Emily Nielsen
@EmilyDoesTech
PhD student using a patient focused approach to investigate how to empower rare disease patients during their journey towards diagnosis
ID:1302918634780663816
07-09-2020 10:37:56
19 Tweets
84 Followers
105 Following
So excited to be at #CHI2023 ! Ask me about #RareDisease #technology in the late and breaking poster session here 👇
programs.sigchi.org/chi/2023/my-sc…
You can read my paper here 👇 doi.org/10.1145/354454…
Today is #RareDiseaseDay 💚💙💜
We're joining the Global Chain of Lights and lighting our Cathays Park office in purple to shine the light on the 300 million people living with rare diseases.
#LightUpForRare
🌍 JOIN US AND CHANGE THE WORLD 🌍
During her time with us, Saskia created a mindfulness app that helps users overcome loneliness and other mental health conditions.
2023 cohort applications open➡️ People-first.best
@ESPRC #FullyFundedResearch
vimeo.com/showcase/99778…
This is your last chance to participate as this #RareDisease questionnaire will close on Sunday. Don't miss out on the opportunity to have your voice heard!
Would you like to play a role in research to help create a better diagnostic experience for rare disease patients?
If you have a #RareDisease and you can spare 10 minutes, please take part in the following questionnaire: survey.swan.ac.uk/index.php/8632…