FamilieSCN2A (@familiescn2a) 's Twitter Profile
FamilieSCN2A

@familiescn2a

Our vision is to find effective treatments and a cure for SCN2A disorders.

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linkhttp://www.scn2a.org calendar_today15-11-2014 14:06:33

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During the SCN2A Family & Professional Conference, we will recognize 4 professionals for their extraordinary efforts that align our Core Values. The deadline for nominations is June 21st. For more info & to nominate today: docs.google.com/forms/d/e/1FAI…

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📢  Last Call for Poster Abstract Submissions: Due May 31st! Don't miss the chance to showcase your work at our 2024 conference. We're seeking novel research that advances our understanding of SCN2A-related disorders. Submit your abstract today! scn2a.org/conference.html

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Tomorrow is the last day to register for the 2024 SCN2A Family & Professional Conference, July 31st - August 3rd at Sheraton Park Hotel, Anaheim! Join us for informative sessions, networking, and fun activities. Don’t miss out—register by May 31st! secure.qgiv.com/for/familiescn…

Tomorrow is the last day to register for the 2024 SCN2A Family & Professional Conference, July 31st - August 3rd at Sheraton Park Hotel, Anaheim! Join us for informative sessions, networking, and fun activities. Don’t miss out—register by May 31st! secure.qgiv.com/for/familiescn…
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Support the SCN2A Warrior Riders! Every donation helps those with SCN2A and funds research for better treatments. We're aiming to raise $30k, and donations over $20k are doubled up to $30k by the Orphan Disease Center at Penn Medicine. Donate now: charity.pledgeit.org/t/uo7Z6r1zIw

Support the SCN2A Warrior Riders! Every donation helps those with SCN2A and funds research for better treatments. We're aiming to raise $30k, and donations over $20k are doubled up to $30k by the Orphan Disease Center at Penn Medicine. Donate now: charity.pledgeit.org/t/uo7Z6r1zIw
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Today, the SCN2A Warrior Riders team is participating in the Million Dollar Bike Ride to fund research for SCN2A! Thank you to everyone who has joined, donated, or spread the word! We're still short of our goal, but there's still time to donate: charity.pledgeit.org/t/uo7Z6r1zIw

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What an incredible weekend @ #PennMedMDBR2024! We came together to ride, walk, volunteer, and cheer each other on. Huge thanks to everyone who participated and supported us! Special gratitude to the ODC for their matching gift to #cureSCN2A. donate: lnkd.in/emwHF9Sr

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Nominate someone who has made an impact in the SCN2A community this year! At our summer conference, we'll recognize 4 individuals for embodying our Core Values: URGENCY, INTEGRITY, COLLABORATION, and INCLUSION. Deadline: June 21st. Nominate today! docs.google.com/forms/d/e/1FAI…

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⛳ Registration is open for the Golf Fore SCN2A on Aug 19, 2024, at Springville Country Club, NY! Looking for players, sponsors, volunteers, donations, and gift basket contributions. Spots are filling up fast, so learn more and secure your place today at GolfForeSCN2A.com.

⛳ Registration is open for the Golf Fore SCN2A on Aug 19, 2024, at Springville Country Club, NY! Looking for players, sponsors, volunteers, donations, and gift basket contributions. Spots are filling up fast, so learn more and secure your place today at GolfForeSCN2A.com.
FamilieSCN2A (@familiescn2a) 's Twitter Profile Photo

Nominate someone impactful in the SCN2A community by June 21st! We'll recognize 4 individuals at the SCN2A Family & Professional Conference for embodying our Core Values: URGENCY, INTEGRITY, COLLABORATION, INCLUSION. Learn more & nominate today! docs.google.com/forms/d/e/1FAI…

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The 2024 SCN2A Family & Professional Conference is SOLD OUT for in-person attendance! Join us virtually by registering at scn2a.org/conference.html. And today is the last day to nominate someone for a Core Value Award! Nominate here: docs.google.com/forms/d/e/1FAI…

The 2024 SCN2A Family & Professional Conference is SOLD OUT for in-person attendance! Join us virtually by registering at scn2a.org/conference.html.

And today is the last day to nominate someone for a Core Value Award! Nominate here: docs.google.com/forms/d/e/1FAI…
FamilieSCN2A (@familiescn2a) 's Twitter Profile Photo

📢Just dropped.... The SCN2A Family & Professional Conference and Research Roundtable agendas are posted! Check out the rich, educational content and don't forget to register to join us virtually! scn2a.org/conference.html

📢Just dropped....
The SCN2A Family & Professional Conference and Research Roundtable agendas are posted!  Check out the rich, educational content and don't forget to register to join us virtually! scn2a.org/conference.html
FamilieSCN2A (@familiescn2a) 's Twitter Profile Photo

Since 2019 we have been funding research grants to facilitate preliminary investigations into #SCN2A. Join us LIVE (on Facebook), Wednesday during our Research Roundtable, as we announce our 2024 Action Potential Grant winners. 🎖️ facebook.com/FamilieSCN2AFo…

Since 2019 we have been funding research grants
to facilitate preliminary investigations into #SCN2A.

Join us LIVE (on Facebook), Wednesday during our Research Roundtable, as we announce our 2024 Action Potential Grant winners. 🎖️ facebook.com/FamilieSCN2AFo…
FamilieSCN2A (@familiescn2a) 's Twitter Profile Photo

Our CSO, Shawn Egan, led a fireside chat last week at the #SCN2Aconference. The topic was ‘patient participation.’ The #SCN2A community believes the fastest way to get to treatments and a cure is through participation in research. Thank you to @LongboardP, Neurocrine Biosciences Tevard Biosciences

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“Success is the residue of planning.” — Benjamin Franklin Dedicated staff and trustees spent a full day strategic planning to ensure the continued success of the FamilieSCN2A Foundation. We are especially grateful and honored to have SCN2A Germany and Italy join us this year!

“Success is the residue of planning.” — Benjamin Franklin

Dedicated staff and trustees spent a full day strategic planning to ensure the continued success of the FamilieSCN2A Foundation. We are especially grateful and honored to have SCN2A Germany and Italy join us this year!
FamilieSCN2A (@familiescn2a) 's Twitter Profile Photo

📣 Please join us in congratulating Jennifer Kearney, PhD as the #MDBR2024 awardee! Dr. Kearney created the first ever #SCN2a mouse model & also serves on the Foundation’s SAB. Thank you UPenn Million Dollar Bike Ride by ODC, riders, volunteers and donors! #SCN2A #cureSCN2A

📣 Please join us in congratulating Jennifer Kearney, PhD as the #MDBR2024 awardee! Dr. Kearney created the first ever #SCN2a mouse model & also serves on the Foundation’s SAB. 

Thank you <a href="/MDBRide4Rare/">UPenn Million Dollar Bike Ride by ODC</a>, riders, volunteers and donors!
#SCN2A 
#cureSCN2A