Daniel Barvin
@familialals
Husband and Father | Breaking down the stigma associated with hereditary disease | Inspiring others to FIND OUT and TAKE ACTION |
ID: 1183752215657435145
14-10-2019 14:31:50
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Thank you Laynie Dratch, ScM CGC for giving me a platform!
Coya will present proof-of-concept clinical data from two open-label academic studies conducted at Houston Methodist at multiple scientific conferences throughout the year. Learn more: bit.ly/3YkWNMY $COYA
ALS should be eligible for NIA / ADRD funding without explicitly making a connection to FTD or LATE ( that connection is implicit regardless!) ALS Advocacy Brian Wallach this is doable and would be a big boost for researchers.
Listened to your podcast Peter Attia with Tim Ferriss and honed in on your comment regarding there being no solutions for neurodegenerative diseases. I wanted to key you into my company Coya Therapeutics and the exciting data we just released in ALS. Let's chat! businesswire.com/news/home/2023…
Heading to NYC for the #AFTD Rising Hope Gala! Thrilled to connect, collaborate, and engage with fellow champions dedicated to forging a future free from FTD. Let's turn hope into action and pave the way towards a world without FTD. #FTD #RisingHopeGala EndTheLegacy
Our VP of Operations and Patient Advocacy Daniel Barvin is from a Genetic ALS family. This #BrainDiseaseAwarenessMonth, learn more from Daniel's story by watching his presentation at the Reel Abilities, UP Abilities event in Houston. youtube.com/watch?v=V32wax… #ALS #ENDALZ
The time is now. Preventing the diseases we are genetically predisposed for, is the next generation of healthcare. EndTheLegacy is leading this fight. Take notice – genetic testing is becoming ubiquitous. Help us fight for your future.
The fight against genetic ALS and FTD is now the Rice Business cover story! Proud to drive change through EndTheLegacy and build hope for the neurodegenerative disease community with @CoyaTherapeutics. This is just the beginning #GeneticALS #FTD #ALS business.rice.edu/magazine/featu…
Coya's first employee, Daniel Barvin, VP of Operations and Patient Advocacy, has been fighting for those suffering from #neurodegenerative diseases most of his life, and he has a good reason - a genetic mutation he's inherited that is a marker for future FTD or ALS development.
Coya's VP of Operations and Patient Advocacy Daniel Barvin recently joined Jack Faris and Anna Faris on the Pacific Northwest Research Institute Rare Disease, Real Progress podcast to talk about genetic testing and researching important therapies for those who may be predisposed to #neurodegenerative