FMF & AID Global Association (@fmfandaid) 's Twitter Profile
FMF & AID Global Association

@fmfandaid

The FMF (Familial Mediterranean Fever) & AID (autoinflammatory diseases) is a non-profit umbrella organization registered in Zurich, Switzerland.

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linkhttp://fmfandaid.org calendar_today02-05-2018 22:05:20

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🧊 Raising Awareness for CAPS Cryopyrin-associated periodic syndrome (CAPS) is a rare genetic autoinflammatory disease that includes three forms: FCAS (mild), MWS (moderate), and NOMID/CINCA (severe). Help us spread the word and support the CAPS community.

🧊 Raising Awareness for CAPS
Cryopyrin-associated periodic syndrome (CAPS) is a rare genetic autoinflammatory disease that includes three forms: FCAS (mild), MWS (moderate), and NOMID/CINCA (severe). Help us spread the word and support the CAPS community.
FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

FMF & AID Global Association is raising awareness about FCAS2 (Familial Cold Autoinflammatory Syndrome Type 2), a rare genetic autoinflammatory disease. For more information, check out our informative box below.

FMF & AID Global Association is raising awareness about FCAS2 (Familial Cold Autoinflammatory Syndrome Type 2), a rare genetic autoinflammatory disease. For more information, check out our informative box below.
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Today, FMF & AID Global Association is spotlighting PAPA Syndrome (Pyogenic Arthritis, Pyoderma Gangrenosum, and Acne), a rare genetic autoinflammatory condition. Raising awareness helps patients receive earlier diagnosis and appropriate treatment.

Today, FMF & AID Global Association is spotlighting PAPA Syndrome (Pyogenic Arthritis, Pyoderma Gangrenosum, and Acne), a rare genetic autoinflammatory condition. Raising awareness helps patients receive earlier diagnosis and appropriate treatment.
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🌟Nach Monaten harter Arbeit ist unser jährliches Magazin endlich fertig! 🎉 Darin finden Sie die neuesten Nachrichten, Patientengeschichten aus aller Welt, und vieles mehr. Bitte teilen Sie es mit Freunden und Familie. Klicken Sie hier: fmfandaid.org/de/_files/ugd/…

🌟Nach Monaten harter Arbeit ist unser jährliches Magazin endlich fertig! 🎉 Darin finden Sie die neuesten Nachrichten, Patientengeschichten aus aller Welt, und vieles mehr. Bitte teilen Sie es mit Freunden und Familie. Klicken Sie hier: fmfandaid.org/de/_files/ugd/…
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🌟 It's Here! 🌟 After months of hard work, our yearly magazine is finally ready! 🎉 Inside, you'll find the latest news from the autoinflammatory community. 📖 Spread the word by sharing it with friends and family! Click here: fmfandaid.org/_files/ugd/74a…

🌟 It's Here! 🌟 After months of hard work, our yearly magazine is finally ready! 🎉
Inside, you'll find the latest news from the autoinflammatory community.
📖 Spread the word by sharing it with friends and family! Click here: fmfandaid.org/_files/ugd/74a…
FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

FMF & AID is developing videos to support the rare autoinflammatory community. We thank ElevenLabs for supporting our efforts. ElevenLabs is an AI Audio research and deployment company on a mission to make content universally accessible in any language and voice. #ElevenLabs

FMF &amp; AID is developing videos to support the rare autoinflammatory community. We thank <a href="/ElevenLabs/">ElevenLabs</a> for supporting our efforts. ElevenLabs is an AI Audio research and deployment company on a mission to make content universally accessible in any language and voice. #ElevenLabs
FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

🌍 Today is International Familial Mediterranean Fever (FMF) Day! 🌍 On this special day, we raise awareness about FMF, a rare autoinflammatory disease that affects many people worldwide. Help us spread awareness by sharing this post. #InternationalFMFDay

🌍 Today is International Familial Mediterranean Fever (FMF) Day! 🌍
On this special day, we raise awareness about FMF, a rare autoinflammatory disease that affects many people worldwide. Help us spread awareness by sharing this post. 
#InternationalFMFDay
FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

📷New Video Alert on International FMF Day! 📷 In honor of International Familial Mediterranean Fever (FMF) Day, we are excited to release our latest video: "The Use of Colchicine in Familial Mediterranean Fever". youtu.be/IFkc0NE6GLw

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📅 Today, September 25th, we raise awareness for Recurrent Idiopathic Pericarditis. This rare and often misunderstood condition affects many lives, yet remains under-recognized. Please share this informative box to help increase awareness.

