We are looking for adults with #LivedExperiance and #parents to join the #Dystonia IMPACT patient and family advisory group! Contact the research team at [email protected] to find out more or get involved and help us shape our research!

We are looking for #children and #YoungPeople with #MovementDisoders including #Dystonia to join our Young Persons Advisory Group! Ask your parent/carer to contact the research team at [email protected] to find out more or get involved and help us shape our research!

Excited to be presenting our poster from Dystonia IMPACT on “Enabling people from underrepresented groups to take #PPI roles in #paediatric #dystonia research” today at 9:40am CEST at poster screen 7 at #EACD2025 #IAACD2025 Dr. Hortensia Gimeno Kate Knighting 😷💙 Bone and Joint Health

📢 Calling all healthcare #hcp #ahp, #SocialCare, & #education-based professionals working with #children with hyperkinetic movement disorders #HMD including #Dystonia & dyskinetic/mixed #CerebralPalsy to take part in our Dystonia IMPACT survey: ➡️ tinyurl.com/532rxb9c

The Dystonia IMPACT team are recruiting children & young people with dystonia & their parents to take part in interviews to find out what matters most to them. Register your interest: tinyurl.com/DystoniaIMPACT Or contact the team at [email protected]

Do you work with children and young people with hyperkinetic movement disorders? Queen Mary University of London are developing a core outcome set to improve care & research and they need your input! 📝 Complete the survey: tinyurl.com/532rxb9c #DystoniaIMPACT #HyperkineticMovementDisorders