We are so grateful for our supporters like mother Sarah who helps to spread awareness of #Dystonia in person and all over social media.

Available on all streaming platforms! bit.ly/3JzE7nh

#Dystonia UK #MovementDisorder #NeurologicalCondition #Dystonia MattersPodcast

📣Your chance to win some fab prizes in our #SpringRaffle is here!

Head to the Givergy website, choose the prize or prizes you want and grab your tickets! bit.ly/3QmLSRs

Each ticket you buy increases your chances of winning!
The draw closes on 31st May.

#DystoniaUK

Connect with others who understand at our #Dystonia UK meetups this May!

•  Plymouth, Saturday 4th May @ 11am
•  Oxford, Saturday 11th May @ 2pm
•  Manchester, Saturday 18th @ 2pm

Find out more dystonia.org.uk/your-local-sup…

#Dystonia #MovementDisorder #NeurologicalCondition

Team #Dystonia UK is jumping for joy because our 🌼 🎟️Spring Raffle 🎟️🌸 is just around the corner!!!

📢 Latest update! 📢

All of the fab prizes will be revealed soon and tickets go on sale on the 1st of May! Keep your eyes peeled and get ready to win big!

#Dystonia 💚

📢 Join #DystoniaUK patron, Paralympic champion, and world record breaker Tully Kearney MBE for an incredible, free Frame Running experience!

The sessions are running in Leicestershire and are open to all, regardless of age or ability bit.ly/4d93cmQ 🌟

What an extraordinary day!!! Team #DystoniaUK had an absolute blast yesterday cheering on our incredible runners, Kelly, Beccy and Jack, at the TCS London Marathon🎉🎉

Register your interest to run in aid of Dystonia UK by emailing [email protected]

#MovementDisorder

Team #Dystonia UK are heading to the #LondonMarathon tomorrow to cheer on the incredible Jack while he tackles all 26.2 miles in honour of his late nan Jean who lived with #Dystonia 💚

Visit his page, read his story, and support him with your donation bit.ly/3x6bqeL

The #DystoniaUK Awards are back!

The awards shine a spotlight on our incredible community, giving you the opportunity to nominate and vote for your very own:
Dystonia Superstar🌟
Masked Hero🦸
Young Champion🏆

Make your nominations! bit.ly/DystoniaUKAwar…

#Dystonia made headlines on BBC News (UK) today as Emma and Gareth shared the remarkable story of their incredible eight-year-old daughter, Hayley, who has become the first in the world to undergo a new form of deep brain stimulation.

Read the full article bit.ly/3Jl5EJa

Victoria and Bernie from #Dystonia UK joined the amazing members of the #Dystonia support group in Kent!

Groups like these provide opportunities for individuals to connect, share experiences, and meet others living with dystonia.

Find your group bit.ly/49H5Ay2

Listen to the full episode of the #Dystonia MattersPodcast where the incredible #Dystonia UK Ambassador and social media star Ella Middleton shares her journey of being diagnosed with fixed functional #Dystonia following a horse riding accident.

🎙️bit.ly/4aHxHhq

Shining a spotlight on our remarkable #Dystonia UK fundraiser, Manoli, for raising an outstanding £700 in support of his son, Luca who was diagnosed with paroxysmal dyskinesia #Dystonia at 18 months old.

Take part in a challenge event for Dystonia UK! bit.ly/3xsykNz

You still have time to participate in the latest #NeuroLifeNow survey, running until the end of the month. In this survey, NeuroLifeNow is asking about your experiences with NHS waiting times.

Take part and share your experiences 👉neurolifenow.org

#Dystonia UK #Dystonia

“I have surprised so many people, as well as myself at times, with what I can achieve when I set my mind to it.”

Become a member of #Dystonia UK to read all the future #Dystonia stories in our upcoming #Dystonia Matters magazine! bit.ly/3TI4A70 📚

#NeurologicalCondition

Listen to Season 4 of the #Dystonia MattersPodcast where Rebecca discusses her life's unexpected shift from an active student midwife to life full-time in a wheelchair.

You do not want to miss this one! 🎙️ bit.ly/3J2n7WF

#Dystonia #Dystonia UK #MovementDisorder

“It’s something that creeps up on you”

Beloved folk singer songwriter and broadcaster Huw Williams, opened up about his recent diagnosis of #Dystonia and how it affects his throat and fingers.

Read the full article bit.ly/3VLFgzr

#Dystonia UK #NeurologicalCondition

150 adults with neck #Dystonia and 150 adults without dystonia needed!

#Dystonia UK is working with Professor Ian Loram and his team at MMU to support a study aiming to improve outcomes in clinical treatment of dystonia.

Read more about the study here: bit.ly/3IN4S7v

Register and join us for a 'Reach Out, Reach All' webinar tomorrow!👩‍💻⏰

We're working in partnership with the BPNA, to set standards for medication use in childhood #Dystonia , to help improve the quality of care for children with dystonia.

👉bit.ly/3TKDJY5

Team #Dystonia UK is excited to offer runners the chance to secure their entry for the #GreatNorthRun !🎉

Limited spaces available 🏁 Find out more and grab your space! bit.ly/DystoniaUKGNR 💚

#Dystonia #NeurologicalCondition #MovementDisorder

We're working in partnership with BPNA to set standards for medication use in childhood dystonia, to help improve quality of care. Please join us for a 'Reach Out, Reach All' webinar next Wednesday to find out how to be involved! bit.ly/3PM6MZV
#Dystonia #Dystonia UK