Den 28.02 markéiert déi 15. Editioun vum #RareDiseaseDay.Fir op seelen Erkrankungen an hir Auswierkungen opmierksam ze machen,un deenen 30.000 Mënschen eleng zu🇱🇺leiden,gouf d'#Philharmonie aus Solidaritéit am Kader vun der #GlobalChainofLights an de Farwen vun der #ALAN belicht!

Today is #RareDiseaseDay. We join the world as part of the #globalchainoflights to light up the #NationalTheatre in solidarity to persons living with #rarediseases in Ghana. Join us as we share our colors towards a national plan for rare diseases in Ghana.

This #RareDiseaseDay 2023, Oceania is kicking off our Global Chain of Lights ✨! 👉Check out all of the illuminations happening and follow #LightUpForRare: cutt.ly/MPUWDKx

#RareDiseaseDay2023 #LightUpForRare #GlobalChainOfLights #RareDiseaseDay

On February 29 tomorrow monuments will be lit up in honor of Rare Disease Day. #LightUpForRare Full list of Canadian Illminations👉 raredisorders.ca/rare-disease-d… Let us know if there are other Canadian illuminations to add! #Canada4Rare #RareDiseaseDay Rare Disease Day

💙💖💚💜 On the rarest day of the year, February 29, the #MightyLights will glow blue, pink, green and purple for #RareDiseaseDay on behalf of Accredo by Evernorth. #LightUpForRare⁠

We are proud to shine a light on #RareDiseases by lighting up the National Library of Medicine Lister Hill Center & Building 1 on NIH’s main campus in Bethesda, MD! ✨ Don't forget to register for #RareDiseaseDay at NIH, which is happening tomorrow: go.nih.gov/QQyNee6 #LightUpForRare #RDDNIH

🌏Today is Rare Disease Awareness Day! 🤲Let's come together in solidarity, fostering awareness and celebrating the incredible resilience of those navigating unique challenges. #RareDiseaseDay #LightUpForRare

QUB looks so good joining the #ChainofLights #LightUpForRare for #RareDisease - hoping to get a photograph ~11 am 29th Feb. Come Join us in support at white statue of Galileo in entrance square of main Queen's University Belfast 🎓 Lanyon building! #RareDiseaseNI. QUB Public Health Public Engagement MHLS #RAiN

Great to see University Hospital of Wales lighting up to support #RareDiseaseDay 2024 where many patients come for their specialist care and treatment 💡✨#LightUpForRare Genetic Alliance UK Cardiff and Vale University Health Board Cardiff University

We #LightUpForRare to help fill the world with color in celebration of everyone living with a rare disease ❤️💚💙💜 #RareDiseaseDay2024

It's a #GlobalChainOfLights for #RareDiseaseDay! The Minnesota Minnesota Twins hit a homerun, lighting up Target Field in #RareDisease colors! Show your stripes & share a pic using #LightUpForRare! Together, we shine brighter than any disease. #WeTackleRare

Ce 29 février, le parlbruparl s'illumine pour marquer sa solidarité avec les plus de 300 millions de personnes dans le monde qui souffrent d’une maladie rare. #partagetescouleurs #rarediseaseday #raresensemble

Evesham Bell Tower beautifully lit for #RareDiseaseDay as part of the #globalchainoflights 💚💙🩷 A beacon of hope and recognition of the battles faced by those who suffer from rare diseases and disorders like CASK. Thank you to @ParishofEvesham for doing this! #LightUpForRare

@SaintBaudelle petite commune de 1170 habitants en région Pays de la Loire département de La Mayenne, le Département aux couleurs de la journée internationale des #maladiesrares #RareDiseaseDay #RareDiseaseDay2024 #jimr #jmr #LightUpForRare bravo aux membres de la Fédération du 53👏 #microtie

1er colloque de l' #atrésie #microtie à l' hôtel de ville de Thomas Metz🚶🏻 #malformation #ORL #surdité #petitesoreilles Filière TETECOU Institut Imagine Hôpital Necker AP-HP #aplasie Venus de toutes la France sont présents des parents, des associations, quelques médecins et professeurs

Nous avons le plaisir d'être désormais membre de la filière santé Maladie Rares Tête Cou. De nouvelles opportunités et partenariats pour aider les familles, les patients, de mobiliser et se mobiliser autour de la microtie.

Notre richesse, c'est vous ! Plus nous sommes et serons nombreux, plus nos réponses seront rapides, compétentes, accompagnantes ... ▶️ Adhésion 2025 Fédération Française de l'Atrésie et Microtie : FRANCEmicrotie.fr - #atrésie #microtie #ORL #audition #surdité #malformation

Le pdt Ludovic LE BIHAN et la @Fédération Française de l'Atrésie et Microtie Fédération Française de l'Atrésie et Microtie adressent tous leurs meilleurs vœux : 🧒 à tous les enfants et patients 🧑‍👱‍♂️ à tous nos membres : particuliers, associations familles, personnels de santé 🏥🥼 à tous nos partenaires