🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

An opportunity to share your views for patient partners 👇👇

Excited that our family could be part of this exciting project. I hope this picture can do a little to change some perspectives.

The movie is finished! It is gloriously done. I cried at the end. Thank you Dan, Big Beach, creative team, crew, and incredible actors! Thank you, Wendy. And Larry, Crystal, Cory, and Damon. And thank you, Lord, for allowing this masterpiece to be shared with the world. 🙏🏾💕🦋

Important research into #PatientEngagement #PPI #PatientPartners

We are hiring at The Hospital for Sick Children: Program Manager, Knowledge Mobilization and Patient Engagement, CHILD Study. linkedin.com/jobs/view/3865…

“Patient partners are at the centre of what we do everyday” Thank you Peter J Gill for sharing PIRN’s approach to research with an international audience dedicated to #PHM Pediatric Academic Societies #PAS2024

A great opportunity for those interested in in clinical trials.

I'm going to use this in my doctoral class on public health communication. The old model of communication was all about preventing panic. But the cost of that is increased distrust. The only way out of the much of distrust is with overwhelming transparency... and that means DATA.

Please have a read of the new editorial I have written in Journal of Child Health Care. It is about public and community involvement in childhood disability research. doi.org/10.1177/136749… A huge thank you to A/Prof. Stephen McKeever 💛💙 for your encouragement. I hope you find it interesting.

Parents, youth, families - Help us to improve inpatient care for children with medical complexity! We have just launched a survey (only 3 questions, < 15minutes) - let us know your priorities and recommendations that we can guide our work moving forward! Adult/parent version 1st

Important research for my children with medical complexity peeps. Consider completing this short survey.

For my followers who don’t know why I do the work I do - read on.

In 2022, 4-year-old Michael received an individual gene therapy at SickKids for #SPG50, an ultra-rare neurodegenerative condition. Today, #SKResearch shows Michael’s progress & the potential impact his clinical trial holds for genetic medicine.🧬 Read ➡️ bit.ly/3La4mBv

Come work with us in PIRNCanada! We are hiring a Research Coordinator to oversee several multi-centre prospective studies in hospitalized children. Rewarding project, great team, impactful work! See link for details: career.sickkids.ca:8001/psc/CRPRD/CARE… Sanjay Mahant The Hospital for Sick Children (SickKids) IHPME

From referrals, to registration, to follow-ups, coordinating clinic visits can be complicated. That's why SickKids staff have been listening to experiences of patients & caregivers. With your help, we’re working on ways to improve & make the process more efficient for everyone.

Come work with us in PIRNCanada! We are hiring a Research Coordinator to oversee several multi-centre prospective studies in hospitalized children. Rewarding project, great team, impactful work! See link for details: career.sickkids.ca:8001/psc/CRPRD/CARE… Sanjay Mahant The Hospital for Sick Children (SickKids) IHPME

If you've spent time at SickKids as a patient, family or caregiver, we want to hear from you! Help inform SickKids' priorities and areas of focus in this 10-min survey👉 bit.ly/3WJ8BuE Thanks for your help in shaping the future of child and youth health!

'Parent caregivers of adult children must be allocated the same support as parents w younger children because many adults w #disabilities continue relying on their parents.' policyoptions.irpp.org/magazines/sept…

The James Lind Alliance Critical Care Medicine Priority Setting Partnership is inviting participants to select the top 10 most important questions in critical care medicine from the perspectives of patients/families (caregivers, relatives, friends). Srinivas Murthy, MD, MHSc #ICU #PICU

“Embrace the chaos the same way you embrace the calm.” A great way to look at life.