FSHD Society British Columbia (@fshd_bc) 's Twitter Profile
FSHD Society British Columbia

@fshd_bc

Join the local FSHD Society chapter in BC.
Support, resources, information, research, #FSHDhacks,#cureFSHD.

We are stronger together.

Tweets by @Asifa604

ID: 1450947666641227777

linkhttps://www.fshdbritishcolumbia.com/ calendar_today20-10-2021 22:11:11

236 Tweet

182 Followers

242 Following

FSHD Society (@fshdsociety) 's Twitter Profile Photo

This week, join us for Care Partner Hour and Women on Wellness. It's easy to join! Both meetings will happen virtually via Zoom. Tues. Oct. 31: Care Partner Hour: bit.ly/401tf9q Wed. Nov. 1: Women on Wellness: bit.ly/3Qe0SBy #FSHD #CureFSHD #FSHDSociety

This week, join us for Care Partner Hour and Women on Wellness. It's easy to join! Both meetings will happen virtually via Zoom. 

Tues. Oct. 31: Care Partner Hour: bit.ly/401tf9q
Wed. Nov. 1: Women on Wellness: bit.ly/3Qe0SBy

#FSHD #CureFSHD #FSHDSociety
FSHD Society (@fshdsociety) 's Twitter Profile Photo

Ensuring that promising FSHD therapies do not fail due to preventable hurdles is central to our mission and our work in Project Mercury. Global leaders will convene tomorrow to discuss improving FSHD clinical trials for patients and sites. Learn more: ow.ly/9xMY50Q8YKh

FSHD Society (@fshdsociety) 's Twitter Profile Photo

FSHD in the Spotlight! Tune in to see Michael Dickson wear custom cleats as part of the "My Cause, My Cleats" campaign. His cleats support FSHD Global Research Foundation. Thurs, Nov 30 @ 8:15pm ET | 7:15 CT | 6:15 MT | 5:15 PT #FSHD #MuscularDystrophy #RareDisease #Neuromuscular

FSHD in the Spotlight! Tune in to see Michael Dickson wear custom cleats as part of the "My Cause, My Cleats" campaign. His cleats support FSHD Global Research Foundation. Thurs, Nov 30 @ 8:15pm ET | 7:15 CT | 6:15 MT | 5:15 PT
#FSHD #MuscularDystrophy #RareDisease #Neuromuscular
FSHD Society British Columbia (@fshd_bc) 's Twitter Profile Photo

Check out this resource for caregivers from FSHD Society. Great information on how FSHD impacts someone and ways friends and family can support them. #curefshd #fshd #musculardystrophy #nmd #Caregivers #raredisease fshdsociety.org/wp-content/upl…

FSHD Society (@fshdsociety) 's Twitter Profile Photo

The FSHD Society is proud to have a seat at the table today as part of Project Mercury. Follow Project Mercury to stay up to date about how this patient-led collaborative plans to tackle obstacles in FSHD treatments from a global perspective. #CureFSHD #FSHD

FSHD Society British Columbia (@fshd_bc) 's Twitter Profile Photo

For those with rare diseases waiting for a cure, Project Mercury is everything. This project ensures everyone has access to treatment around the world. Imagine having a cure and not being able to afford it or access it in your country. This is a model providing real hope. ❤️🙏

FSHD Society (@fshdsociety) 's Twitter Profile Photo

Read about taking a multifaceted approach to treating your FSHD symptoms on our blog! In addition to Dr. Voermans' post, you can catch up on other pieces, like “The Fact Alliance,” “Kitchen Confidential,” and “2023 International Research Congress Summary.” bit.ly/blogFSHD

Read about taking a multifaceted approach to treating your FSHD symptoms on our blog! In addition to Dr. Voermans' post, you can catch up on other pieces, like “The Fact Alliance,” “Kitchen Confidential,” and “2023 International Research Congress Summary.” bit.ly/blogFSHD
Friends FSH Research (@fshresearch) 's Twitter Profile Photo

FSHD Society British Columbia Fred Hutchinson Cancer Center The spotlighted research was funded by the National Institutes of Health, the Friends of FSH Research, and the Chris Carrino Foundation for FSHD. Friends of FSH Research is proud to have supported the key investigator of this research Danielle Hamm since 2020. #fshfriends

Avidity Biosciences, Inc. (@aviditybio) 's Twitter Profile Photo

#ICYMI our CEO Sarah Boyce was featured in BiotechTV’s spotlight series where she spoke about Avidity’s AOCs™ platform, our approach to treating rare diseases and our three programs in clinical development for #DM1, #DMD and #FSHD. Watch the full video: biotechtv.com/post/avidity-b…

WMS (@worldmusclesoc) 's Twitter Profile Photo

#6 Regenerating human skeletal muscle forms an emerging niche in vivo to support PAX7 cells. @NatCellBiol. tinyurl.com/4j7h7tpf

Avidity Biosciences, Inc. (@aviditybio) 's Twitter Profile Photo

We are excited to share our corporate priorities & catalysts for the year ahead. We plan to initiate the global Phase 3 HARBOR™ trial for adults living with DM1 & report data from all three ongoing clinical programs targeting three rare muscle diseases: #DM1, #DMD44 & #FSHD.