FSHD Society British Columbia
@fshd_bc
Join the local FSHD Society chapter in BC.
Support, resources, information, research, #FSHDhacks,#cureFSHD.
We are stronger together.
Tweets by @Asifa604
ID: 1450947666641227777
https://www.fshdbritishcolumbia.com/ 20-10-2021 22:11:11
236 Tweet
182 Followers
242 Following
A vital part of the quest for a cure - access. FSHD Canada
Check out this resource for caregivers from FSHD Society. Great information on how FSHD impacts someone and ways friends and family can support them. #curefshd #fshd #musculardystrophy #nmd #Caregivers #raredisease fshdsociety.org/wp-content/upl…
The FSHD Society is proud to have a seat at the table today as part of Project Mercury. Follow Project Mercury to stay up to date about how this patient-led collaborative plans to tackle obstacles in FSHD treatments from a global perspective. #CureFSHD #FSHD
For those with rare diseases waiting for a cure, Project Mercury is everything. This project ensures everyone has access to treatment around the world. Imagine having a cure and not being able to afford it or access it in your country. This is a model providing real hope. ❤️🙏
fredhutch.org/en/news/spotli… Fred Hutchinson Cancer Center continues to unravel the mysterious and complex #DUX4 #fshd #solvefshd #curefshd #musculardystrophy #nmd
FSHD Society British Columbia Fred Hutchinson Cancer Center The spotlighted research was funded by the National Institutes of Health, the Friends of FSH Research, and the Chris Carrino Foundation for FSHD. Friends of FSH Research is proud to have supported the key investigator of this research Danielle Hamm since 2020. #fshfriends
#ICYMI our CEO Sarah Boyce was featured in BiotechTV’s spotlight series where she spoke about Avidity’s AOCs™ platform, our approach to treating rare diseases and our three programs in clinical development for #DM1, #DMD and #FSHD. Watch the full video: biotechtv.com/post/avidity-b…