not academic detachment - my patients on Pemivibart (n=12) and my patients receiving 30 day antiviral courses (n=25) are demonstrating significant clinical improvement. 🧵
Carmen Scheibenbogen (@c_scheibenbogen) 's Twitter Profile Photo

Jetzt auch direkt am Muskel gezeigt: anders als bei Dekonditionierung  keine Muskelatrophie bei MECFS und LC, dafür Kapillaren und deren Lumen deutlich vermindert. Weitere wichtige Studie von Rob Wüst medrxiv.org/content/10.110…

Marco (@gmwetz) 's Twitter Profile Photo

I wonder if we can hold a conclave for LongCovid and Me/CFS as well. We lock up all the researchers and they can't come out until the solution is found. Let the white smoke rise :) 💨😂🫣

Marco (@gmwetz) 's Twitter Profile Photo

Gesichert rechtsextrem – steht jetzt im Bericht. Und doch sagen manche: „Ach, so schlimm sind die nicht.“ Doch wer die Geschichte mit Absicht vergisst, macht morgen genau das, was gestern schon Mist. #noafd

Marco (@gmwetz) 's Twitter Profile Photo

36 days until my birthday 🎉 Quick reminder that my birthday fundraiser for long COVID research is still open ⬇️⬇️⬇️

Carmen Scheibenbogen (@c_scheibenbogen) 's Twitter Profile Photo

ME/CFS and Long Covid - Digging Deeper - in Norwegen, sehr guter Austausch mit Brian Hughes, Oystein Fluge, Kristian Sommerfelt, Karl Johan Tronstad, Rob Wüst, David Systrom, Putrino Lab. Am Montag geht es weiter auf der International MECFS conference in Berlin mit Livestream.

ME/CFS and Long Covid - Digging Deeper - in Norwegen, sehr guter Austausch mit Brian Hughes, Oystein Fluge, Kristian Sommerfelt, <a href="/kjtronstad/">Karl Johan Tronstad</a>, <a href="/RobWust/">Rob Wüst</a>, David Systrom, <a href="/PutrinoLab/">Putrino Lab</a>.
Am Montag geht es weiter auf der International MECFS conference in Berlin mit Livestream.
Marco (@gmwetz) 's Twitter Profile Photo

Hi all, I am doing better again. However I decided to extend my break for the next two weeks or so. See u soon 👋

Marco (@gmwetz) 's Twitter Profile Photo

Jede Stimme zählt ! Bitte mitmachen ! Ihr könnt die Postkarten aus dem Bett heraus versenden 🙏🙏🙏 ⬇️⬇️⬇️

Tom Kindlon (@tomkindlon) 's Twitter Profile Photo

New from Austria. Gastrointestinal Barrier Disruption in Post-COVID Syndrome Fatigue Patients onlinelibrary.wiley.com/doi/10.1111/al… Includes an ME/CFS cohort. Funded by WE&ME Foundation #MEcfs #LongCovid

New from Austria. 
Gastrointestinal Barrier Disruption in Post-COVID Syndrome Fatigue Patients

onlinelibrary.wiley.com/doi/10.1111/al…

Includes an ME/CFS cohort. Funded by <a href="/weandmecfs/">WE&ME Foundation</a>

#MEcfs #LongCovid
Marco (@gmwetz) 's Twitter Profile Photo

Has anyone with ME or LC an enlarged spleen ? My is enlarged for three years now. The spleen is also condensed (ultrasound). I am wondering if this has anything to do with RBC and impaired deformability ?!

Dirk Paessler (@dpaessler) 's Twitter Profile Photo

Here is an analysis of my poll "How many people with LongCOVID or ME/CFS do you know"? * Only 19-31% of Voters Do Not Know Any LongCOVID or ME/CFS Patients (!) * The 573 participants in the two polls (Twitter and LinkedIn) know more than 1,400 patients * On Average Each Voter

Here is an analysis of my poll "How many people with LongCOVID or ME/CFS do you know"?

* Only 19-31% of Voters Do Not Know Any LongCOVID or ME/CFS Patients (!)
* The 573 participants in the two polls (Twitter and LinkedIn) know more than 1,400 patients
* On Average Each Voter
🌱 (@glimmerinabsnce) 's Twitter Profile Photo

My story is in the news. I’m overwhelmed by the kindness, messages, and support. Thank you for reading, for sharing, and for making this invisible illness little more seen. I’m still deeply moved and endlessly grateful. #MECFS #ChronicIllness #LongCovid rtl.de/news/tobias-ha…