Emily Nielsen(@EmilyDoesTech) 's Twitter Profileg
Emily Nielsen

@EmilyDoesTech

PhD student using a patient focused approach to investigate how to empower rare disease patients during their journey towards diagnosis

ID:1302918634780663816

calendar_today07-09-2020 10:37:56

19 Tweets

84 Followers

105 Following

Emily Nielsen(@EmilyDoesTech) 's Twitter Profile Photo

So honoured to receive the runner up award for my demonstration at conference!

See our paper if you want to find out our approach for conducting preliminary research on patient centred technology before we have access to patients👇
dl.acm.org/doi/10.1145/35…

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Alan Dix(@alanjohndix) 's Twitter Profile Photo

Engineering Interactive Systems Embedding AI Technologies a workshop at ACM EICS 2023. 27th June 2023. Submissions due 2nd June. EICSconf Swansea University Computational Foundry
sites.google.com/view/engineeri…

Engineering Interactive Systems Embedding AI Technologies a workshop at ACM EICS 2023. 27th June 2023. Submissions due 2nd June. @EICSconf #EICS @CompFoundry sites.google.com/view/engineeri…
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Anna R L Carter (She/Her)(@AnnaRLCarter) 's Twitter Profile Photo

Have a demo or want to explore multisensory interactions? Join us for our hybrid Scent InContext workshop on July 10th at DIS 2023 in Pittsburgh, PA. Submissions due by May 28th! Click here for details: hcibook.net/incontext/dis-……

Have a demo or want to explore multisensory interactions? Join us for our hybrid Scent InContext workshop on July 10th at DIS 2023 in Pittsburgh, PA. Submissions due by May 28th! Click here for details: hcibook.net/incontext/dis-…… #DIS2023
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Emily Nielsen(@EmilyDoesTech) 's Twitter Profile Photo

I had such an amazing time at ! So honoured to be the General Chair Assistant's assistant for a couple of the days and to see how much hard work went into this conference.

I had such an amazing time at #CHI2023! So honoured to be the General Chair Assistant's assistant for a couple of the days and to see how much hard work went into this conference.
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Emily Nielsen(@EmilyDoesTech) 's Twitter Profile Photo

So excited to be at ! Ask me about in the late and breaking poster session here 👇
programs.sigchi.org/chi/2023/my-sc…

You can read my paper here 👇 doi.org/10.1145/354454…

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Welsh Government(@WelshGovernment) 's Twitter Profile Photo

Today is 💚💙💜

We're joining the Global Chain of Lights and lighting our Cathays Park office in purple to shine the light on the 300 million people living with rare diseases.

Today is #RareDiseaseDay 💚💙💜 We're joining the Global Chain of Lights and lighting our Cathays Park office in purple to shine the light on the 300 million people living with rare diseases. #LightUpForRare
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Swansea University Computational Foundry(@CompFoundry) 's Twitter Profile Photo

🌍 JOIN US AND CHANGE THE WORLD 🌍

During her time with us, Saskia created a mindfulness app that helps users overcome loneliness and other mental health conditions.

2023 cohort applications open➡️ People-first.best

@ESPRC

vimeo.com/showcase/99778…

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Emily Nielsen(@EmilyDoesTech) 's Twitter Profile Photo

This is your last chance to participate as this questionnaire will close on Sunday. Don't miss out on the opportunity to have your voice heard!

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Emily Nielsen(@EmilyDoesTech) 's Twitter Profile Photo

Would you like to play a role in research to help create a better diagnostic experience for rare disease patients?

If you have a and you can spare 10 minutes, please take part in the following questionnaire: survey.swan.ac.uk/index.php/8632…

Would you like to play a role in research to help create a better diagnostic experience for rare disease patients? If you have a #RareDisease and you can spare 10 minutes, please take part in the following questionnaire: survey.swan.ac.uk/index.php/8632…
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Emily Nielsen(@EmilyDoesTech) 's Twitter Profile Photo

Honoured and excited to be in the UK quarter finals.

My 3MT talk discusses the challenges of rare disease diagnosis and my doctoral research which explores technology use to empower rare disease patients.

Check out my talk 'Think Zebra' here 👇

youtu.be/LKqp-FPXEXU

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Swansea University Computational Foundry(@CompFoundry) 's Twitter Profile Photo

If you have been diagnosed with a rare disease in the UK and your diagnosis took at least one year from your first appointment, we would love for you to be involved in a study we are running. Please get in touch with @EmilyNi79890129

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