Join our next ERN RARE LIVER Webinar on liver cyst infection. When: 25 June 2024 at 5 pm (CEST) Chairs & speakers: Anouar Aznou, Richard Taubert, Pavel Strnad, M.A. Lantinga Registration link: rare-liver.eu/news/detail/er…

Are you between 12-18 and living with a rare disease? Register to join the paediatric Patient Expert Group (PEG) to support researchers participating in the @INVENTSproject! -28-29 September 2024 -Bari, Italy -Deadline to show interest: July 10, 2024 ejprarediseases.org/join-the-paedi…

EMA recommends the withdrawal of Ocaliva for the treatment of primary biliary cholangitis: Statement from ERN RARE-LIVER The European Medicines Agency recommends the withdrawal of the marketing authorisation of Ocaliva for the treatment of primary bi... nachrichten.idw-online.de/2024/06/28/ema…

🎓The deadline is 15 July 2024 to host the next #ERNRareLiverAcademy ! 🔗For criteria see our website: rare-liver.eu/news/detail/ca… and reach out to us directly if you have any questions. 📧Please send your application directly to: [email protected] #ErnRareLiver #livertwitter

🚀 Excited to share the latest article on the European Joint Programme on Rare Diseases: Building the Rare Diseases Research Ecosystem! 🌍📚 Celebrating 5 years of groundbreaking achievements and collaborative efforts. oaepublish.com/articles/rdodj… @EJPRareDiseases #livertwitter

📢 Don't miss the deadline to host the next #ERNRareLiverAcademy 🎓Deadline for applications: 15 July 2024 🎓Announcement of the organiser: September 2024 🔗For criteria see our website: tinyurl.com/3suw3pkc ✉️Please send your application to: [email protected] #ErnRareLiver

🦶Kick off meeting ERN RARE LIVER 🏉Choledochal malformations (CM) ⚒️Creation core indicator set for CM in children & adults 🎡 Several Delphi rounds ❓Interested ? ✅Ruben de Kleine Research UMCG ERN RARE LIVER

📢 PSC in children and teenagers is a big topic❣️ ERN RARE LIVER also cares for young patients. ✅ Find our new easy-to-understand leaflets in 7 different languages on the website 🔗 tinyurl.com/3scpcpx6 #livertwitter #EDUTwitter #ESPGHAN

💡 Call for workshops is open now❗ 💶ERN RARE LIVER plans to fund workshops of disease working groups and other initiatives in 2025. 🔚The deadline to submit the application is 1️⃣ September 2024 🔗tinyurl.com/7m7w9swf 📝Please send the application to [email protected]

Unmet needs in autoimmune hepatitis: Results of the prospective multicentre European Reference Network Registry (R-LIVER). ERN RARE LIVER Liver International 🔓acortar.link/l3FRSO #AIH #LiverTwitter

📢We are asking #ERN #RARELIVER members to propose a fellow within their institution to be part of the ERN RARE-LIVER CPMS Helpdesk team! 💡More information on our website - rare-liver.eu/news/detail/op… ✅Apply via [email protected] to be part of this exciting initiative! #euhealth

The story of Veselina Solakova, who was diagnosed with #Autoimmune #Hepatitis at the age of 3 and came to seek an expert in Germany. Her and her father tell her story about how the right treatment changed her life📹: youtube.com/watch?v=QR5f60… #AIH #raredisease #ernrareliver #ern

Please Disseminate & Contribute: Cross-Border Access to Paediatric Clinical Trials Survey: erica-rd.eu/please-contrib…

Join Our Next Webinar on the Topic: How to Communicate with Adolescents and Young Adults 🗓 Date: 17 September 2024 🕔 Time: 5pm CEST 🔗 More information on our website: rare-liver.eu/news/detail/er… #Webinar #Healthcare #AdolescentHealth #ERNRareLiver

The ERN RARE-LIVER call for workshops in 2025 is now OPEN! 📅 Application Deadline: 1 Sept 2024 📍 Apply: Complete the application form on our website: rare-liver.eu/news/detail/er… ✅Submit to: [email protected] #LiverResearch #ERNRARELIVER #MedicalWorkshops #FundingOpportunity

Open Call for CPMS Helpdesk Fellows! ⏰ Deadline Approaching! ⏰3 September 2024 at 11:59 pm 📅 Duration: 1 year, starting October 2024 Submit your CV, a letter of interest, and availability to [email protected]: rare-liver.eu/news/detail/op… #ERNRareLiver #HealthcareOpportunity

📅 Save the Date! 📅 🌍 7th International Conference on Pediatric Liver Disease 📍 Location: Hamburg, Germany 🗓 Date: February 20-21, 2025 Mark your calendars - registration will open soon! static1.squarespace.com/static/648adff… #Healthcare #LiverDisease #ERNRareLiver #ERNTransplantChild

Join us for an invaluable session: "How to Communicate with Adolescents and Young Adults" 🗓 17 September 2024 🕔5 PM CEST 📌This is a must-attend for healthcare professionals who want to improve communication strategies with young patients. 🔗 rare-liver.eu/news/detail/er…

🖥️TODAY! This ERN RARE-LIVER Webinar at 5pm (CEST) will focus on how to communicate with adolescents and young adults. See you in 1 hour! Link here: uke-de.zoom-x.de/j/63296509757?…

The ERICA ERN Research #Conference is coming up! It will take place in Udine Italy from 11th Decmber 13th December, 2024. #ERICA aims to strengthen and interconnect ERN research and innovation capacity. click here for the call for abstracts: (erica-rd.eu) #ERN #Rare