FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile
FSCDR Foundation for Sickle Cell Disease Research

@fundsicklecell

Change the Conversation. Reshape the Future. We are the USA’s only outpatient center solely focused on SCD

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linkhttp://www.fscdr.org calendar_today04-04-2013 10:44:27

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FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Voices of Sickle Cell Panel Discussion was a success! Thank you to everyone who showed up, spoke up, and engaged in this much-needed conversation about the realities, challenges, and strength of living with Sickle Cell Disease. Your presence and participation made the event

Voices of Sickle Cell Panel Discussion was a success! Thank you to everyone who showed up, spoke up, and engaged in this much-needed conversation about the realities, challenges, and strength of living with Sickle Cell Disease. Your presence and participation made the event
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Only 2 Weeks Left! Don't miss your chance to attend our Annual Sickle Cell Disease Research & Educational Symposium + National Scientific Meeting bringing together science, support, and solutions. Who should attend? Everyone. Because the fight against sickle cell disease takes

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Last Saturday was powerful the room was filled with strength, vulnerability, and purpose. Let’s continue to amplify the voices that matter. #VoicesOfSickleCell #SickleCellAwareness #FSCDR #CentersOfExcellence #SickleCellCommunity #ChronicIllnessSupport #WarriorsWithin

FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

We’re proud to partner with Shakevia’s Sickle Cell Anemia Foundation Inc. for a day of fun, family, and advocacy! Join us for “Put a Move on Sickle Cell” Family & Friends Field Day 📅 Saturday, May 24th 🕛 12 PM – 4 PM 📍 Betty T. Ferguson Park, Miami Gardens This FREE

We’re proud to partner with Shakevia’s Sickle Cell Anemia Foundation Inc. for a day of fun, family, and advocacy!

Join us for “Put a Move on Sickle Cell” Family & Friends Field Day
📅 Saturday, May 24th
🕛 12 PM – 4 PM
📍 Betty T. Ferguson Park, Miami Gardens

This FREE
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Expert sickle cell care is now closer to home with 15 Centers of Excellence Across Florida! We are proud to serve our community with compassionate, specialized care for Sickle Cell Warriors across the state. Whether you're in Hollywood, Jacksonville, Tampa, Orlando, or anywhere

Expert sickle cell care is now closer to home with 15 Centers of Excellence Across Florida! We are proud to serve our community with compassionate, specialized care for Sickle Cell Warriors across the state.

Whether you're in Hollywood, Jacksonville, Tampa, Orlando, or anywhere
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Change starts with connection, collaboration, and commitment. We bring together healthcare providers, researchers, patients, and advocates all for one goal, to improve the lives of Sickle Cell Warriors. 📚 Discover cutting-edge research 💬 Engage in vital conversations 🤝 Build

Change starts with connection, collaboration, and commitment. We bring together healthcare providers, researchers, patients, and advocates all for one goal, to improve the lives of Sickle Cell Warriors.

📚 Discover cutting-edge research
💬 Engage in vital conversations
🤝 Build
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

At such a young age, Isiah is already envisioning a future filled with compassion, purpose, and impact. His dream? To personally care for those battling sickle cell disease and one day eliminate the pain of crises altogether. This is why we do what we do. This is why we keep

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ONE WEEK AWAY!  Deion Sanders "Coach Prime" is bringing his signature inspiration to the 19th Annual FSCDR Sickle Cell Disease Research & Educational Symposium! 📅 June 8, 2025 🕛 12:00 PM EST 📍 Live from Fort Lauderdale + Virtual Access From overcoming adversity to defying

ONE WEEK AWAY! 

Deion Sanders "Coach Prime" is bringing his signature inspiration to the 19th Annual FSCDR Sickle Cell Disease Research & Educational Symposium!

📅 June 8, 2025
🕛 12:00 PM EST
📍 Live from Fort Lauderdale + Virtual Access

From overcoming adversity to defying
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Mental Health Matters in Sickle Cell Care We’re proud to partner with Shakevia’s Sickle Cell Anemia Foundation for their upcoming Mental Health Webinar happening this Thursday on Zoom! This important session will dive into the emotional and mental health challenges faced by

Mental Health Matters in Sickle Cell Care

We’re proud to partner with Shakevia’s Sickle Cell Anemia Foundation for their upcoming Mental Health Webinar happening this Thursday on Zoom!

This important session will dive into the emotional and mental health challenges faced by
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Can’t make it in person? Join us virtually! The 19th Annual Sickle Cell Disease Research & Educational Symposium + 48th National Scientific Meeting is accessible to everyone no matter where you are. Key presentations will be streamed live, and recordings will be available after

Can’t make it in person? Join us virtually!

The 19th Annual Sickle Cell Disease Research & Educational Symposium + 48th National Scientific Meeting is accessible to everyone no matter where you are.

