EB Research Partnership
@EBResearch
EB Research Partnership funds research aimed at treating and curing Epidermolysis Bullosa (EB).
๐ฆ #HealEB
๐ฌ Find a cure
ID:1504787226
http://www.ebresearch.org 11-06-2013 16:42:16
2,0K Tweets
3,4K Followers
371 Following
Follow People
Was an honor taking photos for the Vedder fam, EB Research Partnership and little Patterson who lives with EB, a debilitating skin disorder. This kid has a heart of gold and inspires beyond words.Follow the links to learn a little bit more โ๐ปโค๏ธ๐ฆ
Top fundraisers on Team Vedder will be entered to win one of the great prizes below! Learn more and get involved at give.ebresearch.org/vedder2024
๐ฆ Ukulele signed by Eddie
๐ฆ Original Eddie Vedder Wave Art
๐ฆ Dark Matter Record signed by Pearl Jam
๐ธ: Tim Durkan Photography
Come see us to support EB Research Partnership in Nashville at The Vinyl Lounge this Saturday! ๐ฉท๐ฆ tixr.com/groups/vinylloโฆ #hookedlikehelen #butterflychildren
Seattle showed up BIG TIME at the Plunge for Elodie in honor of Patterson hosted by our incredible co-founders Jill Vedder & Eddie Vedder ๐๐๐ฆ๐ฆ๐ฅถ๐ฅถ๐ฅ๐ฅ
Team Vedder is making huge waves for EB and you can join them at give.ebresearch.org/vedder2024
๐ธ Photos by Tim Durkan
Thank you to the entire Seattle community who showed up to take the #PlungeforElodie !!! ๐๐๐ king5.com/article/news/lโฆ
Big splash at Alki Beach this morning with EB Research Partnership co-founders Eddie Vedder and Jill Vedder ... and Patterson! westseattleblog.com/2024/04/video-โฆ
POLAR PLUNGE: 100+ people, along with Team Vedder, ran into Puget Sound for EB Research Partnership this morning in honor of Patterson, a young boy from Maple Valley living with Epidermolysis Bullosa. FOX 13 Seattle
Lots of positive vibes coming from EBRP Australia!!! The GWS GIANTS stopped by the #PlungeforEB before battling out to remain undefeated this season.๐ฆ๐ช๐๐ฅ
Just a few weeks ago our CEO @michaelphund shared the stage, our mission and innovative business model with Jill Biden among other change makers at #IMAGINENonprofit . You can watch the full keynote here: youtu.be/9TV53ui60xk?siโฆ
AWS Nonprofits
From AFL legend Browny in South Australia to MLB all star Sean Casey in Pittsburg โ the #PlungeforElodie is a worldwide movement to support EB! ๐ช๐ฆ๐ Want to join in the fun?! Head to give.ebresearch.org/virtual2024
I didnโt actually take the plunge per se this year, but I have in years past and the support is the same!
Learn about Epidermolysis Bullosa and give to support research to fight it here: ebresearch.org
Plunge For Elodie EB Research Partnership
Listen to the 1st episode of Wishlist Foundationโs interview series, Candle of Thought. What an honor to chat with Jill Vedder and Michael Hund about EB and EB Research Partnership! Listen to the interview below. Then head over to give.ebresearch.org/wishlist2024.
youtu.be/L32goYrZZug