Emily Earle (@emilyearle5) 's Twitter Profile
Emily Earle

@emilyearle5

Mum of 3. Volunteer for CCAA (Kids with Arthritis) supporting families of children with a paediatric rheumatological condition. Views my own!

ID: 2463376188

linkhttps://www.ccaa.org.uk calendar_today25-04-2014 15:35:59

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ARMA (@wearearma) 's Twitter Profile Photo

📢Watch this space for the Act Now report coming Monday. MSK health inequalities caused by deprivation are significant – but additional MSK ill-health is avoidable. If we Act Now we can make a difference on #MSKInequalities.

📢Watch this space for the Act Now report coming Monday.

MSK health inequalities caused by deprivation are significant – but additional MSK ill-health is avoidable. 

If we Act Now we can make a difference on #MSKInequalities.
Joel Nelson (@joelvsarthritis) 's Twitter Profile Photo

💛 9 hours streamed this week so far 💛 214 live viewers 💛 7,000 minutes watched 💛 £200 RAISED FOR CCAA - Kids With Arthritis (JIA) Thank you! 😊 We go again tomorrow from 2pm.

💛 9 hours streamed this week so far
💛 214 live viewers
💛 7,000 minutes watched
💛 £200 RAISED FOR <a href="/CCAA_org/">CCAA - Kids With Arthritis (JIA)</a>

Thank you! 😊
We go again tomorrow from 2pm.
UCL Rheumatology for Adolescents and Young Adults (@ucl_rheumaya) 's Twitter Profile Photo

Celebrating World Young Rheumatic Diseases Day (WORD Day) today! The PReS Lupus working party have made this great video on why it's so important to raise awareness on #invisibleillness like juvenile #Lupus to improve our young patients' wellbeing! 👩‍🔬🌟👨‍🔬@working1371 Find out more at wordday.org 🌟

ARMA (@wearearma) 's Twitter Profile Photo

Proud to introduce the new Act Now report! Deprivation fuels MSK health inequalities. Act Now has actionable strategies to ensure equitable MSK care for all. Let's tackle #MSKInequalities head-on together! Tinyurl.com/MSKActNow

Proud to introduce the new Act Now report!

Deprivation fuels MSK health inequalities.

Act Now has actionable strategies to ensure equitable MSK care for all.

Let's tackle #MSKInequalities head-on together!

Tinyurl.com/MSKActNow
Joel Nelson (@joelvsarthritis) 's Twitter Profile Photo

We also have a very special guest joining me at 1pm (GMT) when Glenda Dalton, Vice-chair of CCAA, will be joining me to talk about the important work they do! justgiving.com/page/joel-ccaa

AYPH charity (@ayphcharity) 's Twitter Profile Photo

New report by ARMA looks at musculoskeletal health inequalities and deprivation, including children and young people with MSK conditions.

ARMA (@wearearma) 's Twitter Profile Photo

Moving MSK services into the community can improve access for those in deprived areas and address #MSKInequalities head-on. The Act Now report features innovative and inspiring examples of MSK community integration. 👇👇👇 tinyurl.com/MSKActNow

Moving MSK services into the community can improve access for those in deprived areas and address  #MSKInequalities head-on.

The Act Now report features innovative and inspiring examples of MSK community integration.
👇👇👇
tinyurl.com/MSKActNow
YoungArthritisWales (@youngarthritisw) 's Twitter Profile Photo

If you've not yet signed up for our UK wide online bookclubs, now running for ages 11-24, what are you waiting for? Read all about it here: versusarthritis.org/news/2024/janu… Then sign up via this link: forms.office.com/e/e2sTtBJmsr

If you've not yet signed up for our UK wide online bookclubs, now running for ages 11-24, what are you waiting for? 
Read all about it here: versusarthritis.org/news/2024/janu…
Then sign up via this link: forms.office.com/e/e2sTtBJmsr
Emily Earle (@emilyearle5) 's Twitter Profile Photo

I had a great time at #BSR24 in Liverpool volunteering for CCAA - Kids With Arthritis (JIA)! Enjoyed catching up with familiar faces & meeting new ones too. If anyone missed my talk 'Starting a JIA journey - what do families worry about...' pls get in touch & we can revisit for your team. #PaedRheum

I had a great time at #BSR24 in Liverpool volunteering for <a href="/CCAA_org/">CCAA - Kids With Arthritis (JIA)</a>! Enjoyed catching up with familiar faces &amp; meeting new ones too. If anyone missed my talk 'Starting a JIA journey - what do families worry about...' pls get in touch &amp; we can revisit for your team. #PaedRheum
BSR (@rheumatologyuk) 's Twitter Profile Photo

"Identity is a place I always start with when I see people one-to-one, giving the time to find out how they saw themselves pre-diagnosis, and what's changed after diagnosis." - John Butler, Paediatric Psychologist in #rheumatology #MentalHealthAwarenessWeek

Emily Earle (@emilyearle5) 's Twitter Profile Photo

Really enjoyed volunteering at @theIMPACT_study family workshop on Sat - so many families attended & were keen to share their experiences to help this exciting project. We were finding out what FAQs families have and what has helped them in the past alongside how tech might help!

Really enjoyed volunteering at @theIMPACT_study family workshop on Sat - so many families attended &amp; were keen to share their experiences to help this exciting project. We were finding out what FAQs families have and what has helped them in the past alongside how tech might help!
UK JIA Biologics Register (@bcrd_study) 's Twitter Profile Photo

🚨New research! 📰Published in Lancet Rheumatology The Lancet Rheumatology 💊Switching from a TNFi originator to a #biosimilar for #JIA❓ ✅We found children do just as well as those who remained on the originator (i.e. didn’t switch) 📹Learn more👇or read: thelancet.com/journals/lanrh…

Versus Arthritis (@versusarthritis) 's Twitter Profile Photo

Sfiyah, 10, has something to say about #JIA. It's time those in power listen and #TakeArthritisSeriously. Will you join Sfiyah in speaking up? 👇 versusarthritis.org/campaign-with-… #JuvenileIdiopathicArthritis #arthritis #GeneralElection2024

ClusterConsortium (@cluster_tweet) 's Twitter Profile Photo

🎉Huge congratulations to our CLUSTER researchers on this promising piece of research. 👁️Exploring how genetic information might tell us which patients with childhood arthritis are at higher risk of eye inflammation. 👉versusarthritis.org/news/2024/nove…

Dr Polly Livermore (@pollylivermore) 's Twitter Profile Photo

Calling 16-17 year old's and/or parents of children who have suffered acute pain in England in the last year & needed an ambulance, please share your experiences & sign up to the PANDA study👇communityandhealth.blogs.lincoln.ac.uk/2024/11/29/pan… CCAA - Kids With Arthritis (JIA) Versus Arthritis Great Ormond Street Hospital Charity Please share widely

Dr Lola Solebo 💙👶🏾👁️👩🏾‍💻 (@lolaeyedoc) 's Twitter Profile Photo

Children and families asked for more #uveitis research - and we listened (ucl.ac.uk/child-health/r…) So we are looking forward to hearing your voices again - thank you! redcap.link/churp Happy holidays!

Children and families asked for more #uveitis research - and we listened (ucl.ac.uk/child-health/r…)

So we are looking forward to hearing your voices again - thank you! 
redcap.link/churp
Happy holidays!
The BMJ (@bmj_latest) 's Twitter Profile Photo

"She is more than her disease and the best appointments are when you ask her about herself." This patient author describes attending her child’s frequent medical appointments and how interactions with healthcare professionals evolve over time bmj.com/content/390/bm…