EJayne Yates
@ejayneyates
personal views
ID: 1156888518712602624
01-08-2019 11:24:51
848 Tweet
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NICE has made the decision to treat tofersen, a specialised genetic therapy for a small subset of people with #ALS #MND developed in the UK, as a general therapy, condemning it to fail their assessment. We must change that decision. Sign the petition: ecampaigns.mndassociation.org/page/151379/pe…
Absolutely, I have many friends who are farmers, this announcement is just unfathomable.. what happened to saving British farming 🇬🇧 Jeremy Clarkson
Thank you to Nick, who is living with #MND and JJ Anisiøbi, who has been affected by MND, for courageously sharing their stories with us. It's clear that MND impacts every part of a person's life & you have given us greater insight into the challenges the MND community face.