📅 Today, September 25th, we raise awareness for Recurrent Idiopathic Pericarditis. 
This rare and often misunderstood condition affects many lives, yet remains under-recognized. 
Please share this informative box to help increase awareness.
FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

🧬 Understanding uSAID: Undifferentiated Systemic Autoinflammatory Disease 🧬 uSAID is a complex condition that must be treated. It can be an overwhelming journey for patients and their families. Awareness and early recognition are key to managing this rare disease.

🧬 Understanding uSAID: Undifferentiated Systemic Autoinflammatory Disease 🧬
uSAID is a complex condition that must be treated. It can be an overwhelming journey for patients and their families. Awareness and early recognition are key to managing this rare disease.
FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

📢 New Video Alert: Learn About Familial Mediterranean Fever (FMF) 📢 We have just released a new video that dives into the essentials of FMF—a rare genetic disease that affects many around the world. Help us spread awareness! ✨ Watch it here: youtu.be/-03gOBdWH_Y

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🌟 Exciting Announcement: New Podcast Series – Autoinflammation Decoded & Beyond.🎙️ In our very first episode (video and audio formats), we had the honor of speaking with Prof. Seth Masters from the Hudson Institute in Australia. youtu.be/1FEwyc2oDCY Soon also on Spotify. 🎧

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Our 1st podcast episode with Prof. Seth Masters is now also available on Apple and Spotify! Please share and help us raise awareness of autoinflammatory conditions! Apple: podcasts.apple.com/us/podcast/aut… Spotify: podcasters.spotify.com/pod/show/fmf--…

JCM MDPI (@jcm_mdpi) 's Twitter Profile Photo

#mdpijcm 🙌🙌Call for Reading Patient Experiences and Challenges in the Management of Autoinflammatory Diseases—Data from the International FMF & AID Global Association Survey,by Dr. Jürgen Rech et al. Views 6037😎 #autoinflammatory diseases mdpi.com/2684532

#mdpijcm
🙌🙌Call for Reading
Patient Experiences and Challenges in the Management of Autoinflammatory Diseases—Data from the International FMF &amp; AID Global Association Survey,by Dr. Jürgen Rech et al.
Views 6037😎
#autoinflammatory diseases
mdpi.com/2684532
FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

🎙️ Episode 2 of our Podcast Series "Autoinflammation Decoded & Beyond" is Now Live! 🎉 Our host Ellen interviews Sharon Kensell—Founder & Chair of the FMF & AID Australian Association. Spotify: spotifyanchor-web.app.link/e/NwwXaYV0gOb YouTube: youtu.be/tI5LyVkFLkE

FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

📢 Exciting News from the ImmunAID_EU Project! We are thrilled to share the Inflammasome Legacy Paper, the first in a series of results from the recently concluded ImmunAID project! 📄 Read the full document here: immunaid.fr/images/PDF/Leg…

FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

Autoinflammatory diseases are rare genetic conditions of the innate immune system, which cause debilitating and recurring symptoms. #periodicfevers #autoinflammatorydiseases #RareDiseaseDay2025

Autoinflammatory diseases are rare genetic conditions of the innate immune system, which cause debilitating and recurring symptoms.
#periodicfevers #autoinflammatorydiseases #RareDiseaseDay2025
FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

Live Now! 📷 Join us for an interview with Debbie, a patient living with Familial Mediterranean Fever. Hear her story, challenges, and insights firsthand. Tune in now! 📷 📷 Watch here: youtube.com/live/E8a5Vz9JB… #FMF #RareDiseaseDay #FMFandAID

FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

FMF & AID has completed the FMF Patient Journey in collaboration with ERN RITA. We would like to thank the clinicians, patients, and focus group moderators for their input and time. Please feel free to share it. ern-rita.org/jop3

FMF & AID Global Association (@fmfandaid) 's Twitter Profile Photo

FMF & AID is pleased to announce the publication of our first magazine of 2025 highlighting our participation in ImmunAID, This special edition is available in English, German, French, Spanish, and Italian on our website: fmfandaid.org/publications.

FMF &amp; AID is pleased to announce the publication of our first magazine of 2025 highlighting our participation in ImmunAID, This special edition is available in English, German, French, Spanish, and Italian on our website: fmfandaid.org/publications.