Thank you once again to #mylocal for your support 🎗 x.com/mylocalwhiterd…

Our newsletter is now out! Place read to see all the amazing things EHE patients & their supporters have been doing! lookaside.fbsbx.com/file/News%20le…

Thank you BBC South East for the coverage 🎗 x.com/millysimmie/st…

Thank you Lindsey Lindsey for hosting a Partylite party today and raising £300 for EHE Rare Cancer Uk. Great stuff!!! 🎗

Thank you Jenna! Good luck! 💪🏻🎗😀 x.com/jennaloufrench…

Thank you Rix & Kay Solicitors for your support, we hope it went well for Ed, from all at EHERCCUK 🎗 x.com/rixandkaylaw/s…

Good luck to our EHE marathon runners tomorrow. Jenna Louise French Robert Smith and Jimmy Deane! Charlene 🎗🎗🎗🏃🏻🏃🏻🏃🏻

Well done & thank you to Jenna Louise French, James Deane & Robert Smith on completing the #LondonMarathon2016 in support of #EHERCCUK. Amazing

Thank you to BBC Points West for interviewing one of our patients Nicola Henderson about her EHE rare Cancer & the much needed fundraising 🎗

EHE patient Nicola Henderson appeared on BBC Points West this evening to talk about EHE & fundraising. Thank you Nic bbc.co.uk/iplayer/episod…

This is simply amazing! Milly Simmie thank you to everyone involved!!!!! Such an amazing contribution to our cause x.com/millysimmie/st…

Simply amazing 🎗💪🏻🚴🏼 x.com/millysimmie/st…

tomorrow Sat17 charity auction with lots from Somerset Cricket Exeter City FC Yeovil Town FC The Wurzels🎶 + facebook.com/auctionofpromi…

Thank you Jas Mathews what a great idea, hope others will chose EHERCCUK too! 🎗 x.com/lojangodesign/…

Help Nicola Henderson and her fight against EHE Rare Cancer. Add a picture of your best #positivepants & donate RT

Nicola is an EHE patient, please read the article, get involved and share! #positivepants #eheawareness x.com/glosgazette/st…