🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

➡️ JOIN OUR TEAM! The EveryLife Foundation is seeking an Annual Giving Manager to join our team. If you or someone you know fit this description tag them in this post or visit: everylifefoundation.org/careers/ #hiring #annualgivingmanager

Join @EveryLifeorg's upcoming RDLA Webinar on April 22 at 1PM ET where they'll discuss the first 100 days of this Congress and Administration, the impact on health care, and current rare disease landscape. us02web.zoom.us/webinar/regist…

#RAREis Scholarship Fund applications closes in a few days ! Thanks to the support of Amgen, EveryLife Foundation established this fund to enrich the lives of adults living with rare diseases by providing support for their educational pursuits. This year, one-time $5,000

🚨Proposed cuts to #Medicaid could put life-saving care out of reach for thousands in the rare disease community. Many rely on Medicaid for treatments, diagnostics, medical equipment, home healthcare, and caregiving support. Tell your Medicaid story and share it with your

➡️ JOIN OUR TEAM! The EveryLife Foundation is seeking a State Policy Manager to join our team. The State Policy Manager supports the Foundation’s state strategic priorities and works closely with advocates and policymakers to advance rare disease legislation. If you or

Medicaid makes a difference for so many families—and your story can help protect it. In collaboration with EveryLife Foundation and rare disease advocacy groups around the United States, FAST and AngelmanSyndromeFdn invite you to share your #IAmMedicaid story to Congress.

President Trump's proposed FY26 budget contains significant public health and biomedical research cuts that would devastate our rare disease ecosystem. Slashing support for NIH and public health programs will result in fewer diagnoses and life-saving treatments. For the 30

The EveryLife Foundation was excited to work alongside strong newborn screening advocates to send a letter to Secretary Kennedy to preserve our nation’s federal newborn screening system and reinstate the work of this important federal advisory committee. Signed by 272

"Medicaid isn’t just a policy, it’s what makes hope possible." For Sky Collins and her family, #Medicaid is a lifeline that helps their daughter live with independence, dignity, and connection through #HCBS Waivers. But proposed Medicaid funding cuts could threaten this vital

Next week, Congress is expected to continue work on the unique legislative process known as budget reconciliation. The first part of the process, a budget resolution that included instructions requiring a $880 billion cut from the committee that oversees Medicare, Medicaid, and

The Energy and Commerce Committee Committee continues budget reconciliation work, including potential Medicaid changes. Watch the livestream, patient stories are being shared to give a face to Medicaid participants. youtube.com/watch?v=_FHQYx… Your story matters! Share your Medicaid experience &

📣 New Study Projects Future of Approvals, Patients Treated, Costs, and Gaps in Treatment Options. The EveryLife Foundation and Tufts Medical Center published new research in the Journal of Managed Care & Specialty Pharmacy (JMCP) that provides insights into the future of

Important work from our colleagues at NEWDIGS at Tufts Medical Center + the EveryLife Foundation sheds light on the future of pediatric rare disease treatments. The outlook shows real potential, but also a critical need to accelerate progress. #RareDisease #TuftsMedicine

Happening Today! Let’s talk about Newborn Screening at the Rare Disease Congressional Caucus Briefing. Join us at the Dirksen Senate Office Building, Room G11, Washington, D.C. at 12-1pm ET. To register visit: share.hsforms.com/1zE67FfxvStqay…

‼️ URGENT: The House just passed a bill with the largest cut to Medicaid ever. This could strip health coverage from 13.7 million people - including 8.6 million who rely on Medicaid. This is devastating news for the rare disease community. Medicaid is a lifeline for diagnoses,

Join us for a Pride in Rare webinar, powered by the EveryLife Foundation, on June 3 at 5 PM ET: "Joyful Resistance and Critical Hope: How HIV/AIDS Advocacy Paved the Way for Today's Voices." Register below to join this interactive discussion on how LGBTQIA+ advocates helped

The EveryLife Foundation is proud to join the Partnership to Protect Coverage in the fight to stop proposed cuts to Medicaid being considered by the Senate, which would be devastating to the rare disease community. The time to call or write to your Senators is NOW! Our community