FSU Insititute for Pediatric Rare Diseases (@fsuiprd) 's Twitter Profile
FSU Insititute for Pediatric Rare Diseases

@fsuiprd

Our mission is to advance research, education, clinical care, and advocacy for pediatric rare diseases.

ID: 1785365177304784896

linkhttps://med.fsu.edu/iprd/home calendar_today30-04-2024 17:46:57

106 Tweet

47 Followers

102 Following

FSU Insititute for Pediatric Rare Diseases (@fsuiprd) 's Twitter Profile Photo

📢 A recent BBC report highlights that NHS England is planning to offer genome sequencing for every newborn to assess their risk of hundreds of diseases over their lifetime. Explore how this aligns with IPRD’s strategic initiative: med.fsu.edu/spotlight/iprd…

📢 A  recent BBC report highlights that NHS England is planning to offer  genome sequencing for every newborn to assess their risk of hundreds of  diseases over their lifetime.

Explore how this aligns with IPRD’s strategic initiative: med.fsu.edu/spotlight/iprd…
FSU College of Medicine (@fsucom) 's Twitter Profile Photo

The 𝗦𝘂𝗻𝘀𝗵𝗶𝗻𝗲 𝗚𝗲𝗻𝗲𝘁𝗶𝗰𝘀 𝗔𝗰𝘁 creates a new title for FSU Insititute for Pediatric Rare Diseases, provides funding for state-wide, voluntary genetic screening for newborns and much more. Join us July 9 at 10 a.m. to learn more. youtube.com/live/rxU9G6-6p…

The 𝗦𝘂𝗻𝘀𝗵𝗶𝗻𝗲 𝗚𝗲𝗻𝗲𝘁𝗶𝗰𝘀 𝗔𝗰𝘁 creates a new title for <a href="/FSUIPRD/">FSU Insititute for Pediatric Rare Diseases</a>, provides funding for state-wide, voluntary genetic screening for newborns and much more. Join us July 9 at 10 a.m. to learn more. 
youtube.com/live/rxU9G6-6p…
Rep. Adam Anderson (@adamandersonfl) 's Twitter Profile Photo

☀️🧬We had an amazing turnout at the 1st stop of our “Sunshine Genetics” road show! There’s so much excitement & energy around this truly transformative initiative & we’re just getting started! We all had a BIG surprise when Florida State University FSU President Richard McCullough presented a $2m check to

☀️🧬We had an amazing turnout at the 1st stop of our “Sunshine Genetics” road show! There’s so much excitement &amp; energy around this truly transformative initiative &amp; we’re just getting started!

We all had a BIG surprise when <a href="/FloridaState/">Florida State University</a> <a href="/PresMcCullough/">FSU President Richard McCullough</a> presented a $2m check to
FSU President Richard McCullough (@presmccullough) 's Twitter Profile Photo

Thanks to the leadership of Rep. Adam Anderson, the Florida Legislature and Ron DeSantis, the Sunshine Genetics Act officially establishes the Florida Institute for Pediatric Rare Diseases at FSU (Florida Institute for Pediatric Rare Diseases @FSU) and gives parents the option of free genetic sequencing of their

FSU Research (@fsuresearch) 's Twitter Profile Photo

The Sunshine Genetics Act will support Florida State University in its work to address pediatric rare diseases and help millions of children around the state. Read more in Tallahassee Democrat ➡️ tallahassee.com/story/news/loc… #FSUResearch | #FSUImpact | Florida Institute for Pediatric Rare Diseases @FSU

FSU Health (@fsu_health) 's Twitter Profile Photo

Florida surges to the forefront of pediatric rare disease research with boost from the Sunshine Genetics Act. The act, championed by Rep. Adam Anderson and signed into law by Gov. Ron DeSantis, establishes a five-year genetic sequencing pilot program for newborns and creates the

Rep. Adam Anderson (@adamandersonfl) 's Twitter Profile Photo

We’re bringing the right players to the team to win big for Florida families! The time spent with Tampa General Hospital, USF Health & Florida Institute for Pediatric Rare Diseases @FSU to discuss the implementation of the Sunshine Genetics newborn screening program was a very productive. The future of medicine is coming to FL!

We’re bringing the right players to the team to win big for Florida families! 

The time spent with <a href="/TGHCares/">Tampa General Hospital</a>, <a href="/USFHealth/">USF Health</a> &amp; <a href="/FSUIPRD/">Florida Institute for Pediatric Rare Diseases @FSU</a> to discuss the implementation of the Sunshine Genetics newborn screening program was a very productive. 

The future of medicine is coming to FL!