FND FrieNDs (@fndfriendsuk) 's Twitter Profile
FND FrieNDs

@fndfriendsuk

Registered charity 1176608. Supporting adults & children affected by Functional Neurological Disorder (FND) in the South West of England.

ID: 1410592555776069632

linkhttp://www.fndfriends.com calendar_today01-07-2021 13:39:51

65 Tweet

516 Followers

63 Following

Tom Plender (@tomplender) 's Twitter Profile Photo

Here's the interview I did on the GB news morning show with Angela Rippon. I discuss my #FND journey and the current desperate situation for FND patients. youtube.com/watch?v=8EMspX…

Here's the interview I did on the GB news morning show with Angela Rippon. I discuss my #FND journey and the current desperate situation for FND patients.  youtube.com/watch?v=8EMspX…
Kevin Foster (@kevin_j_foster) 's Twitter Profile Photo

Good to meet the team from FND Friends. We discussed the issues faced by those diagnosed with this condition & how we can work together to secure access to treatment services for #Torbay residents. #BoostTorbay #TorbayHour

Good to meet the team from FND Friends. We discussed the issues faced by those diagnosed with this condition & how we can work together to secure access to treatment services for #Torbay residents. #BoostTorbay #TorbayHour
FND Action (@fndaction) 's Twitter Profile Photo

It's FND Awareness Day UK today!! Check out the online event today - first session starts at 9am! For further information on how to get involved please visit fndaction.org.uk/fnd-awareness-… Please add & RT the hashtags #Voices4FND #YoungVoices4FND

It's FND Awareness Day UK today!!
Check out the online event today - first session starts at 9am!
For further information on how to get involved please visit fndaction.org.uk/fnd-awareness-… 
Please add & RT the hashtags #Voices4FND #YoungVoices4FND
FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

There's another FND FrieNDs account but just so we know, this FNDFrieNDsUK is our real & current 1. Feel free to drop us a line on our official website if you wish to verify. fndfriends.com/contact-us

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

Join today to ensure that you stay constantly updated. From April we're starting our email newletter again! :) Go to: fndfriends.com/contact-us/

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

1 podcast we've recently been advising everyone to listen to is 1 from the Functional Neurological Disorder Society Really interesting. It interviews so many top specialists & is great at updating on cutting edge current research. Elizabeth Mallam Dr Leo Russell #FND #FNDUK #Podcast

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

Thanks to Falcon Digital sponsoring us we are able to introduce you to Brian the Robot. Launched him on Saturday! Already his story seems to explain FND so well to kids (& adults). His story: brian.fndfriends.com #FND #Voices4FND #Robot #Story falcondigital.co.uk

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

Thanks so much to Thedisabilitysportsnetwork for visiting the squad this morning at SuABC Adaptive Squad . Club where 1 of our FNDers is at. Can't wait to see what else you have to come! British Rowing #FND #FNDUK #Parasport #StratfordUponAvon #Warickshire

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

Recently a sports photographer was at #StratfordUponAvon's Boat Club to see the Adaptive (disabled) Squad. 1 member has FND. The sport accepts/includes any & all members without dispute (as long as safety is considered). British Rowing SuABC Adaptive Squad Thedisabilitysportsnetwork #Warwickshire

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

FND is in the media again! Yay! :) There's a nice aticle where our Chair (amanda hall) is interviewed raising the profile of #FND. It's in Take a Break magazine. Grab a copy today! Take a Break #Voices4FND #Devon #NewtonAbbot

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

Recently with the help of a few paediatric specialists we created a story to explain FND a lot better to kids. The story is at brian.fndfriends.com Really hope it helps. :D

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

We're running a drop in session on Fri 14th April for any FND patients, carers, friends or family. It's at Charcot Therapy Centre from 10am - 12pm. We'd love it if you can make it. :) #FND #Gloucester #Gloucestershire

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

Month ago, few orgs organised presentations for Awareness Day. There were some wonderful talks from specialist doctors. We've popped some on our website: fndfriends.com/awareness-day-… Nick Schindler FND Action FND Dimensions FND Australia Support Services Inc. #DrKasiaKowlowska #YoungVoices4FND #Voices4FND

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

FND Info can take a bit of poking around so we give all our members some really useful publicly available info that we've now popped on our website so do have a look: fndfriends.com/fnd-info

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

We're at Charcot Therapy Centre Therapy centre each 1st Fri of a month now for an #FND drop-in. Next 1 on 2nd June & also celebrating our 7 Yr birthday! #Gloucester #Gloucestershire

FND FrieNDs (@fndfriendsuk) 's Twitter Profile Photo

Someone's been in touch with us that needs people for a research study. Check the ad out here: fndfriends.com/wp-content/upl…