I wonder if teachers have any idea of the dedication it takes for a #renal patient to attend an after-school club?
#haemodialysis until 10pm due to jazz band practice 🎸
Maybe it's time to consider #nocturnal #dialysis
Luckily, he's absorbed in a much anticipated new release.

Maybe one year, when he is free from a life that is dependent on #dialysis , this might actually be a possibility.
To all those from the #kidney community that are running TCS London Marathon tomorrow to raise funds for Kidney Research UK & Kidney Care UK thank you, & good luck 🏃‍♀️

Insightful meeting with Global Patient Alliance for Kidney Health learning how to translate my passion into something that has a tangible impact & use to policy makers & health officials.
Patient stories are at the centre of change, our journey is important yet I still feel like the imposter in the room!

Thank you Kidney Research UK for hosting Charlie's doll during the NHS Organ Donation💗🫀🫁 #waitingtolive campaign.
After a bit of time with our family Charlie the doll will be looking for his forever home, hopefully in a hospital setting supporting children with medical procedures 💜

😢that people assume we can’t be bothered be a living donor to Charlie. I can't put into words how💔it is to watch helplessly as his health declines because we were declined as donors. We don’t need judgement.
🙏don’t hate until you know the facts. 🙏don’t send hurtful messages.

📣 We are at 1,088 signatures - lets get to 1,200 by next week when we meet with the Scottish Health Minister!

Sign our petition urging the Scottish Government to make chronic kidney disease as a clinical priority.

Link below 👇

bit.ly/3SFANMJ

Tonight I light not one, but three candles.
One for those living in the hope of a life away from #dialysis
One for those who have received the #GiftOfLife
and one for all those living with grief due to #kidneydisease
Charlie 🕯️
#WorldKidneyDay
#KidneyAwareness
#kidneysmatter

I hope that by spreading #KidneyAwareness and talking about #KidneyDisease on #WorldKidneyDay people will have a better understanding of why #kidneysmatter
Thank you for your support.
Charlie 🙂

I am very grateful for every month, every day and every hour that #dialysis has kept me alive.

Charlie 🙂

#WorldKidneyDay
#KidneyAwareness
#kidneysmatter

I try very hard to be positive but here of a few of the things that make me sad about #kidneydisease #renalfailure
I'm not being self pitiful, just honest.
Charlie 🙂

#WorldKidneyDay
#KidneyAwareness
#kidneysmatter

Would you know how to calculate the fluid in a portion of curry, pie or casserole allowing for evaporation? What about the fluid in a piece of fruit or an ice cream?
Liquid medication counts as my allowance too.
Charlie 🙂
#WorldKidneyDay
#KidneyAwareness
#kidneysmatter

Research & prompt medical interventions mean that, so far, I have been able to receive treatment for all the #kidneydisease associated conditions that I have been diagnosed with.
Charlie 🙂
#WorldKidneyDay
#KidneyAwareness
#kidneysmatter

I suppose we are all a statistic on a list somewhere. I'd prefer not to be on a statistic on a list waiting for a #transplant

The organ with the biggest waiting list is #kidneys

Have you registered your #organdonation wishes
organdonation.nhs.uk/register-your-…

#WorldKidneyDay

Dialysis is not a cure for #renalfailure it keeps the patient alive until they receive a #transplant
#dialysis often leaves me exhausted, it's hard to explain how this actually feels; my body can't do what my brain wants it to do.
Charlie 🙂
#WorldKidneyDay
#kidneysmatter

Because the symptoms of #kidneydisease can be very subtle to start with, like me, a lot of people learn to live with how they feel because they think it is normal.

Charlie 🙂
#WorldKidneyDay
#KidneyAwareness
#kidneysmatter

Even when, as in my case, a transplant is inevitable, lifestyle changes are essential. People without a #kidneydisease diagnosis can benefit from making changes too, prevention is better than cure!
Charlie 🙂
#WorldKidneyDay
#KidneyAwareness
#kidneysmatter