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🚨 Participate in the EJP RD Survey! 🚨 Help us assess the knowledge and impact of Rare Diseases research (data) resources and tools. Your input is vital for guiding future efforts. 🌟 🔗 forms.office.com/e/JyccyPRQ7t #RareDiseases #Research #EJPRD #Survey #ScienceForImpact

🗓️Join this year's EFGCP ‘Better Medicines for Children’ conference on 22 and 23 October in Brussels. This edition will touch upon common issues in clinical development amplified in #paediatric #drugdevelopment. Read the details here: efgcp.eu/event?title=EF… #c4c

📝 Job Alert! ERN EURO-NMD is hiring a #ProjectOfficer! Join us in improving care for patients with rare neuromuscular diseases. 🌍 📍 Location: Paris ℹ️More info: bit.ly/4cYLEtc #JobOpening #HealthcareJobs #RareDiseases #Neuromuscular

Dr. Lucas Moreno, head of the Childhood Cancer and Blood Disorders group #VHIR, explains the study that analysed the evolution of clinical trials in pediatric oncology and highlights the use of combination of early-phase trials. #RecercaPediàtricaVH 👉 youtube.com/watch?v=WwNslY…

📢‼️🌳JARDIN launches new website! We are happy to show you the official site of the Joint Action on the Integration of the ERNs into National Healthcare Systems Now, you can discover more about #JARDIN and the #ERNs. Enter now! Visit🌐jardin-ern.eu

🌟 Looking for valuable insights, resources, and inspiration on better medicines for babies and #paediatricclinicaltrials? 💻 Dive into our website today: conect4children.org💡

If you are a member of an ERN, patient group organization, charity or government (including public health bodies, HTAs, regulators), you are eligible for a free VIP pass. Apply now: terrapinn.com/WODC/ERICA

🚀 Reminder: Our survey on Rare Diseases research tools by EJP RD is live! 🧬🔬 Your insights are vital to improving our resources and shaping the future of rare diseases research. Don't miss out! Take the survey now! 👉 forms.office.com/e/JyccyPRQ7t

🧡 Did you know #support groups and patient organizations are vital for people with rare #vascular diseases? These communities offer emotional support, share information, and advocate for awareness and resources. Learn more: bit.ly/3WwA9St #RareDiseases #PatientSupport

🚨 Webinar Alert! 🚨 Join us on Sept 18, 2024, 18:00 CEST, for "Risk of Infection and Immunological Rare Diseases" with Dr. Laia Alsina from Hospital Sant Joan de Déu, Barcelona. Register now ⬇️ register.gotowebinar.com/register/63495…

Please Disseminate & Contribute: Cross-Border Access to Paediatric Clinical Trials Survey: erica-rd.eu/please-contrib…

We are now ERDERA! This new partnership builds on EJPRD achivements to continue advancing diagnosis, prevention, and treatment research for the 30+ million people living with a rare disease in Europe and beyond. 👉 erdera.org

Time is running out! ⏰ This is your last chance to recognise and celebrate the individuals, organisations, and initiatives making a profound impact in the rare disease community! #EURORDISAwards2025 🚨 Deadline: 12 September, 2024 🏆 Nominate now: go.eurordis.org/Nominate

💡Did you know that less than 50% of medicines commonly used in children have been studied in that population? To address this critical gap, c4c provides an integrated platform for the efficient delivery of high quality clinical trials in children💊

🔍 Over 270 people tuned in to the Data Sharing Playbook Masterclass today! Attendees engaged in hands-on sessions with case studies, gaining practical insights for confident data sharing. At @Teamit we are proud co-authors of this valuable resource!👉 loom.ly/DiGlR0Q

📢 It's #SexualHealthWeek! Early symptoms of #PenileCancer (sores, redness, discharge) can be mistaken for symptoms of an STI, delaying diagnosis & treatment. If you notice anything unusual, don't "ignore it"—talk to a doctor! 💡✅ youtube.com/watch?v=YLbSz7… Orchid European Association of Urology (EAU)

🌟September is the #Thyroid #Cancer #Awareness #Month.🌟 Did you know some thyroid cancers are rare❔ Get information on our website to learn more about these diseases! euracan.eu/rare-adult-sol…

The European Rare Diseases Research Alliance ERDERA kicks off with a bold vision to make Europe a global leader in rare diseases research and innovation. 🚀 Read press release🗞️erdera.org/wp-content/upl…​ 🌍💙 #ERDERA #RareDiseases EUScience&Innovation🇪🇺 Horizon Europe🇪🇺 Inserm

World Orphan Drug Congress Europe 2024 on October 22-25! 🌍#WODC Join the thousands of global orphan drug and rare disease leaders come together under one roof. ERNs, are eligible for a free VIPpass: erica-rd.eu/event/world-or…

The European Rare Diseases Research Alliance (ERDERA) kicks off with a bold vision to make Europe a global leader in rare diseases research and innovation. Read ERDERA’s press release🗞️​ bit.ly/3zgaZA0 🌍💙 erica-rd.eu/european-partn…