Out now! Download the official poster for #RareDiseaseDay 2019 now available via rarediseaseday.org/downloads. Share it today to show your support for the rare disease community. #ShowYourRare

Now to hear about the most recent advances in #FMD from Professor Alexandre Persu, Cliniques Universitaires Saint-Luc, Bruxelles. #FMD2019

As well as the recognised phenotypes of focal, and multifocal #FMD, tortuosity may well become an important area of investigation. #FMD2019

Dr Adlam on the link between SCAD and FMD #FMD2019 FMD-Be FMDS_UK_Ireland NIHR Leicester BRC and CRF

#FMD2019 a great day, very informative and now more health professionals understanding #fibromuscularDysplasia thanks to our generous sponsors Kidney Care UK @kidneycareuk.bsky.social and Kidney Research UK

Prof David Adlam presenting at #FMD2019 Spontaneous Coronary Artery Dissection -Link with FMD at the First Uk and Ireland Patient Day on FMD. #fmd #scad #fmdscad #FibromuscularDysplasia #DFM #DSAC Beat SCAD UK FMDS_UK_Ireland

We are driving the launch of an exciting new project @Rare2030 with support of MEP & Parliamentary Advocate for Rare Diseases Frédérique Ries. Rare 2030 looks to the future of rare disease policy for the next 20 years

Dr David Adlam talks #SCADheart #research, findings, #genetics, #PHACTR1, international collaborations plus #awareness raising efforts - presented at Beat SCAD Conference June 2018 NIHR Leicester BRC and CRF Leicester's Hospitals Research at Leicester's Hospitals British Heart Foundation FMDS_UK_Ireland youtube.com/watch?v=17q6II…

#DONORLAUNCH STRATFORD UPON AVON Inspirational guest speaker @SalfordRoyalNHS #FMD2019 patient info day Sally Bee shares her journey with #SCAD and #FMD and inspiring life mantras. RaDaR FMDS_UK_Ireland Beat SCAD UK FMDSA FMD-Be

We would like to take the opportunity to thank all of our 2019 Annual Meeting sponsors. Registration opens next week. Save the date:May 18th in Cleveland, Ohio Heart RN Ido Weinberg, MD Malissa Wood Kim Eagle Geoff Barnes Bryan Wells Adarsh Sunil EveryLife Foundation

So welcome! It was a wonderful event! #Scad #Scadsisters #FMD #support

Great to see this list of research priorities for #FMD

thank you tinachrys for all your hard work to make this very informative day happen. The FMDS_UK_Ireland patients really appreciate your efforts

it was!

Thank you to Jeffrey Olin, DO for presenting the Charles J. Tegtmeyer Annual Lecture: The (r)evolution in our Understanding of Fibromuscular Dysplasia today at #ISET2019!

great news for #FMD patients in the USA

Thank you BBC Radio NORTHAMPTON for giving me the opportunity to talk about living with rare diseases on Global Rare Disease Day (starts about 2.43.40) Beat SCAD UK FMDS_UK_Ireland PSC Support AIH Support Rare Disease UK bbc.co.uk/sounds/play/p0…

Speaking at the FMD Information Day in January, SCAD survivor Sally Bee talked about positive psychology and making good food choices to promote wellbeing youtube.com/watch?v=nIcJQx… #scadheart NIHR Leicester BRC and CRF FMDS_UK_Ireland FMD-Be

In my experience GPs are reluctant to engage or collaborate with #VCSE because they fear litigation so its not getting anywhere.