Key presentations will be streamed live, and recordings will be available after
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Our case management team works with you every step of the way to ensure your care plan is coordinated, current, and centered around your unique needs. From your hematologist to your nurse practitioner, we bring your whole care team together to monitor, adjust, and advocate for

FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

From around the world, physicians, researchers, community leaders, and Sickle Cell Warriors came together with one mission: to push the conversation forward, share cutting-edge research, and build a stronger future for those living with SCD. 📅 We’re doing it again June 6–8,

FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Have you registered for Warrior Family Game Day @ Dave & Buster’s yet?  This Saturday we’re proud to support the amazing work of A.S.A.P. Be Informed, and this weekend’s event is all about food, fun, and family. Connect, play, and network with other warrior families. Don’t miss this

Have you registered for Warrior Family Game Day @ Dave & Buster’s yet? 

This Saturday we’re proud to support the amazing work of <a href="/asapbeinformed/">A.S.A.P. Be Informed</a>, and this weekend’s event is all about food, fun, and family.

Connect, play, and network with other warrior families. Don’t miss this
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Having the right support system matters. Having a doctor and nurse you trust? That’s just as important.  In this powerful episode of Warriors Within, one warrior shares their journey of learning to advocate for themselves, trust their instincts, and build a care team that truly

FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Scientific Keynote Spotlight: Dr. Marilyn J. Telen Join us at the Annual Sickle Cell Disease Research & Educational Symposium + National Scientific Meeting as we welcome Dr. Marilyn J. Telen to the main stage! Keynote Topic: The Evolution of Therapy in Sickle Cell Disease

Scientific Keynote Spotlight: Dr. Marilyn J. Telen

Join us at the Annual Sickle Cell Disease Research &amp; Educational Symposium + National Scientific Meeting as we welcome Dr. Marilyn J. Telen to the main stage!

Keynote Topic: The Evolution of Therapy in Sickle Cell Disease
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

FREE Smoothie Workshop in Orlando! We’re excited to partner with @rarecarefoundation RARECARE Foundation for a fun and educational Community Smoothie Workshop and you’re invited! 🍓🍌 📅 Sunday, June 1, 2025 🕒 3:00 PM – 5:00 PM 📍 Orange County Public Library (Alafaya Branch)

FREE Smoothie Workshop in Orlando!
We’re excited to partner with @rarecarefoundation RARECARE Foundation for a fun and educational Community Smoothie Workshop and you’re invited! 🍓🍌

📅 Sunday, June 1, 2025
🕒 3:00 PM – 5:00 PM
📍 Orange County Public Library (Alafaya Branch)
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Why is Case Management Critical for Sickle Cell Disease? Sickle cell disease is complex, it affects multiple systems in the body and often requires coordinated care from a range of specialists. That’s why comprehensive case management is a cornerstone of care at the Foundation

Why is Case Management Critical for Sickle Cell Disease?

Sickle cell disease is complex, it affects multiple systems in the body and often requires coordinated care from a range of specialists. That’s why comprehensive case management is a cornerstone of care at the Foundation
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

As a Sickle Cell Warrior, watching your mom go through it with you, feeling helpless while you’re in pain is one of the hardest parts. But remember this... pain doesn’t last forever. Keep pushing. Keep fighting. Because every Warrior has a purpose and every struggle has a

FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Symposium Session Spotlight  Palliative Care: Enhancing Quality of Life for Individuals with Sickle Cell Disease 📅 Saturday, June 7, 2025 🕛 12:10 PM – 12:40 PM ET 📍 Floridian CD | Livestream Available Join Dr. Eberechi Nwogu-Onyemkpa, Assistant Professor at Washington

Symposium Session Spotlight 
Palliative Care: Enhancing Quality of Life for Individuals with Sickle Cell Disease

📅 Saturday, June 7, 2025
🕛 12:10 PM – 12:40 PM ET
📍 Floridian CD | Livestream Available

Join Dr. Eberechi Nwogu-Onyemkpa, Assistant Professor at Washington
FSCDR Foundation for Sickle Cell Disease Research (@fundsicklecell) 's Twitter Profile Photo

Advancing Sickle Cell Disease Care Through Public Health and Community Interventions 📅 Tuesday, June 3, 2025 🕧 12:30 PM ET 💻 Free CME-Accredited Webinar Public health professionals, clinicians, and community advocates—this one is for you. Discover how prevention, advocacy,

Advancing Sickle Cell Disease Care Through Public Health and Community Interventions

📅 Tuesday, June 3, 2025
🕧 12:30 PM ET
💻 Free CME-Accredited Webinar

Public health professionals, clinicians, and community advocates—this one is for you.

Discover how prevention, advocacy,