One week to go! Register to discuss various types of bleeds, BATs, registries and more! Speakers: prof Michele Lavin, prof Dearbhla Dohert (St. Vincent’s University Hospital, Dublin, Ireland), and Baiba Ziemele. ERN EuroBloodNet
Register here: eurobloodnet.eu/education-2/pa…

#VWDunited

2 days left to take advantage of the #EHA2024 early-bird registration fee. Make sure to register soon to save your spot and join the global #hematology community in Madrid where will bring you the latest developments in the field.
Register now: eha.fyi/EHA2024_regist…

🚀The third EJP RD - European Joint Programme on Rare Diseases MOOC on 'Health Data Ethics & Regulatory Frameworks in Rare Disease Research' is launching today!

Join for an enriching learning experience with expert educators on hand to address your queries.

🔗 futurelearn.com/courses/health…

#ERNeu #ERNs #HealthUnion

Do you have novel research or a clinical case on #sicklecell disease or #thalassemia ? Abstract and clinical case submission for #ASCAT2024 are open for one more month.
Submit your work by May 31: eha.fyi/ASCAT2024
#thalassaemia #SCD #sicklecell disease

📢​Only 2 days left to register for the Preceptorship program dedicated to Aplastic Anemia in patients of all ages!

✅​3 preceptorships:
P1-bit.ly/441cGfI
P2-bit.ly/3JkGwlQ
P3-bit.ly/43Yy1q0

#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure

There are 2 days until the #EHA2024 late-breaking abstract submission will open. This is your chance to submit novel, unpublished research and, if accepted, have it featured in the Late-Breaking Oral Session on June 16.
Learn more: eha.fyi/EHA2024_LBA

📢​Don't miss the next EURORDIS-Rare Diseases Europe Healthcare Webinar series! Will be held online next Monday 29th of April at 14:00 CET.

​▶️​'Approaches to the Evaluation of Evidence for Rare Disease and Complex Conditions Guidelines'.

eurobloodnet.eu/news/578/don-t…

#ERNeu #ERNs #HealthUnion

Upcoming ERICA WP4 Webinar 3rd May 1pm: conect4children expert advice, patient and public involvement, data standards. ERICA Continue reading: erica-rd.eu/event/erica-wp…

Over 6,000 people from 50 countries responded to our latest Rare Barometer survey conducted with the Screen4Care project.

Join our webinar to find out what they said and how you can make sure that their voices are heard:
📅 30 April 2024
⏰ 2pm CEST
👉 go.eurordis.org/XAVrIz

You haven't registered yet? 5 days left!​⏳​
Preceptorship program dedicated to Aplastic Anemia in patients of all ages. ​

🎯3 preceptorships:
P1-bit.ly/441cGfI
P2-bit.ly/3JkGwlQ
P3-bit.ly/43Yy1q0

#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure

🕒 As the #InternationalThalassaemiaDay countdown begins, we are reminded that crucial treatments remain out of reach for too many.

With new therapies on the horizon, let's strive for #TreatmentForAll . Learn, support, advocate! 💜
thalassaemia.org.cy/itd2024/theme/

#BeAwareShareCare

Today’s #EHA #ThinkingThursday was prepared by Dr Daniel Wiseman from The University of Manchester and focuses on myeloid neoplasms and Acute Myeloid Leukemia #AML to mark #AML AwarenessDay.

Can you fill in A, B and C? Share your answers below or swipe for the answer.

▶️​Don't miss the chance to learn with the best! Apply until 1 May for the Preceptorship program dedicated to Aplastic Anemia. ​

🎯3 preceptorships:
P 1-bit.ly/441cGfI
P 2-bit.ly/3JkGwlQ
P 3-bit.ly/43Yy1q0

#ERNeu #ERNs #HealthUnion #EU4Health

📅​The EJP RD - European Joint Programme on Rare Diseases hybrid Final Conference will take place on 27-28 May!
This conference is set to bring together leading experts, professionals, and enthusiasts from around the world.

Check out the agenda⤵️​
bit.ly/3w3pxS4

#ERNeu #ERNs #HealthUnion #EU4Health

It takes two to tango! 💃

Patient-clinician partnership in the ERNs can consist of a variety of things: setting goals, meeting to discuss concerns, evaluating progress and celebrating achievements!

Are you involved in an ERN? 🙋 Find out more: go.eurordis.org/rWNgdL

🚀​Are you ready for the 12th edition of the #ECRD2024 ?
This event is coordinated by EURORDIS-Rare Diseases Europe & co-organized by Orphanet
📆​15 & 16 May and fully hybrid for the first time!

Check out what's on the programme and register now!
bit.ly/49Lftek

#ERNeu #ERNs #HealthUnion

Step through a portal to another world! 🌀

What magic can you expect from #ECRD2024 ? Find out directly from the event’s lead coordinator, our Open Academy & Events Director, Sharon Ashton!

Read the full article: go.eurordis.org/U1OKT2

📢​ #LastDays to apply for the Preceptorship program dedicated to #AplasticAnemia in patients of all ages.

⌛Until 1st of May​

✅​3 preceptorships:
P 1-bit.ly/441cGfI
P 2-bit.ly/3JkGwlQ
P 3-bit.ly/43Yy1q0

#ERNeu #ERNs #HealthUnion #EU4Health

🚀​Embark on a journey of knowledge with #ENROL !

​​Watch the videos available on eight languages thoughtfully crafted for patients seeking a deeper understanding of patient-centric research.

​​🖥️​youtube.com/playlist?list=…

#ENROL #ERNeu #ERNs #HealthUnion #EU4Health

📣 #EHA 2024 registration & abstract submission are open. Join us in Madrid from June 13-16 to:

👉 Connect with 18,000+ participants
👉 Learn about #EHA
👉 Contribute to the program & submit an abstract.
Register: eha.fyi/EHA2024_regist…
Submit your work: eha.fyi/EHA2024_abstra…