Daniel Barvin (@familialals) 's Twitter Profile
Daniel Barvin

@familialals

Husband and Father | Breaking down the stigma associated with hereditary disease | Inspiring others to FIND OUT and TAKE ACTION |

ID: 1183752215657435145

calendar_today14-10-2019 14:31:50

104 Tweet

209 Takipçi

64 Takip Edilen

Coya Therapeutics (@coyatx) 's Twitter Profile Photo

Coya will present proof-of-concept clinical data from two open-label academic studies conducted at Houston Methodist at multiple scientific conferences throughout the year. Learn more: bit.ly/3YkWNMY $COYA

Coya will present proof-of-concept clinical data from two open-label academic studies conducted at <a href="/MethodistHosp/">Houston Methodist</a> at multiple scientific conferences throughout the year. Learn more: bit.ly/3YkWNMY $COYA
Jean C9orf72 (@jeanc9orf72) 's Twitter Profile Photo

ALS should be eligible for NIA / ADRD funding without explicitly making a connection to FTD or LATE ( that connection is implicit regardless!) ALS Advocacy Brian Wallach this is doable and would be a big boost for researchers.

Jean C9orf72 (@jeanc9orf72) 's Twitter Profile Photo

To think of the thousands of times in the last nearly 40 years a patronizing neurologist has assured a genetic als family that they have nothing to worry about for their kids , and yet still the field says this, and still they fight any push for earlier treatment.

Daniel Barvin (@familialals) 's Twitter Profile Photo

Listened to your podcast Peter Attia with Tim Ferriss and honed in on your comment regarding there being no solutions for neurodegenerative diseases. I wanted to key you into my company Coya Therapeutics and the exciting data we just released in ALS. Let's chat! businesswire.com/news/home/2023…

Daniel Barvin (@familialals) 's Twitter Profile Photo

Imagine, you'd just married your college sweetheart. Six months later, you find out you're at risk for a genetic mutation that could cause you to lose your mental or physical capacity before leading to an early death. Would you find out if you carried that mutation?

Daniel Barvin (@familialals) 's Twitter Profile Photo

Heading to NYC for the #AFTD Rising Hope Gala! Thrilled to connect, collaborate, and engage with fellow champions dedicated to forging a future free from FTD. Let's turn hope into action and pave the way towards a world without FTD. #FTD #RisingHopeGala EndTheLegacy

Coya Therapeutics (@coyatx) 's Twitter Profile Photo

Our VP of Operations and Patient Advocacy Daniel Barvin is from a Genetic ALS family. This #BrainDiseaseAwarenessMonth, learn more from Daniel's story by watching his presentation at the Reel Abilities, UP Abilities event in Houston. youtube.com/watch?v=V32wax… #ALS #ENDALZ

Daniel Barvin (@familialals) 's Twitter Profile Photo

The time is now. Preventing the diseases we are genetically predisposed for, is the next generation of healthcare. EndTheLegacy is leading this fight. Take notice – genetic testing is becoming ubiquitous. Help us fight for your future.

Daniel Barvin (@familialals) 's Twitter Profile Photo

I love bikes, do I ride because of the thrill? Because I know one day I might not be able to? What would you do more if you knew your future would be cut short by a neurodegenerative disease?

Daniel Barvin (@familialals) 's Twitter Profile Photo

The fight against genetic ALS and FTD is now the Rice Business cover story! Proud to drive change through EndTheLegacy and build hope for the neurodegenerative disease community with @CoyaTherapeutics. This is just the beginning #GeneticALS #FTD #ALS business.rice.edu/magazine/featu…

Coya Therapeutics (@coyatx) 's Twitter Profile Photo

Coya's first employee, Daniel Barvin, VP of Operations and Patient Advocacy, has been fighting for those suffering from #neurodegenerative diseases most of his life, and he has a good reason - a genetic mutation he's inherited that is a marker for future FTD or ALS development.

Coya Therapeutics (@coyatx) 's Twitter Profile Photo

Coya's VP of Operations and Patient Advocacy Daniel Barvin recently joined Jack Faris and Anna Faris on the Pacific Northwest Research Institute Rare Disease, Real Progress podcast to talk about genetic testing and researching important therapies for those who may be predisposed to #neurodegenerative