Friedreich's ataxia patients may have elevated NfL and tau levels, making both possible disease activity and treatment response biomarkers. friedreichsataxianews.com/news/blood-pro… #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

As columnist Kendall Harvey's children head back to school, she's preparing for home renovations to better accommodate her wheelchair. friedreichsataxianews.com/columns/back-s… #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

The FDA has rejected a request from PTC Therapeutics to approve the oral therapy vatiquinone for children and adults with Friedreich’s ataxia. buff.ly/ulm3NEo #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

PTC Therapeutics' request for approval of vatiquinone for treating Friedreich’s ataxia was rejected by the U.S. Food and Drug Administration. friedreichsataxianews.com/news/fda-rejec… #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Guest Voice Brittany Sommerfield, who has FA, has learned from job training and personal experience to plan for the disabled traveler. bit.ly/463Y9SU #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Laughter is good medicine, says columnist Jean Walsh, who often uses humor to help regulate the strong emotions that come with FA. buff.ly/S97g1Ro #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Imaging showed FA patients had low levels of MC1 protein, pointing to a potential biomarker, according to a small study. friedreichsataxianews.com/news/imaging-s… #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Madelyn Raynsford shares her pregnancy with Friedreich’s ataxia, covering genetic testing, medical care, and family and community support. buff.ly/pCHZT42 #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Columnist Jean Walsh describes why she says "I'm fine" as an automatic answer, even after a fall when she actually needs help. bit.ly/3I0mIqM #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Whether it's a drug rejection or a life lost too soon, too many Friedreich's ataxia stories remain unwritten, columnist Matthew Lafleur says. buff.ly/3Lyw9ds #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Two sisters with Friedreich's ataxia saw improvement in peripheral sensory nerve function after treatment with Skyclarys, per a case report. buff.ly/FnYHEcy #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

An antioxidant supplement boosted the production of frataxin, the protein that’s deficient in FA, in a cell-based study. buff.ly/aQLCanl #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

For this year's International Ataxia Awareness Day, advocates are shining a light on what it's like to live with FA and other disease types.  buff.ly/NnOIAgf #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Treatment with nomlabofusp is leading to long-term improvements and increased frataxin levels in Friedreich's ataxia patients, new data show. buff.ly/IjjtTT1 #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Bill Nye the Science Guy is back in the lab, with a new video series focused on raising awareness and understanding of Friedreich's ataxia. buff.ly/OaKIImE #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

As a parent of a child with Friedreich’s ataxia, columnist Elizabeth Hamilton understands how important it is to manage her family's finances. buff.ly/58yuErl #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Seeking out "glimmers," or small, everyday joys, is helping columnist Jean Walsh to focus on the positive in life with FA. buff.ly/ZSi1xW3 #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Four years of daily treatment with Skyclarys slows FA progression compared to what would be expected in patients without treatment, per data. buff.ly/vE5qKKf #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

FA treatment nomlabofusp increased frataxin protein levels in tissues and improved heart function and survival in FA mice. buff.ly/t86wLcq #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity

Columnist Kendall Harvey, who uses a wheelchair, says that substitute teaching gives her an opportunity to talk about disability with kids. buff.ly/ddRbDml #FriedreichsAtaxia #FriedreichsAtaxiaNews #FACommunity